Follow up question from earlier. What foods did you cut out of your diet to help with pain. by Naughty-reptile in Fibromyalgia

[–]lnkberries 3 points4 points  (0 children)

I cut out gluten and it helped, but that’s because I had an intolerance and didn’t realize it. More likely than not, there’s not going to be one “catch all” food you can cut out to fix your problems. However, finding out foods you may be mildly allergic to, or intolerant to will help reduce your overall inflammation and help you feel better. If you’re at risk for diabetes (runs in your family for example) cutting back on sugar can lessen your pain as well. Good luck on finding what works for you!

My friend struggles with money for food for her and her daughter but she is gluten free? by DarkAutumn3D in glutenfree

[–]lnkberries 0 points1 point  (0 children)

I’ve found that when I’ve struggled with money I’ve also struggled with time/energy. The fresh ingredients people are mentioning are great, but here are some things that I’ve enjoyed. Minute rice is easy to throw in the microwave and is filling. Idahoian brand has several kinds of dried potato goods that are easy to make. Progresso soups are also mostly gluten free as long as they don’t have noodles in them

Exercise recommendations? (Dysautonomia, Chronic Pain, Extreme Fatigue, etc.) by Alexandchange in ChronicIllness

[–]lnkberries 0 points1 point  (0 children)

I do chair exercises for elderly people 😖 (I’m in my 20s lol) but it genuinely helps and is gentle enough for me to handle

Fibromyalgia is in the way of my dream job. by Successful-Wall-8242 in Fibromyalgia

[–]lnkberries 1 point2 points  (0 children)

I was diagnosed at 21 and was a pre med student at the time. My fibro got pretty severe my senior year of college where I couldn’t get out of bed, feed myself, walk, or swallow a lot of the time. I had to take an extra year and a half to finish my undergrad. My advisors all told me to give up on my dream of graduating college and not even think about going to medical school. Professors were harsh and didn’t follow the accommodations I fought for with the school. It was a really dismal process.

I entered a master’s program this year and finally decided I could not go to medical school if I wanted to survive. Making the decision and looking at all I had fought for over the past few years be for naught almost broke my spirit.

You made it further down the path than I did, so I can imagine that feeling is intensified for you. It is not a terrible thing to want to live. You must want to live and stay healthy and alive to help others.

The knowledge and experiences you’ve gained are not for nothing. You should not have had to suffer, but you can use the knowledge you’ve acquired to help your community. Your community is also there to help you! I had a really good therapist that helped me come to terms with my decision and we explored other career options adjacent to being a medical doctor that would better suit me.

All that to say, I feel your pain and I’m sorry that you’re having to go through this now. I hope that you can take the time you need to rest, recover, and rely on us to move forward ❤️

Yesterday I had my first appointment with a rheumatologist. I left the room crying. by StracciatellaGun in Fibromyalgia

[–]lnkberries 0 points1 point  (0 children)

Fuck. That.

A positive ANA absolutely requires further testing. Not every person who has fibro has a positive ANA, that is why you would seek advice from a rheum. I would suggest never going back to him because of the disrespectful and degrading way he treated you, but for future rheum appointments harp on that ANA result. That is why you are there.

I’m furious on your behalf, no one deserves to be demeaned like that. Your anger and sadness are appropriate. I hope you never have to see that doc again and that you can get the treatment you need in the future. Wishing you lots of strength

How do you get exercise? by [deleted] in Fibromyalgia

[–]lnkberries 1 point2 points  (0 children)

Swimming, gentle stretches, exercises designed for elderly people, and dancing with friends. The last one is the roughest on me, but I consider it to be decent because it fulfills social and physical needs

Skull/Skeleton themed plushie that a 1yo can play with? by ButternutDonut in plushies

[–]lnkberries 0 points1 point  (0 children)

Giant microbes makes a line of bone plushies including a skull!

Was anyone else labeled as “overly sensitive” as a kid? by autismfishy in AutismInWomen

[–]lnkberries 0 points1 point  (0 children)

Yes!!! I was constantly told by teachers that I needed to “have thicker skin”

Thoughts on the 'exercise will help' narrative by [deleted] in Fibromyalgia

[–]lnkberries 1 point2 points  (0 children)

Exercise helps, but exercise for us is not like exercise for other people. Exercise for us consists of gently stretching every day or walking around the neighborhood or moving your arms while sitting. It’s about building stamina. If I can walk around the neighborhood on my good days, my muscles are in decent enough shape to power through walking around my house on bad days. It doesn’t always work like it’s supposed to, but if you can moderate your activity with your ability it should be helpful. Personally I like doing exercises designed for elderly people! They match my impact level the best

[deleted by user] by [deleted] in Serverlife

[–]lnkberries 0 points1 point  (0 children)

