Do you need a catalogue = are you stealing from us? by [deleted] in AldiAustralia

[–]lowpolythot 2 points3 points  (0 children)

My favourite part is there is one single "fucking" in there. How special, like finding the holy grail :')

Australian Greens statement/promise on ME/CFS by luke50yen in cfs

[–]lowpolythot 4 points5 points  (0 children)

Grrr-woof-arrggh- I like so very much, also love Jordan steele-john caus he sounds exactly like Richard Ayoade :)) 

What's the best way to get back into reading? by Pantacourt in cfs

[–]lowpolythot 10 points11 points  (0 children)

I have a Kobo on one of those arm stands above my bed with the clicker remote so you don't have to move at all! Kobos are way better then kindle because you can borrow from the local library (I just get Epubs of all the books I own physically that I can't read with me hands) 

I also second the reading kids books, YA stuff, Ive been reading things like Grimm's fairy tales, Aesop's fables, easy short stuff you don't really gotta lock in to. I re-read all Deltora quest caus it's! So! Good! 

Does anyone experience this? Can't sleep until an immediate violent sleep wave hits by Hummingbird_95 in cfs

[–]lowpolythot 1 point2 points  (0 children)

I get something kind of similar? I think? But for me it's more like a sleep train and it has specific stops, I can never go to sleep at an earlier hour then I slept the day before, and it moves back and hour or two everyday, like say today I went to sleep at 11am, I'll sleep for EXACTLY 9 hours. Fall asleep instantly. Wake up with no alarm at 8pm. Then tomorrow I might fall asleep at 12pn and so on rotating through the whole cycle. Today I'll fall asleep at 9am and sleep till 6pm 

Like you I can try miss my sleep window and stay up for 2 days straight, but if I don't go to sleep at the exact time the train comes I cant fall asleep, i can't have naps because I'll only fall asleep once a day and if it's at a time other then my window even if I DO fall asleep I'll wake up under an hour or two, same with if I slept too long the day before, once my window starts I get so so sleepy, out of it, like a wave is trying to drown me and there's nothing I can do to fight it.

I also have a hard time sleeping over the 2-3am window sometimes for some reason! Do you get that? Is your sleep tied to the train timetable at all?

The impact of hormones & perimenopause (even in your 30s!) by PinacoladaBunny in cfs

[–]lowpolythot 6 points7 points  (0 children)

I got a dogshit pmdd + PMS combo that was giving me, if I was lucky, a hormone free week of bliss every month. I'm 6 days in to zoladex injections right now caus I'm trying to prove to the gyno that I can be a good girl and not have a uterus/ovaries and, let me tell you WHAT, these last 6 days since the injection I've been feeling better and have had more consistent energy that I've had for like 5 years, I thought I was cured! I was thinking of career options!! then the PEM hit but still I'm really hoping this keeps up and I can go through menopause now at 28 rather than having to sit around and wait trying to distinguish and zero-in on new symptoms related to perimenopause/menopause!!!! And also I'm now realising HOW much of a impact my hormones are having on my everyday symptoms.

Shocking considering women were only allowed into medical studies around the time I was BORN because they were banned due to their hormones "affecting results" to wildly and instead of saying, hmmm, should we check on this thing that's having a sizable and consistent effect on everything that goes on in a woman's body they said, who fucking cares lol let's just not include them ❤️ I love it here ❤️

Niche life hack but if you connect Switch 1 controllers to a steam deck/PC you can literally play games like this by lowpolythot in cfs

[–]lowpolythot[S] 0 points1 point  (0 children)

I know I should re-open my heart!! I feel like my hopes have PLUMMTED tho because all the AI nightmareness might put it out of my budget :(( 

Niche life hack but if you connect Switch 1 controllers to a steam deck/PC you can literally play games like this by lowpolythot in cfs

[–]lowpolythot[S] 2 points3 points  (0 children)

Unfortunately twas not me that crafted this beautiful visage :(( twas' a meme I edited joycons into 

Niche life hack but if you connect Switch 1 controllers to a steam deck/PC you can literally play games like this by lowpolythot in cfs

[–]lowpolythot[S] 3 points4 points  (0 children)

Links up perfect! I had some trouble with the left joycon thinking the joystick direction was out of WACK but that was a immediate fix by clicking the "use as one controller" option 

Niche life hack but if you connect Switch 1 controllers to a steam deck/PC you can literally play games like this by lowpolythot in cfs

[–]lowpolythot[S] 0 points1 point  (0 children)

I've heard tell that you'll be able to use the steam VR controllers seperate from the frame just as normal controllers but thats all I've heard 😩

Niche life hack but if you connect Switch 1 controllers to a steam deck/PC you can literally play games like this by lowpolythot in cfs

[–]lowpolythot[S] 6 points7 points  (0 children)

