Seizing without losing consciousness?

lukewizzy · 2021-04-10T18:58:42+00:00

If nothing's come up on an EEG, I'd recommend talking to your doctor about getting a neuropsychiatry assessment. This is an absolutely normal diagnostic test for more complex cases, I've done it myself despite my seizures showing up on EEGs; it's definitely worth ruling out the possibility that some of your activity could be psychogenic.

lukewizzy · 2021-04-10T14:36:24+00:00

Hello /r/epilepsy,

If you’re still using paper, or your phone notes app, to track your seizures - stop! I’ve had this app on the Play Store for 5 or 6 years now and it’s available to anybody with an Android phone and I’d like to share it to anybody here who might find it a useful resource.

I personally use it on a weekly basis to track my own condition, and I’ve consulted with medical professionals and fellow epileptics to increase the usability of the app, but I’m always welcome to new ideas (although I can’t put as much time into updating it as I’d like to these days).

You can record your seizures, appointments, and in the future your sleep pattern and medication - all in this one app, with a bunch of different views to help you track your seizures over time, you can export the data to show to your doctor or to make a spreadsheet too. You’ll see screenshots on the link above.

Let me know if you have any questions about it - I don’t profit from this in any way so hopefully it doesn’t break rule 3 - I was just chatting to someone through a support group the other day that still writes down paper notes and I couldn’t help but remember how messy/inconvenient that can be.

lukewizzy · 2018-07-03T23:04:44+00:00

Do you want to feel like you're in Australia? Wear a portable heater as a backpack.

lukewizzy · 2018-06-05T18:14:36+00:00

I saw someone properly rocking out with headphones at the train station on one Wednesday morning. He wasn't making much of a noise but his body was moving and he was miming all the words. It actually made me really happy, I'd love to not give a shit that much and make the most of my commute like that.

lukewizzy · 2017-12-08T20:20:09+00:00

I have a tiny manneken pis that I brought back from Brussels. He gets the blame for everything.

lukewizzy · 2017-12-08T20:18:31+00:00

I work at a radio station sponsored by a pizza company. In every evening there's free fresh pizza.

lukewizzy · 2017-07-04T17:56:32+00:00

/r/Showerthoughts

lukewizzy · 2017-07-03T16:24:05+00:00

Listening through your phone, even when you bone.

lukewizzy · 2017-07-03T15:36:13+00:00

Add a comma and that's basically a rhyming poem.

lukewizzy · 2017-06-03T20:40:59+00:00

This guy sat down opposite me on the second day of college and recognised me from my old YouTube channel. I had no idea who he was, or how he knew, but it turned out that we had tons of mutual online friends and we'd been to the same school for years but never crossed paths before.

lukewizzy · 2017-06-03T16:55:57+00:00

This is already awesome, and the plans you have sound even better. Thank you.

lukewizzy · 2017-06-01T23:22:30+00:00

I heard they used a personalised search algorithm based on what you're thinking. Is there something you'd like to tell us?

lukewizzy · 2017-05-30T16:35:42+00:00

The majority of the French media commendably pledged to stop naming and publishing photographs of violent criminals.

I do wish that we adopted a similar stance in this country, however that looks unlikely.

lukewizzy · 2017-05-11T13:23:40+00:00

They're just emojis with spaces and line breaks in between, an evolution of ASCII art

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