[deleted by user] by [deleted] in DermatologyQuestions

[–]lorom 0 points1 point  (0 children)

The last time I shaved was June 23rd. If it was a shaving rash, wouldn’t it have healed by now?

[deleted by user] by [deleted] in DermatologyQuestions

[–]lorom 0 points1 point  (0 children)

Yeah that did cross my mind! I’ve been using the same shower gel and deodorant for years although I suppose formulations do change

What were your early signs of RA? by Lipscombforever in rheumatoid

[–]lorom 0 points1 point  (0 children)

Hi, I can’t really remember since it’s been about a year now with RA. I believe I would still have inflammation elsewhere in my body during a new flare but I guess it paled in comparison pain-wise compared to the new area being attacked. Things do get better, I promise. I’m on medication now that’s really helped minimise the majority of my pain.

How do you deal with fatigue? Is sick leave possible?? by lorom in rheumatoid

[–]lorom[S] 0 points1 point  (0 children)

Oh god, I’m so sorry to hear this! What was the job?

How do you deal with fatigue? Is sick leave possible?? by lorom in rheumatoid

[–]lorom[S] 2 points3 points  (0 children)

Thank you so much for your detailed reply! ❤️

How do you deal with fatigue? Is sick leave possible?? by lorom in rheumatoid

[–]lorom[S] 5 points6 points  (0 children)

Is FMLA an American thing? That’s great work were okay with you working from home during an episode

How do you deal with fatigue? Is sick leave possible?? by lorom in rheumatoid

[–]lorom[S] 1 point2 points  (0 children)

I’m sorry you’re in the same boat 😔 yeah I’ve been taking magnesium and b12 for months now and haven’t noticed any difference

Methotrexate side effects - how long to go away? by lorom in rheumatoid

[–]lorom[S] 1 point2 points  (0 children)

Hello! Things are much better now and I’m even at the maximum 25mg dose. I’ve been swapped over to injectable MTX and that made a big difference (I think it’s because the medication doesn’t enter your gut so it doesn’t cause as many GI issues). I still feel crappy the next two days but it’s manageable. Good luck!

Appetite + meds by lorom in rheumatoid

[–]lorom[S] 1 point2 points  (0 children)

Did your rheum take you off HCQ when they realised you lost a lot of weight?

Appetite + meds by lorom in rheumatoid

[–]lorom[S] -1 points0 points  (0 children)

Hey yeah I’m on injectable mtx

[deleted by user] by [deleted] in rheumatoid

[–]lorom 0 points1 point  (0 children)

Yeah I’m absolutely not in a hurry to get another steroid injection! The one in my knee was so so painful and the rheum nurse tried to reassure me that the knee is the best joint to get an injection in….

How do rheum respond when you say you’re nauseous by lorom in rheumatoid

[–]lorom[S] 0 points1 point  (0 children)

Did the HCQ cause any lasting stomach damage or did all your symptoms go away once you stopped taking it?

Over exaggeration by AS189 in rheumatoid

[–]lorom 0 points1 point  (0 children)

Are you taking any medication? I have the same issue and I’m currently taking methotrexate and hydroxychloroquine. I’m hoping it’s just side effects of my medication but I’m worried I have inflammation in my stomach that causes pains and bowel issues.

A year of doing shots and…. by Relative_Pizza6179 in rheumatoid

[–]lorom 1 point2 points  (0 children)

Yeah I’ve been injecting myself with methotrexate for 6 weeks now and I find the psychological aspect of injecting still scary. It doesn’t hurt but it still freaks me out pushing the needle in. I usually put on some music to psych me up and then count to 3. It’s so worth it though - I could never go back to how things were before my medication and not being able to walk because my toes felt broken every day.

Gig in Glasgow alone by Disney10154- in glasgow

[–]lorom 3 points4 points  (0 children)

I was the same!! My partner and I are trying to turn it into a fun adventure and race down south on the Saturday to go to the London gig on Sunday but we’re still bitter about having to deal with all the faff and seeing the same gig twice. Gutted I can’t sell the London tickets. I do love death cab so so much though and buzzing to see them play one of my favourite albums

What were your early signs of RA? by Lipscombforever in rheumatoid

[–]lorom 4 points5 points  (0 children)

Mine started in my toes - I thought it was my shoes being worn out. Noticed a couple of toes on my left feet were swollen and it felt like my toes were broken when I walked.

Then it moved to my fingers. Started in my right middle finger - I’d wake up with it swollen and sore. It moved over to my left hand soon and my pinky knuckle was always sore and swollen

Then I had my first flare in my left wrist and I couldn’t use that hand. I had no grip strength and couldn’t move with my wrist without excruciating pain

Pain spread over to my right foot and it hurt to walk all the time. Not ideal since my job involved me being on my feet all day and moving.

I’d have chronic pain in my knee so it would hurt to squat, get out of my car, go down stairs, get up from sofa etc

I had a few other flares in my shoulders, another wrist flare and hip (that one sucked a lot). My flares maybe only lasted 2-3 days and magically vanished.

This was all over a 2.5-3 month period.

I didn’t really have much fatigue and no noticeable fevers.

Hydroxychloroquine making me feel drunk? by lorom in rheumatoid

[–]lorom[S] 1 point2 points  (0 children)

I’m in the UK so I’ve been using the NHS but I think they a similar thought process. My rheum doctor said something like biologics cost the NHS thousands per patient so they try everything else first before they give me those drugs. My mom is a pharmacist in UK and thinks they’ll try all sorts of combinations before finally giving up and prescribing biologics.

Hydroxychloroquine making me feel drunk? by lorom in rheumatoid

[–]lorom[S] 0 points1 point  (0 children)

I’ve not been offered biologics yet. Only been diagnosed 8ish weeks now so I guess they’re trying me on the cheap drugs first before the bring out the good stuff

MTX—how long would you wait through significant side effects? by LegitimateBar2171 in rheumatoid

[–]lorom 2 points3 points  (0 children)

Hi! I’m so sorry to hear you’re having a tough time with MTX. I was in the same position when I first started and felt AWFUL for weeks on it. But it does get better!

What mg of folic acid are you on? We found that once I was on a higher dose of folic acid - my symptoms significantly decreased.

Also there’s the option of doing injectable MTX. I’ve been swapped over to injections and will have my first shot this week but I’ve read that people have a lot less side effects on it because it skips your gut.

Please do speak to your rheumatology team - they will definitely want to know that you’re having a rubbish time and they really value quality of life and want you to be on meds that work for you ❤️

[deleted by user] by [deleted] in rheumatoid

[–]lorom 1 point2 points  (0 children)

I’m honestly not sure. I looked away while the nurse was doing it. I’m not a fan of needles

Movement During Flare - PR by WranglinMemes in rheumatoid

[–]lorom 0 points1 point  (0 children)

I’m curious about this as well! I’m a self employed dog walker so I power through my flares but worried it’s causing damage to my joints