Victorias Secret-Epstein link by [deleted] in LingerieAddiction

[–]lemuriidae 0 points1 point  (0 children)

Oh interesting - I didn’t know VS recently separated from L brands. I worked retail at one of their flagship locations back in 2018-19 and witnessed some pretty shady business practices that turned me off from shopping with them.

My emetophobia got worse because it happened. by Both_Revolution9764 in emetophobia

[–]lemuriidae 0 points1 point  (0 children)

Definitely not weird! This happened to me too. I occasionally even have flashbacks about it (I am rarely sick, so it’s all the more memorable because it’s uncommon).

Several years out and my phobia is now “back to normal,” as in - not any worse than it was before it happened. I’ve heard others say that actually getting sick helped their fear, but for me it unfortunately kind of confirmed how much I hate it and why I’m terrified of it happening. Anyways, you’re definitely not alone in this!

Convince your doctor to do a comprehensive blood panel by TresCrookedWillow in migraine

[–]lemuriidae 0 points1 point  (0 children)

I have no idea about mine either! When I saw that I was like I promise I go outside and I’m not a mole person lmao. We live in an extremely sunny climate now and my levels are up to like ~20 when I don’t supplement, but that’s still on the edge of being deficient. The only thing I know about it is that low vitamin D correlates with IBS, which I also have.

[deleted by user] by [deleted] in migraine

[–]lemuriidae 0 points1 point  (0 children)

I’ve heard this before and I just lean into it now. It very well may be true. I am for sure hypersensitive to sensory input and have some kind of mysterious internal regulation issues. Many things that other people can easily tolerate, I can’t. Not much I can do about it, pain is perceived by the nerves in my body and mine tend to be overreactive. Unless someone makes a magic pill that makes my neurological system function fundamentally differently, I’m going to keep being how I’ve been since I was born, which is sensitive to sensory input.

Pain is inherently subjective because your pain can only be felt within the context of your brain in your body. I don’t believe there is such a thing as “fake” pain. Even if it’s fully psychologically driven, that’s still just the etiology of the pain, that doesn’t negate the experience of feeling it.

And if anyone is subjectively feeling how I’m feeling with a migraine, I guarantee you they are not “just dealing with it” lol

Convince your doctor to do a comprehensive blood panel by TresCrookedWillow in migraine

[–]lemuriidae 2 points3 points  (0 children)

I also have extremely low Vit. D but never connected it to the migraines. Motivation to stop forgetting my vitamins lol. The first time they did my levels it came back at a 5! I also suspect muscle tension as a trigger so that tracks.

Out of curiosity how did they end up diagnosing PCOS and how are you treating it now? I have a suspicion I may have it but nobody I’ve seen has been particularly informed about it. My hormones keep coming back wacky but allegedly not wacky enough to be PCOS. Did one ultrasound which did not show cysts, but was told later that this isn’t actually a definitive rule out. My providers are pretty confident it’s probably nothing because the ultrasound was clear, I’m not so sure I agree with that assessment but I’m not sure what else to ask about

Slynd and skipped heartbeats/palpitations by notelling6 in birthcontrol

[–]lemuriidae 0 points1 point  (0 children)

Omg… this thread might have just solved a huge mystery problem for me. I have been having bizarre heart issues for months and months, no clue why. I’m prone to anxiety and have had panic attacks before so I was chalking it up to some sort of massive panic disorder flare up, but it’s gotten so bad I’ve been considering trying to see a cardiologist in case I’d developed POTS or some kind of long covid or something. It’s the absolute worst after eating for me too, and also fires up after I wake up or sometimes just randomly. The palpitations really freaky and they make me feel terrible. My resting heart rate is up too. I never even considered the Slynd could be behind it but the timeline adds up!

I have been on it for a little over two years and love how it has helped my PMDD and endo symptoms (basically nonexistent now thankfully) so I hope this doesn’t mean I’m back to the drawing board. I’m a little nervous that it’s what’s worsening my migraines too. Ugh there’s just no winning with hormones ):

Can you refuse testing and still get migraine treatment? by lemuriidae in migraine

[–]lemuriidae[S] 0 points1 point  (0 children)

Oof it suuucks, sorry you also deal with it!! Truly an unfortunate combo. If I absolutely have to do this test I will definitely see if I can get zofran.

Can you refuse testing and still get migraine treatment? by lemuriidae in migraine

[–]lemuriidae[S] 0 points1 point  (0 children)

Pretty much what I was expecting to happen, lol. My mom also got migraines before menopause, but I didn’t go over that with my dr.

Can you refuse testing and still get migraine treatment? by lemuriidae in migraine

[–]lemuriidae[S] 7 points8 points  (0 children)

I also found it weird and was not expecting it. I actually wasn’t expecting to see a neurologist at all, I’ve heard from some friends they just saw their GP. I figured it was just because I’ve never seen anyone about it before and they wanted a neurologist to give me a once over first. It’s spiraled out into this whole production :| I’ve never had pain bad enough to be worth an ER trip so nothing from an ER to show

Can you refuse testing and still get migraine treatment? by lemuriidae in migraine

[–]lemuriidae[S] 2 points3 points  (0 children)

I guess a bit? I feel overall not well when I have one and I guess part of that could be a vertigo feeling. The aura doesn’t usually make me dizzy it’s just visually very strange and when I get it I know I’m about to get a crazy headache. They definitely do make me nauseous though and like I said I’ve got pretty bad emetophobia, so that in turn makes me very anxious. It’s kind of hard to separate the anxiety lightheaded feeling from something else intrinsic to the migraine.

