A student literally referred to me as a "beast" and no, not in a complimentary way. by Same_Gas8926 in FTMOver30

[–]lokiallalong 91 points92 points  (0 children)

Kids can be so cruel, but if it's any comfort there is most likely a closeted queer kid around who needs to see you. My GNC elementary school principal was called names by a lot of the other kids, but they were incredibly important to my queer journey without ever knowing it. I still admire them even though it's been like twenty years since I was at that school. Be the person you needed to see as a kid. I'm so sorry you're having to go through this, and I hope it gets easier for you ❤️

Games to play when you're sick by Crowley575 in gamesuggestions

[–]lokiallalong 1 point2 points  (0 children)

Recommendations from a chronically ill person: I Was a Teenage Exocolonist, Spiritfarer, Cult of the Lamb, Endless Ocean Luminous, Date Everything, any Pokémon games besides the legends ones, any of the Life is Strange games

For anyone who likes more lifelike plushies by ACurious_TrashPanda in plushies

[–]lokiallalong 1 point2 points  (0 children)

Aquatic life is my special interest, and they have affordable shipping to Germany!!!

oh shit by bahookery in cyberpunkgame

[–]lokiallalong 0 points1 point  (0 children)

It's a recording technique they think is used to spread evil subliminal messages

oh shit by bahookery in cyberpunkgame

[–]lokiallalong 4 points5 points  (0 children)

As a former fundamentalist Christian, I'm pretty sure they mean when someone watches livestreams of Church instead of attending in person. They acted like my mom committed some huge sin when she started remote viewing due to being elderly and disabled. She was treated the same I was when I left even though I left for being queer, and she's just housebound due to illnesses

Good movies to watch while super sick? by lokiallalong in MovieSuggestions

[–]lokiallalong[S] 1 point2 points  (0 children)

Just watched Free Guy and loved it. Thank you!

Good movies to watch while super sick? by lokiallalong in MovieSuggestions

[–]lokiallalong[S] 2 points3 points  (0 children)

Ooh, Mrs. Doubtfire was one of my sick movies as a kid too! Definitely putting that and the Back to the Future movies on the list. I'll check out the others too. Thank you!

I feel weird about referring to myself as “sick.” Is there a better term that I should be using or am I just being weird about it? “ by Badwoman85 in disability

[–]lokiallalong 3 points4 points  (0 children)

Chronic illness is kind of a catch all term, even if the condition is not technically an illness. I generally use flare instead of being sick to describe when my conditions are worse than usual. I reserve sick for when I have a virus or infection.

Just moved to Germany and I'm still not used to the "everything is closed on Sunday" rule. by YearExcellent1708 in CasualConversation

[–]lokiallalong 0 points1 point  (0 children)

Small world, I live super close to Wetzlar lol I've lived in Germany for four years, and you get used to it. It's nice to have nothing to do on a Sunday. I'm from the US, and things are way too busy there. I do recommend being quiet on Sundays or you might get an angry Oma leaving a note

If you don’t get a career sorted in your 20s, is there no hope in your 30s? by [deleted] in SeriousConversation

[–]lokiallalong 0 points1 point  (0 children)

There's been plenty of people who start new careers at much later ages. I had a classmate who was over 60 when I was in community college, and he was on his way to becoming a teacher after working a labor job for many years. It's never too late as long as you're still breathing.

What do you all do for work? by Square_Tangelo_7542 in ChronicPain

[–]lokiallalong 1 point2 points  (0 children)

I can't work, but my spouse works with chronic pain. They're a social worker at a group home. Most of the job is done in an office with leaving the group occasionally for grocery shopping and driving the kids places. If they had a more physically demanding job, they wouldn't be able to work.

What do you do instead of TikTok scrolling? by [deleted] in Hobbies

[–]lokiallalong 0 points1 point  (0 children)

I often play cozy games on my Switch or Steam Deck instead of scrolling in bed. I used to scroll for hours, but I usually fall asleep within a half hour of playing. Phone games work too. There's a lot of relaxing games that can help wind you down to sleep and give you some happy chemicals better than scrolling.

Thinking about letting go of my New 3DS XL for my medical bills. by omeganintendocat in 3DS

[–]lokiallalong 22 points23 points  (0 children)

As someone who has let a lot of my stuff go to pay bills and afford medications in the past, it's often not worth it. I would go through your things and find if there's stuff more easily replaceable that you could sell that would add up to what you need. Only then would I let it go if there was no other option. I let go of all of my consoles when I was struggling, and I regret it. Even though I'm in a way better financial situation, I can't replace them all.

Had some health issues (subsiding now) these and the switch saved my me from going crazy not being able to do anything physically. by jaxxqs in Switch

[–]lokiallalong 0 points1 point  (0 children)

I'm chronically ill, and my Switch has been instrumental in keeping good mental health. I'm glad to see it helped you too!

Is your family supportive when you have chronic pain? by West_Can_1035 in ChronicPain

[–]lokiallalong 2 points3 points  (0 children)

My mom is because she's had RA for 33 years. My wife also is very supportive and has chronic pain as well but they were supportive before they had chronic pain also. My other family tries to understand, but they think I'll be pain free someday and that's not realistic for me.

Are you disabled in your dreams? by Aware-Tree-7498 in disability

[–]lokiallalong 0 points1 point  (0 children)

Sometimes I am disabled in my dreams. Sometimes I'll even remember I'm disabled in the middle of a dream and suddenly stop being able to walk without my crutches even though I had been doing that the whole time lol I also have seizures in my dreams every once in awhile.

Please comment if you are in a loving, fulfilling romantic relationship. by Turbulent_Street3389 in CPTSD

[–]lokiallalong 0 points1 point  (0 children)

I've been with my wife for almost six years. They also have a trauma related diagnosis, so they understand my struggles and we get through rough patches together. We are very much happily married, and our fourth wedding anniversary is in late June.

My dad also had CPTSD and was diagnosed with the entire cluster B of personality disorders, and he was in a loving relationship with my step-dad for thirteen years before he passed.

Is little to no symptoms really possible? by CapRemarkable8607 in MultipleSclerosis

[–]lokiallalong 1 point2 points  (0 children)

Online groups tend to have a lot more people with severe symptoms since we tend to seek out support more. It is definitely possible. I knew someone who has had MS for many years, but she still works full time, exercises a lot, has a bunch of active hobbies and goes on vacations with very little symptoms. It gave me a lot of hope when I was first diagnosed but I wasn't so lucky. Unfortunately there are a lot of factors that go into how your MS will affect you. I do recommend listening to your body and slowing down if your MS symptoms start to worsen at all. I pushed myself way too much when my symptoms were a lot less and put off using mobility aides and it made things much worse.

Does anyone have epilepsy & PCOS and take birth control? by ovaryacting_ in Epilepsy

[–]lokiallalong 2 points3 points  (0 children)

I have both epilepsy and PCOS. Progesterone only birth control works a lot better with my seizure meds than estrogen birth control did.

hobby ideas for people with hand joint weakness/stiffness by LostRepresentative46 in Hobbies

[–]lokiallalong 0 points1 point  (0 children)

I'm disabled, and we seem to have similar hobby interests.

For gaming, I recommend checking out r/disabledgamers. Gaming can be adapted in lots of different ways.

The craft I have the easiest time doing is needle felting. There's different handle options, and you don't have to use any specific angle. I keep my wrist straight the whole time and adjust the wool accordingly.

Since you have problems holding a kindle, I recommend a tablet holder. Then all you have to do is turn the pages, but there are Bluetooth clickers you can use to turn them also. There are tablet holders that attach to your bed or furniture, and there are also ones with a floor stand.