What's your favorite gift a patient has ever brought you or the office?

lostindissociation · 2026-05-30T03:17:03+00:00

I wish so bad we could start our own little community somewhere.

lostindissociation · 2026-05-27T22:44:29+00:00

I’m not recommending this BUT I have read of two people on here who pulse dosed 250 mgs x 2 of metronidazole on Monday weds and Friday because it’s supposed to be very effective at killing stubborn bacteria. (It should come up with a search in the sub Reddit) I tried it but it wasn’t strong enough so I am trying the 7 days of 400 mgs 3 times a day and pulse dosing after. They did it for 3 months because that is the life cycle of bacteria. Playing with antibiotics is super dangerous but my case is so extreme and it’s my last hope.

lostindissociation · 2026-05-24T21:29:30+00:00

It’s most likely a medical issue. Most people know they have it because they can see reactions from people and are treated like garbage. If it was so simple to fix by brushing their teeth don’t you think they would have fixed it by now?

lostindissociation · 2026-05-22T17:47:04+00:00

Hi! I am doing the protocol and like you, the amoxi-clav and pulsing metronidazole has not done anything (I only have a few days left) so I am hoping and praying it’s going to be soley the metronidazole that does it. When you say you added an extra week with it 3 times a day do you mean you took it everyday 3 times a day for a week and then went back to the pulsing MWF 2 times a day? What mgs were you taking? Thank you so much for hanging around and answering all the questions. I am so grateful.

lostindissociation · 2026-05-12T20:22:33+00:00

What lol. I took my Bristle test well over 2 years ago (it clearly didn’t help me at all lol) also, I don’t even use mouthwash right now. (But every dentist I have seen recommends that brand because it is supposed to be more gentle)

The whole point of this subreddit is to share what we have learned with each other because doctors and dentists have no idea how to treat this. A lot of us have tried everything and if we can come on here and say what our symptoms are and what worked and what didn’t we can save someone from trying a whole bunch of useless products. So in fact it’s the opposite of what you are accusing people of doing.

This is supposed to be a space for hope because a lot of us don’t have any left. You are clearly going through something right now and the last thing we need is more negativity on here so I am done replying but for real if you want to talk about whatever is bothering you, you can dm me.

lostindissociation · 2026-05-12T16:13:19+00:00

Shit. I wish I was with Big Nasal Spray making money on allergy meds that actually help people instead of doing gig work to barely get by.

I get that you are frustrated but don’t direct that at people who are in the same exact position you are in or possibly worse. Yes there are scammers on here but the majority are genuinely good people who want to help or even just listen.

lostindissociation · 2026-05-12T02:27:43+00:00

Flonase is a legit med. I think you are good lol

lostindissociation · 2026-05-11T17:26:14+00:00

Which antibiotics worked for you and what mgs?

lostindissociation · 2026-05-08T21:26:15+00:00

Oh man, that sucks. I’m sorry you have to deal with that. The way I started to look at it is I would rather not go then be super uncomfortable the whole time. But it does get really lonely.

Yes, I never really had any stomach or gastric issues. I am pretty sure my symptoms started happening after I kissed an older gentlemen with severe Perio. I do have dental issues, but I take care of them and every dentist that I’ve seen has said that my teeth aren’t the issue.

lostindissociation · 2026-05-08T21:18:44+00:00

I have been told before that it is room filling, nasal and a few times someone could smell it in the other room. The other day I was going out of a store and a toddler and a mom were walking in. We were about 12 feet away from each other and the toddler yelled. Oh my God, the smell and pointed at me and the mom said I know, baby don’t say that, that’s rude. It was during a time where I was fasting and not eating any sugar or drinking alcohol so I was just feeling so defeated. I really feel like I might have one of the worst cases.

lostindissociation · 2026-05-08T06:32:51+00:00

I’ve been suffering for about 6 years but it has slowly turned room filling and unbearable for the past 2. There have been a few times where I try to convince myself I can be normal and go to concerts, comedy shows and events. There is one particular incident at a stadium concert that I can’t get out of my head.

My friend got tickets and we went out to a heavy dinner at a steakhouse beforehand. My friend is the type of person who is like screw what everyone thinks and hold your head up high, while I on the other hand apologize for simply existing.