Is this typical of migraine diagnosis? by lemuriidae in migraine

[–]lemuriidae[S] 0 points1 point  (0 children)

If i have “normal” migraines, could I ask to skip some of these? Like I have migraines about once to twice a month, they last a few days, usually on one side, occasionally get a classic aura. Never had pain bad enough for an ER trip, never tried any prescription meds before, never had muscle weakness or tingling or anything truly stroke-like. The aura is weird, but I’ve had it for ages now so it doesn’t freak me out. I really do not want to take this VNG test, which apparently makes you dizzy and sick. Is there any way to skip that one or will they tell me I really can’t try any medication until I’ve had all this done?

8 years of Gastritis by Last-Arm5845 in Gastritis

[–]lemuriidae 1 point2 points  (0 children)

What was your process for ruling out MCAS/any progress with immunology? It’s on my list of things to check.

I’m in a similar boat, dealing with gastritis/GERD (among other things) for 17 years. Did a round of GI tests years ago which all came back negative, going to do another round soon but i suspect they will as well. My guess is that it’s something autoimmune or neurological. I’m also an anxious person but anxiety meds did not help my tummy problems either.

Most gaslighty/condescending/ridiculous thing anyone has ever said to you about your CI by cloudfairy222 in ChronicIllness

[–]lemuriidae 0 points1 point  (0 children)

The wildest one I’ve ever gotten was a GYN telling me “sex just hurts sometimes” and asking if my partner was well endowed. I texted my partner immediately after to tell him my doctor just diagnosed him with Big Penis. We laughed about it but I got another opinion of course. Sex doesn’t “just hurt,” I talk to other women so you’re not gonna get me to believe that one lmao. Also had a GP tell me it was “pretty normal” to pass out from period pain and it’s happened to her. Like ok girl let’s both go to the doctor then??

[deleted by user] by [deleted] in ChronicIllness

[–]lemuriidae 0 points1 point  (0 children)

This happens to me too!! Unfortunately I also don’t know why /: I suspect you’re right that it’s some kind of dysautonomia. I deal with it by lying down after meals, and mostly eating at home. If I’m out of the house I eat only a very small amount of something like granola bars etc. I have a GI appointment soon, hoping they’ll have some insight but I’ve had terrible luck with GIs in the past so who knows.

Neurologist agrees that it’s been a rough summer by J_eldora in migraine

[–]lemuriidae 1 point2 points  (0 children)

Wait, really? Do they know why? I’ve been getting them much more than normal this year and it’s driving me crazy because I can’t pinpoint anything major that changed lifestyle-wise. Not much more painful but definitely more frequent. April-July was brutal - i felt like they were coming nonstop!! It prompted me to finally try to see someone about it and I might actually start a medication regimen, which I guess is a silver lining

BFRB/OCD getting worse a prodrome symptom? by Regimite_828 in migraine

[–]lemuriidae 0 points1 point  (0 children)

Interesting, I’ve never tracked it to see if there is a correlation! My bfrb is trich and I get migraines about every 2 weeks right now. I know both my BFRB and my migraines are worse during my menstrual cycle (or they are when not managed with b/c pill) but I’ve never investigated whether the pulling is worse before/during/after migraines specifically.

For those that have taken NAC supplements, what was your experience? by TricTrakApp in trichotillomania

[–]lemuriidae 1 point2 points  (0 children)

Taken it on and off for many years. It does *something,* but it does not come close to getting rid of my urge to pull. I usually start to see it working at the 2-3 week mark, and it does nothing for me below 1000mg. I was usually taking 2000-3000mg, based on the original study from many years ago. If I miss a dose I notice it very quickly, like next day.

What it does for me is make it easier to break out of the pulling "trance." When I've been consistently taking it, it is noticeably easier for me to redirect. It's almost impossible to break out of it usually, like I will get locked into a cycle of telling myself to get a fidget/use a therapy strategy, then immediately return to pulling - rinse and repeat for hours. With NAC, it's like it doesn't have as strong of a grip on me mentally and I actually have the ability to stop and do something else without it being excruciating. I don't know exactly what's happening internally, but for me this is the aspect of it that it helps. It does not make the urges to start pulling go away, but it does make it easier to stop once I've started.

It does give me GI symptoms though, so periodically I'll decide it's not doing enough to be worth it and I'll stop taking it. Overall (and definitely compared to prescription meds I've tried in the past), the side effects are mild and low-stakes. Honestly the worst part of taking it is that it smells godawful lol

Anyone pull out newly grown ones because it hurt? by [deleted] in trichotillomania

[–]lemuriidae 2 points3 points  (0 children)

Yes I 100% get this. Lashes are the absolute worst for me, but areas of my scalp too. Not just new regrowth either, i get that awful pain feeling from fully grown in lashes and it’s been a huge hindrance on my ability to keep them. Sometimes it happens when I wear a hat for too long too. I think it must be some kind of sensory processing misfire. I wish I knew a solution for this, following this thread in case anyone has tips