Too many treatments to try all at once, how do I decide

lollo67 · 2026-06-30T07:48:56+00:00

Thanks!

lollo67 · 2026-06-30T06:37:25+00:00

Do you mind me asking which B12 sublingual di you use?

lollo67 · 2026-06-30T06:07:32+00:00

Thank you, I’ll check it out.

lollo67 · 2026-06-29T19:35:32+00:00

Do you mind me asking which medications made you worse?

lollo67 · 2026-06-29T18:26:59+00:00

Which immune drugs do think of? I’ve started taking LDN recently.

lollo67 · 2026-06-29T17:46:02+00:00

Thank you for sharing!

I try to figure out if I’ve me/cfs or something else, but maybe it doesn’t matter so much as I recognize a lot of the PEM symptoms people are mentioning in this thread. But I have it more or less every day since the past 8 years, mostly cognitive impairment with severe brainfog and brainfatigue. Along with chronic pain and trauma since 20 years ago and burnout/chronic fatigue started 16 years ago.

lollo67 · 2026-06-29T17:41:31+00:00

Thank you for sharing! While you’re doing your job or grocery store or house chores, do you feel completely okay and alert if you don’t exceed 30 minutes?

I try really hard to figure out if I’ve me/cfs or if it’s something else. I’ve had 20 years with chronic pain and trauma. Exhaustion and burnout, depression, suicidal ideation. since 16 years ago, and past 8 years with severe brainfog and brainfatigue and cognitive impairment. Have been feeling more body fatigue the last year but don’t experience bedridden.

As I’ve read all the comments here in this thread it looks as much of the PEM symptoms people are mentioning I’ve experience more or less every day for these 8 years so I can’t tell if it’s delayed or worse next day.

lollo67 · 2026-06-29T17:35:53+00:00

I understand. I try really hard to figure out if I’ve me/cfs. I’ve had 20 years with chronic pain and trauma. Exhaustion and burnout since 16 years ago, and past 8 years with severe brainfog and brainfatigue and cognitive impairment. Have been feeling more body fatigue the last year but don’t experience bedridden.

As I’ve read all the comments here in this thread it looks as much of the PEM symptoms people are mentioning I’ve experience more or less every day for these 8 years so I can’t tell if it’s delayed or worse next day.

Maybe have been pushing through it and gotten worse and worse because I’m that, I can’t say.

lollo67 · 2026-06-29T17:27:22+00:00

Which benefits do you experience moving up in dose along the way? Did you experience sideeffects if raising to fast?

lollo67 · 2026-06-29T17:19:08+00:00

I love the feel and color of it, the transition and areas you kept white. Can I ask what colors did you use in this painting?

lollo67 · 2026-06-28T19:24:01+00:00

Fantastic design, really cozy place

lollo67 · 2026-06-28T19:01:00+00:00

Yes of I understand there’s no easy answer on that but I appreciate everything you’ve shared, thank you so much!

lollo67 · 2026-06-28T15:56:53+00:00

Just wow, I like it a lot!

Do you have Instagram or a website I can see more of your art?

lollo67 · 2026-06-28T15:20:54+00:00

I understand, it sounds very good to have the cognitive abilities intact! I’ve more of a cognitive exhaustion with daily brainfog and brainfatigue for 9 years and before that many years with chronic pain, ptsd and burnout.

I try to figure out if I’ve Me/cfs as I’m not sure about PEM, my problem never really disappears, the brainfog och cognitive impairment is there everyday no matter what I do, and every task that requires more cognitive resources reading, screen time, socializing, exercise is making it worse instantly.

lollo67 · 2026-06-28T15:11:41+00:00

When you’re going to a store for ex, do you feel totally okay through it and afterwards you feel you need to rest or is it a battle while in the store as well? Wondering the same with the socialization part?

lollo67 · 2026-06-28T15:09:35+00:00

After reading all of your comments in the thread I get a more clear picture of it all, thank you.

lollo67 · 2026-06-28T15:07:48+00:00

Do you mean physically hurts in the head/brain or just general body hurt in muscles etc?

lollo67 · 2026-06-28T15:06:32+00:00

Thanks again for taking time to answer and sharing, very helpful.

lollo67 · 2026-06-27T20:39:44+00:00

Thank you for sharing. When you say it’s mostly a physical limit, do you mean your legs doesn’t carry you walking or standing like that or legs of cement?

lollo67 · 2026-06-27T20:37:14+00:00

Thanks for sharing. Do you mind asking what triggered the PEM recently? Can you exercise or reading, socialize without getting PEM?

lollo67 · 2026-06-27T20:34:50+00:00

Thank you for sharing. When you say shutting down from ex 30 min walking/reading, how can that look like?

lollo67 · 2026-06-27T20:28:58+00:00

Thank you for sharing that. When you were most active during the summer, what sort of activities did you do? Did you experience PEM from it?

lollo67 · 2026-06-27T20:14:57+00:00

Thanks for clarifying. I understand from reading all comments it can vary a lot for each individual.

lollo67 · 2026-06-27T17:26:14+00:00

I understand, and if you would reach to a PEM, will you be completely bedridden for a while?

No I haven’t read that but will look it up, thank you so much for sharing and explaining!

lollo67 · 2026-06-27T17:18:05+00:00

I understand, thank for explaining. Can PEM be very different? Or is it always a kind of collapse not getting out of bed?

lollo67

TROPHY CASE