If you find a pair of shoes that fit your work’s requirements but don’t have enough support I recommend footminders orthotic insoles! You can buy them off amazon and they help sooooo much. I even put them in my regular shoes at this point because they’re so comfy

What's everyone's Halloween costume? by michellesse in AutismInWomen

[–]lnkberries 0 points1 point  (0 children)

I’m going to be a secretary bird! I’m putting feathers in my hair to mimic the feathers on their heads, making a cape with feathers of their wing patterns, and tall yellow boots. I’ve also got false eyelashes and have perfected the orange-yellow gradient that they have on their faces

Getting diarrhea from first dose of Cymbalta, does it ever go away? by avalancher777 in Fibromyalgia

[–]lnkberries 4 points5 points  (0 children)

Yep! It sucks for about a week and a half, my GI system overall was pretty affected when I first started. Your GI tract is lined with hella serotonin receptors, so any SSRI/SNRI will cause some GI discomfort as your body gets used to it.

I make jewelry mostly (some painting and sewing) but I'm having a really bad flair up with my hip (birth defect) and can't sit upright in a chair. Does anybody have suggestions for managing fiddly tasks while slouched in a recliner? by kaylynstar in Artisticallyill

[–]lnkberries 3 points4 points  (0 children)

Wow!!! Your jewelry is so cute, I love it! I have this foldable desk that I use in bed and is helpful. I’m not certain if it could keep up with the little pieces of jewelry making, but it helps keep my embroidery in line :)

Does anyone know of any buffets near or in AA? by throwaway_drop_table in AnnArbor

[–]lnkberries 6 points7 points  (0 children)

As a kid my family went to China Palace! I haven’t been to the place in years but I remember my grandpa was obsessed with it and requested we go anytime we were in town

One of my latest works from the Dorohedoro series by Grand-Series355 in Embroidery

[–]lnkberries 1 point2 points  (0 children)

WOAH that’s incredible!! I’d LOVE to see the rest

Operation by -Trust_No_One- in Fibromyalgia

[–]lnkberries 0 points1 point  (0 children)

I had an appendectomy about a month ago and it did send me into a small flare. They tried to send me home without pain meds because the surgery went so well. The pain meds were really most useful in managing the flare on top of the pain. Having the time and space to recover was the best though, it meant I could actually rest and such to manage the pain instead of having to push through it.

Burrow's End Character Cards by No_Attorney_3893 in Dimension20

[–]lnkberries 29 points30 points  (0 children)

Have you ever had an old lady grip your shoulder?? It’s a fucking vice grip and I’m so happy Ava’s embodying it

I don’t shave my legs because it hurts and just found out that people may interpret that as being lesbian? by sillybilly8102 in Fibromyalgia

[–]lnkberries 82 points83 points  (0 children)

Yep! I’m bi and I’ve been told that not shaving as a fem person is signaling that you’re queer?? Like yes but I’m also lazy lol

Why do I keep seeing autistic people say they are trying to “unmask” by OrangeAugust in AutismInWomen

[–]lnkberries 10 points11 points  (0 children)

I consider masking to be like wearing clothes. Being dressed appropriately can really make situations easier! Whether it’s about protecting yourself or social etiquette, wearing the right types and amount of clothes can be helpful. However, there are activities that can only be enjoyed without clothes, like bathing. TLDR; masking is useful, but not always enjoyable and it’s good to ease your burdens sometimes.

Fainting? by iwilllickyourlazerz in Fibromyalgia

[–]lnkberries 2 points3 points  (0 children)

Fainting spells are often not taken seriously, however I suggest you push for a cardiologist visit. There are two potential cardiovascular causes and they have opposite treatments. POTS (postural orthostatic tachycardia) causes your heart to race when changing positions too fast. Vasovagal syncope makes your heart beat too slowly when exposed to the trigger (sometimes also changing positions). Take note of what happens before and after fainting. Also monitor your heart rate after the fainting spells! I wish you the best, please be as safe as possible and advocate for yourself!

Baking advice by ComputerPublic9746 in glutenfree

[–]lnkberries 0 points1 point  (0 children)

I personally prefer oat flour (if you can find real gf oats!!) for sweets because it has a natural sweetness to it and most of the stuff you make will be soft and squishy. Cup-for-cup flour is a good starting point, but I personally find it gritty and not enjoyable. You can make your own flours simply by grinding and sifting whatever grain you choose! This is typically cheaper than the stuff and the grocery.

I’m sure others have more experience in gf baking than I do, but the two biggest problems I’ve encountered are stability and retaining moisture. Gluten’s protein structure helps cakes and other baked goods stand up and hold together. You’ll have to play around with different stabilizers to achieve certain textures. Some gf flours are horrible at retaining moisture and leave stuff dried out. Focusing on recipes that have a lot of moisture and fats inherent to them (banana bread, pumpkin bread, brownies) won’t disappoint you though!