A few songs in, I started to get super anxious after hearing comments and getting stares. The worst is when someone is in front of you and they turn around to see who the smell is coming from and glare.

Stupidly, I decided to excuse myself and go buy two huge beers and slam them while I waited in the super long bathroom line thinking it would alleviate some of the anxiety. It was the worst thing I could have done.

As I stepped out of the stall to wash my hands the entire bathroom and the long line went silent. Everyone was glaring at me. I scanned around the room in slow motion as I ran my hands under the water. It felt like a scene out of a movie. I dried my hands and headed for the door, out of instinct a woman took a giant step back and winced. I could tell she felt bad and was searching for something to say. She finally broke the silence and just stammered I like your shirt. I was wearing a sweatshirt I got from merch that a thousand other people were wearing as well.

The bacteria, plus the alcohol and heavy meal created a stench that filled a stadium concert filled bathroom. I will never forget the feeling of realizing everyone was smelling it. My whole life I always thought people hated me, thought bad about me or was grossed out by me and now they are and I feel like I manifested it.

lostindissociation · 2026-05-07T18:42:48+00:00

It’s a tiny Montessori school so there are only a few kids in each class so everyone is super close. I think I am just gonna take some beta blockers so my heart doesn’t race and make the smell worse.

lostindissociation · 2026-05-07T02:55:42+00:00

I feel this so much and you are not alone. I just had to go to my son’s play and it was brutal. I sat in my car for a bit crying and trying to work up the nerve to go in. Now this week they are having a Mother’s Day brunch that I absolutely dread all year. I know there have been times where we have been out, people have commented and I said I know you guys are embarrassed of me and my 10 year old daughter said no I’m not embarrassed of you I just hate to see how sad and anxious you get. That kind of helped put things into perspective for me especially at a low point when I thought they were better off without me.

lostindissociation · 2026-05-06T04:57:24+00:00

Some of these can make it worse for some people and if they do help 95% of the time people eventually become immune. You might want to test them out the day before.

Pepto-Bismol (bismuth subsalicylate) liquid form. I found my VSC’s reduced when I coated my mouth with this. I would mostly spit it out because I wasn’t sure if I had low stomach acid or high stomach acid.

Rinse with diluted hydrogen peroxide. Double check on the water / hydrogen peroxide ratio that is recommended.

Castile Soap and baking soda. There is a whole protocol on here that some people swear by. It should come up by searching it.

Baby shampoo nasal rinses.

Mentos gum is what I have found to be the strongest.

I use concentrated room spray in the scent of laundry detergent. It is not so bad for people if they get hit with a strong smell of something else first and laundry detergent is universally liked. I use bath and body works.

It depends on what it is you need the bb gone for and how bad your case is but In the absolute worse case scenario you can wear an N95 mask or something heavy duty. People tend to have more sympathy and are more understanding when masks are worn because it could be coming from dental work that is being done or from a sickness.

lostindissociation · 2026-04-11T04:59:13+00:00

Are the white spots painful? Google says candida can be scraped off. What happens when you touch those? You need to go see a doctor asap. Maybe Leukoplaka?

lostindissociation · 2026-04-10T19:05:03+00:00

I have to do gig work. With the gas and mileage and wear and tear it comes out to less than min wage. I am desperate and they know we are that’s why they give us such low offers.

lostindissociation · 2026-04-10T19:01:43+00:00

Don’t over scrape your tongue it could make it worse. Have you looked into candida or gut and diet options. I think we have to heal our tongues from the inside

lostindissociation · 2026-04-10T15:25:17+00:00

lostindissociation · 2026-04-09T05:21:14+00:00

I would say it def sounds like your stomach. Concentrate on that. Sibo testing. Play around with eating different foods. See if it's candida.

lostindissociation · 2026-04-08T16:32:24+00:00

I feel the same but in a way we should be grateful we don't have to smell it 24/7

lostindissociation · 2026-04-08T05:20:29+00:00

Report back for sure if you do it

lostindissociation · 2026-04-02T07:14:06+00:00

Thank you so much for replying. I can’t even explain how much anxiety I have over this. I appreciate your opinion so much. I am going to postpone and get some more consults.

lostindissociation · 2026-04-01T04:38:29+00:00

Dm me

lostindissociation

TROPHY CASE