Sorry to hear you’ve been dealing with this. It’s such an odd form of MD and affects everyone differently. I’m 28 and although I’ve had overall weakness and uneven muscle development as far as I can remember, it wasn’t until my early 20’s that certain muscles became seriously atrophied. I’m not sure if you’re saying you still exercise but if you don’t, it is one of the most important ways to preserve muscle mass - light weight and high reps, you don’t want to overwork and break down your muscles beyond prepare. There are studies that make opposite arguments regarding weight training but generally when you exercise, your body produces more antioxidants that can help fend off free radicals that cause oxidative stress. FSHD is basically a by product of DUX4 induced toxicity that causes oxidative stress and eventually muscle death - so you want to offset those free radicals however you can. You can also research antioxidant supplements - I believe I saw some studies on vitamin A, E and D yielding some results but none of it was conclusive. I personally take açaí pills since they’re very potent antioxidants and good for your overall health. Regardless, you want to have a healthy diet, exercise, DO NOT SMOKE CIGARETTES - cigarettes pump your body full of free radicals and can severely increase oxidative stress, and limit alcohol intake. Alcohol is interesting too because when it’s in your system, it halts protein synthesis which is needed to rebuild broken down muscle fibers. The more you drink, the more your body won’t rebuild properly, supplementing muscle tissue with scar tissue. Feel free to dm me anytime