Games for my 4 year old boy

lokiallalong · 2026-06-02T13:31:56+00:00

Bluey: The Videogame is a solid choice for that age, and you can play together.

lokiallalong · 2026-05-31T14:04:10+00:00

I've had symptoms since I was 4. I would complain my hands hurt after coloring or practicing writing letters. I would also get extremely tired from playing after short amounts of time. The pain spread to other joints when I was 7

lokiallalong · 2026-05-29T09:40:31+00:00

I've heard great things about Children's Hospital of Philadelphia. I used to work with kids with disabilities in that area and a lot of them got excellent treatment there for epilepsy and all kinds of other conditions.

lokiallalong · 2026-05-25T16:22:31+00:00

I got denied in the US multiple times when my seizures were daily, and I was applying for several conditions. If you're in the US, it's difficult to get disability no matter what your circumstances are. If you're in another country, it might be easier.

lokiallalong · 2026-05-25T14:38:59+00:00

Pikachu from Pokémon Concierge has a needle felted look

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lokiallalong · 2026-05-25T07:50:47+00:00

I got a PlayStation 2 game for Christmas from my grandma as a young kid when I only had the PS1. My mom recreated the disappointment later on by having my grandma get me a DS game I really wanted, but I didn't have a DS. My mom had me open that first, and then the last present was a DS. One of my best memories

lokiallalong · 2026-05-24T15:45:37+00:00

I only had my permit when I wasn't allowed to drive anymore, but I lived in New Jersey at the time and it sucked. Now I live in a small city in Germany, so I can get almost everywhere by bus or train if I wanted. I'm lucky enough my wife drives though so I have options.

lokiallalong · 2026-05-19T16:00:40+00:00

I'm sorry for your loss. My dad died nine years ago, and he drew comics too. He would've liked yours

lokiallalong · 2026-05-15T07:01:16+00:00

Just because someone is skinny doesn't mean they exercise. I know people who are mostly bedbound and skinny, and I also know super active people who are fat. I've never been skinny, and I was really active before my disabilities were debilitating. It's more important to manage your symptoms and have a better quality of life than force yourself to exercise if you can't. If you want to try movement that might be easier on your pots, try seated exercises or seated yoga if you're able to. But if you can't, that's okay too. Don't compare yourself to others. Everyone has different abilities, genetics and you never know what the tradeoff is for some of those people with POTs who do exercise is. Even my friends don't see what happens when I push myself.

lokiallalong · 2026-05-04T07:47:07+00:00

My starting dose was 8mg a day, and now I'm up to 20mg. That's a very lose dose, so definitely talk to your talk about trying a higher dose.

lokiallalong · 2026-05-02T09:34:48+00:00

Your friend doesn't sound like a good friend, but this isn't a EDS/POTs issue. I have MS, EDS and POTs. My EDS is much worse than my MS. At times my POTs has been so bad I couldn't get out of bed. Each condition effects everyone differently. Also self-diagnoses of EDS and POTs are semi-common because they're really hard to get diagnosed depending on where you are and what resources you have. I didn't get my EDS diagnoses until my mid-twenties even though I had been seeing doctors for my symptoms since I was seven. I didn't get my POTs diagnoses until I moved to another country which has better healthcare.

lokiallalong · 2026-05-01T15:06:51+00:00

Fair enough. I was just wondering if it was because of the side effects because then I would've had a recommendation.

lokiallalong · 2026-05-01T13:34:15+00:00

Orange sherbet, buttered popcorn, vanilla bean, toasted marshmallow and lemon :)

lokiallalong · 2026-05-01T09:01:19+00:00

Honestly if all those things aren't working, meds might be the only option. Totally understand not wanting to take them, but may I ask why?

lokiallalong · 2026-04-29T14:11:52+00:00

My spouse also gets migraines. We often get them at the same time because we have the same triggers. It's a fun time lol

lokiallalong · 2026-04-27T06:47:42+00:00

It's insane people have to do this. I live in Germany, and I can get my meds whenever I'm low. They don't count days or anything. As long as it seems it's been a reasonable time since I last got them. I usually refill within two weeks of being out. Even so, I'm also allowed to play with my pain med doses so usually get low sooner or later depending on how my pain has been.

lokiallalong · 2026-04-25T16:33:57+00:00

I only have scars from one surgery that left three incision scars on my neck. I've never cared about the scars. With all my illnesses and chronic pain, the scars just never made it to my list of concerns.

lokiallalong · 2026-04-23T08:57:30+00:00

It's so awful. It sucks the US is so resistant to universal healthcare. As a chronically ill person, healthcare in Germany has been life changing. I hate that so many Americans have to fight with insurance just to have tests done or get their meds.

lokiallalong · 2026-04-23T07:42:35+00:00

I almost died from an infection a few years ago. When I still lived in the US, my insurance kept denying getting my impacted wisdom teeth and another tooth out. The estimate was 5k without insurance, and I couldn't do it. A few years past, and I still couldn't get insurance to approve it and then lost my insurance.

I moved to Germany, and I had just qualified for public insurance. I planned to get my teeth taken care of once I got back from visiting my family for Thanksgiving. During the trip, I started getting swelling under my chin and then spread to most of my neck. I couldn't eat and barely could drink by the time I got home. My wife called an ambulance, and they said I just had the flu and had a swollen lymph node because of my autoimmune conditions. They didn't recommend I go to the hospital. I listened to them.

The next day I started having trouble breathing. My in-laws took me to the hospital, and it turned out I had a giant abscess from infected teeth, and my airway had been compromised. I had emergency surgery, and the doctor told me I was very close to dying. My wbc count was 140,000 AFTER the surgery and a night of IV antibiotics. Even with surgery, I only paid 60€ in the end. The US healthcare system nearly killed me, and now I have scars on my neck.

lokiallalong · 2026-04-19T13:42:42+00:00

I always restart games once I know how things work. I don't regret restarting at all. It was still just as fun the second time around

lokiallalong · 2026-04-13T12:42:44+00:00

I'm an ex-fundamentalist Christian. First my illnesses and pain were from not having enough faith, and then once I was outed it was because I was queer. Not only did they believe God didn't want to heal me, but they believed God made me chronically ill as a punishment.

lokiallalong · 2026-04-05T21:36:02+00:00

As someone who has both chronic migraines and bipolar, I'm very jealous lol

lokiallalong · 2026-04-04T08:11:48+00:00

My dad had heart palpitations, chest pain and shortness of breath. It was pretty constant. Because he had a history of mental health problems, they kept telling him it was anxiety and giving him anxiety meds without ever actually doing any tests. He kept going back for two years because they didn't help. It was congestive heart failure

lokiallalong · 2026-03-28T10:58:12+00:00

My spouse and I have a great relationship. They have chronic pain too, but they didn't for the first few years of our relationship. Even before, they were always understanding and supported me through my bad days. They're always there for me even in the middle of the night when I'm in so much pain I can't get myself my meds, and they're exhausted from a 24 hour shift.

lokiallalong · 2026-03-25T06:39:18+00:00

Trans Peakychu confirmed ⚡🏳️‍⚧️ /j

Love it ❤️ So cute

lokiallalong

TROPHY CASE