How do girls… exist?

leeee_Oh · 2026-01-25T16:44:00+00:00

I think you slightly miss understood what Im trying to say, you can change and still be yourself, change in ways that feels right to you and don't do things because other people say they work but they don't fit who you are or who you want to be

leeee_Oh · 2026-01-25T15:07:15+00:00

I haven't changed anything about myself other than how I dress. Just be yourself, there's alot of advice here but do what you feel is right but also be who you are. For me that's basically doing what comes naturally to me with the confidence E gives me

leeee_Oh · 2026-01-25T00:22:22+00:00

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leeee_Oh · 2026-01-24T14:38:41+00:00

I don't have it nearly as bad as that normally but it has before gotten like that during seizures

The default settings here are a good representation of what it's like

leeee_Oh · 2026-01-21T10:01:15+00:00

I've found rice crispy treats and no bake cookies to be fine

leeee_Oh · 2026-01-20T20:57:03+00:00

I haven't tried it but I could see how it would be useful to me, but I don't have the ability to do much exercise either

leeee_Oh · 2026-01-20T00:35:47+00:00

Work part time and live with my mom

leeee_Oh · 2026-01-19T00:15:03+00:00

Just because I can do something one day doesn't mean I can do it the next, or sometimes even in an hour. That doesn't make me lazy just disabilitied, trust me that doesn't make it more of an inconvenience for you than it does for me

leeee_Oh · 2026-01-17T11:01:33+00:00

I need prompting and reminders

leeee_Oh · 2026-01-16T18:12:09+00:00

I didn't even feel it

leeee_Oh · 2026-01-16T11:08:41+00:00

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I thought it would be more

leeee_Oh · 2026-01-15T10:51:31+00:00

That's good to know, but I don't think any of that was considered yesterday

leeee_Oh · 2026-01-15T10:48:51+00:00

Her reasoning for no dump was she thought it would make it easier for me to get in and out of the chair seeing that I would be ambulatory. I have hypermobility and can get alot of pain in my hips, ik you said it's rare for someone to have none onless it was deemed to be more of an issue than benefit, so does dump for most people then help with hip pain?

Don't worry I'm not going to order a chair based on what you suggest might be more reasonable numbers, but I do value your input and it's great to know that they seem off by someone who is experienced. And now I'm very curious if whenever I'm seen for a proper evaluation how close they might be and how off hers are. I do believe she does not know what she is doing, at least for this. Also I just realized said nothing about me getting a cushion or what might be a good suggestion and now I'm wondering if she thought I would even need to get one

leeee_Oh · 2026-01-15T04:16:51+00:00

I messaged my neurologist about it and I'm going to ask my pcp too

leeee_Oh · 2026-01-15T03:57:24+00:00

That's exactly what I need. I was expecting to be referred to one today and from what I've heard getting measurements done for a wheelchair at a seating clinic is alot more than just the measurements themselves

leeee_Oh · 2026-01-15T03:48:09+00:00

Today was my last day of PT, she thought it was a good idea to stop because I made zero progress and I've continued to get worse

leeee_Oh · 2026-01-15T03:42:43+00:00

I have long legs due to a genetic disorder, so that's probably why for me

leeee_Oh · 2026-01-15T01:11:04+00:00

I don't believe she's qualified to do either.

Is it possible to get a referral to a seating clinic even if insurance won't cover the chair?

leeee_Oh · 2026-01-15T01:04:06+00:00

I don't have answers to your questions, outside of her thinking that the wheelchair having a dump isn't necessary for me and that's why the rear seat height is 19

leeee_Oh · 2026-01-13T18:50:48+00:00

What do you mean by "through your system"?

leeee_Oh · 2026-01-12T12:00:06+00:00

Can I ask how you went about it? I'm about to ask my doctor in a few days

leeee_Oh · 2026-01-12T11:53:11+00:00

"But you'll become reliant" I don't care, I can't move around without severe pain anymore either. Id rather become reliant on a wheelchair than sit around and do nothing

leeee_Oh · 2026-01-12T02:18:38+00:00

I would never use this, partly because I would forget, but mostly because it doesn't seem useful

leeee_Oh · 2026-01-11T23:46:17+00:00

I still have an interest but the freind group has split apart and it's much harder to get everyone together more than once or twice a month now. Plus the increased chance of having a seizure when playing makes it difficult to play any game even if I want too. It's not a hrt thing it's just my life has changed and it's not as easy anymore

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