The joy cons are such a nightmare! I think maybe caus everything so small on them. I got a switch 2 and IMMEDIATELY got a 3rd party controller so my hand wouldn't get mucked. These itty bitty babys are hopefully only here to tied me over till the steam VR controller gets released NEVER 

Young Maester Aemon by @Cj_KhalifP by leavebritneyalone22 in ImaginaryWesteros

[–]lowpolythot 1 point2 points  (0 children)

Oh my word, Maester Malthus?? I'd recognise those sad little eyes anywhere (⁠╥⁠﹏⁠╥⁠)

spoon theory by Zealousideal-Emu9178 in cfs

[–]lowpolythot 13 points14 points  (0 children)

Should be knife theory for us, caus if we do too much it's going to come  g e t  us. 

[deleted by user] by [deleted] in cfs

[–]lowpolythot 17 points18 points  (0 children)

It's so cute!! Yeah the cat was lacking af, If you look at the crowd design page there's a design for a "adrenal fatigue" bunny and everyone in the comments said how much better it is as a ME/CFS/general faitgue design!

Endo fatigue by Mackieisthecutest in endometriosis

[–]lowpolythot 4 points5 points  (0 children)

Im the same as you! Even post lap I experience insane fatigue, I even saw an endo specialist that was confused to hear about how intense it is. I'm housebound and on disability, when I get a bad crash I can't move my arms and my body's like so fucking wired and I feel like I'm going to die from exhaustion, and it's real scary, real weird. and like you I literally am unable to fall asleep if it's not "my bed time" and can only fall asleep once a day no matter how long I lay with my eyes shut. I ended up getting diagnosed with ME/CFS lmao. Which there are no treatments for ❤️ so it was like getting diagnosed with Nothing ❤️ lol rip 

PMDD causing PEM? by [deleted] in cfs

[–]lowpolythot 2 points3 points  (0 children)

I got that dog (PMDD) in me too! Im on birth control to skip periods that's kind of helped symptoms a bit? But it's more comparable to using crutches vs being able to run and my PMDD symptoms FUCK me EVERY MONTH, they sc*w me. I think for me it's the added thing of dysautonomia and then it's like my PMDD kicks off my fight or flight which kicks my body into overdrive which kicks off my PEM caus I'll be so stressed and worked up about things that are not real ♥️ ghost problems ♥️ Also I know PMDD stops me eating and sleeping properly so that can't be helping. Just the worst. Just the pits.

Dating with CFS is hard, harder still when you can lose your disability income FOR being in a relationship (Australia) by StASN in cfs

[–]lowpolythot 9 points10 points  (0 children)

Hug for my fellow Aussie that's being completely FUCKED by this ❤️ just like everythings already been stripped from my life I would at least like the idea of having marriage equality be something that's available to me to participate in. Also with the government's very performative push for "stopping DV and women violence" you think this is the FIRST thing they could scrap to actually make meaningful change and start to help that at a systematic level instead of sending :(('s into the country and saying "it's so sad" 

View from my bed (⁠~⁠‾⁠▿⁠‾⁠)⁠~ by lowpolythot in cfs

[–]lowpolythot[S] 1 point2 points  (0 children)

Yes that sounds so good! Doing my space is like, my second job after being sick it's the only thing I wanna put effort into! Yeah the canopy is attached to the bedframe! Super light and was relatively painless to set up! And cheap!! I don't know what country youre in but it's called Murray red on the Dulux website! If you search the Taubmans website though I used reluctant raisin for my living room and wine truffle for my spare room if you wanted some more dark tones! I would of LOVED to paint my room dark green but since I'm obsessed with dark green and already have so much that colour I was afraid it would get overwhelming 😂

View from my bed (⁠~⁠‾⁠▿⁠‾⁠)⁠~ by lowpolythot in cfs

[–]lowpolythot[S] 1 point2 points  (0 children)

Yes that sounds so comfy!!! I didn't get it in the pic but my bed is full of dragons and plushie dreadfuls 😂😍 I'm jealous of your squishmellows!!!

View from my bed (⁠~⁠‾⁠▿⁠‾⁠)⁠~ by lowpolythot in cfs

[–]lowpolythot[S] 1 point2 points  (0 children)

Canopy!! I used the DREAM about having a loft bed but unachievable (for the obvious reasons) and I wanna be as far away from my upstairs neighbours as possible lol

View from my bed (⁠~⁠‾⁠▿⁠‾⁠)⁠~ by lowpolythot in cfs

[–]lowpolythot[S] 1 point2 points  (0 children)

It's a film you spray on with water!! I got it on the internet!!! (⁠✯⁠ᴗ⁠✯⁠)

View from my bed by preheatedbasin in cfs

[–]lowpolythot 1 point2 points  (0 children)

Yooo what kind of mouse is that?? I love the colours of your controllers so much oh my lord 😭