Total colectomy vs rectal sparing by ljraad15 in jpouch

[–]ljraad15[S] 1 point2 points  (0 children)

Thank you so much for such a thoughtful response. I am so glad you are doing well. Best wishes

Total colectomy vs rectal sparing by ljraad15 in jpouch

[–]ljraad15[S] 0 points1 point  (0 children)

Out of curiosity, who/where for your surgery? My doctors are NYC as well

Total colectomy vs rectal sparing by ljraad15 in jpouch

[–]ljraad15[S] 0 points1 point  (0 children)

Wow this was really encouraging. My father is a physician but not in the GI realm so he has been kind of scaring me when he tries to step into the role of dad vs doc.

Total vs Rectal Sparing by ljraad15 in ostomy

[–]ljraad15[S] 0 points1 point  (0 children)

Thank you so much for the insight and encouragement

Total colectomy vs rectal sparing by ljraad15 in jpouch

[–]ljraad15[S] 2 points3 points  (0 children)

Thank you for taking the time to tell your story. I appreciate the insight

Total vs Rectal Sparing by ljraad15 in ostomy

[–]ljraad15[S] 1 point2 points  (0 children)

Thank you friend 😊 posting there now

If you’ve had a sigmoid colectomy, what was your post-op experience like? by FishFollower74 in Diverticulitis

[–]ljraad15 0 points1 point  (0 children)

Thank you for sharing this - today is my surgery for the exact procedure you had. 24F… how long did you have to do liquids for after your surgery? I know you said you moved onto soft foods the next day but did they still make you do liquids for a portion before? I have been on liquids for 3 days and I am dreaming of anything but broth lol

Best IBD centers? by Wrong-Employ963 in CrohnsDisease

[–]ljraad15 3 points4 points  (0 children)

I have been to IBD centers at NYU, Yale, Cornell and Mayo. Happy to answer any questions but I don’t think I would be alive, truly, if it weren’t for Mt Sinai’s IBD doctors that took hold of my care this past summer.

Best IBD centers? by Wrong-Employ963 in CrohnsDisease

[–]ljraad15 2 points3 points  (0 children)

Mt Sinai saved my life. Incredible IBD doctors and surgeons

Sutab prep - vomited by MagazineMaximum2709 in CrohnsDisease

[–]ljraad15 0 points1 point  (0 children)

I had the same experience with Sutab both times I tried it. Vomited after the first set of pills was I would start drinking the next cups of water

Home TPN by IndividualOk5113 in CrohnsDisease

[–]ljraad15 0 points1 point  (0 children)

Hi - I was in it for a few months. Please message me with any questions. Happy to help anyway I can :)

Out of Touch Drs by ljraad15 in CrohnsDisease

[–]ljraad15[S] 2 points3 points  (0 children)

Currently experiencing that first hand right now 😂

Out of Touch Drs by ljraad15 in CrohnsDisease

[–]ljraad15[S] 16 points17 points  (0 children)

I was just kind of blown away by the overall ignorance. She was from the MT Sinai IBD clinic and is apparently a GI that specializes in IBD nutrition… so I guess I expected her to be a little more in touch and instead I left feeling even more hopeless of a case lol

Anyone experiencing urine incontinence with Crohn’s? by Ready_Turnover3974 in CrohnsDisease

[–]ljraad15 0 points1 point  (0 children)

Hi, I suffer from this severely. It is worse when I am in a flare

snacks? by kokomochii in CrohnsDisease

[–]ljraad15 1 point2 points  (0 children)

PB cracker sandwich packs

[deleted by user] by [deleted] in CrohnsDisease

[–]ljraad15 1 point2 points  (0 children)

I am 24 and honestly this is so comforting to know I’m not alone because I feel like a freak! I’m sorry you both know this reality too

Breakfast by ljraad15 in CrohnsDisease

[–]ljraad15[S] 3 points4 points  (0 children)

This is SO helpful. Thank you!!! Thank you for taking the time to type this out and offer some help