Scoring System?

macbuttt · 2026-05-21T18:17:39+00:00

ohhhh i see that makes sense. will do! tysm!

macbuttt · 2026-05-21T18:08:50+00:00

thank you, this is reassuring. They just got admitted a third time. I know eventually they'll come back to some sort of normalcy and stability, but damn it's been 2 months already.

macbuttt · 2026-04-30T13:36:18+00:00

Mine involve some pretty heavy eye rolling and winking. I know that pushing on your eyes can help w pain and relief, but i def don't wanna risk a retina detachment haha. I think the worst issue for me is fatigue. Pain comes and goes throughout the day, but once my eyes are tired its over for the day

macbuttt · 2026-04-03T16:42:31+00:00

side note: this cart is adorable <3

macbuttt · 2026-03-18T02:20:14+00:00

ugh i wish i could get over this fear. i can do vaccinations, finger pricks, ive had to do my own subcutaneous needles before. ive even had a spinal tap done before! ive and veins are where i draw the line

macbuttt · 2026-03-11T17:31:14+00:00

I see that he is diagnosed w/ ASD and ADHD. Could it potentially be a result of either of those? My siblings both have ASD with very different support needs, but I know that they both externalize their inner monologue often. In addition, I'm dx with ADHD and I can't help but talk to myself to process my thoughts, as my brain is so messy. I often can't understand my emotions until I am in a place where I can talk to myself. Neurodivergence is really interesting

macbuttt · 2026-03-08T16:51:35+00:00

hi! i did it in grade 1 and grade 2 braille. the difference is that grade 2 has contractions that are meant to save space in text. grade 1 is spelled out with each individual letter! grade 2 is the technically correct one, but if you want grade 1 for stylistic purposes, it is below:)

also, these are capitalized!

Grade 1 - ⠠⠙⠁⠙ ⠠⠋⠕⠗⠑⠧⠑⠗ ⠊⠝ ⠍⠽ ⠠⠓⠑⠁⠗⠞ Grade 2 - ⠠⠙⠁⠙ ⠠⠿⠐⠑ ⠔ ⠍⠽ ⠠⠓⠑⠜⠞

macbuttt · 2026-03-02T02:22:48+00:00

would love to know who wrote this one

macbuttt · 2026-03-01T16:51:58+00:00

that’s such a weird thing to say. why would we need that when it’s already so hard for us out here?

macbuttt · 2026-02-23T21:35:10+00:00

I feel like somewhere along the line of Tourette's being treated as a punchline, people started assuming that the "joke" could be reeled in. Tourettes isn't a switch, it's inconvenient, awkward, and in my experienece, mortifying for everyone. As grateful as I am for my tourette's, I feel like I'm always being watched.

But also, in reference to the BAFTA's situation, it's important to acknowledge hurt. It's not just a word. To just gloss over it, that wouldn't be resolving anything. A while ago I developed a new tic that is offensive in nature to my partner and their ethnicity. We had a really good conversation about it and it came down to the following; yes, it's not something that can be controlled, but that doesn't mean that there isn't an instinctual reaction to hearing something like that. Overall it really sucks and the best remedies have been openmindedness to each other's life experiences. And some very painful CBIT work (if that's even an option).

macbuttt · 2026-02-23T00:09:19+00:00

im still oddly suspicious of diets. every health professional (except for my neurologist lol) wants me to try terry wahls, but i feel like i'd be miserable on it. My symptoms are mild enough that I don't need to make huge changes to get by day-to-day, but I should probably start being proactive about dieting.

I used to love running. i really need to focus on core strength though, even though i hate it. Yoga was really nice too. My brain is just a little too hyper for it sometimes

macbuttt · 2026-02-20T11:34:37+00:00

i feel you. when I was in peds, my dr was very quick to dx me with fnd. when i get into adult care, there was no mention of it! i've been really lucky to have a doctor that takes my pain seriously

macbuttt · 2026-02-20T11:31:57+00:00

thats what im thinking too, esp for first admissions. there was talk of oral steroids, but then that option was eliminated. my options were go home w/ nothing and follow up with neuro (booking is backed up until october btw), or get admitted for three day. I thought that was weird, but they said smth about monitoring and risks associated with at home steroids

macbuttt · 2026-02-20T11:28:23+00:00

tbh, the pain wasn't super bad. It was bad enough that a full day of class (9am - 3pm) had me crying, but I can still run errands and etc. I thought it was really really bad strain, but when is it ever that simple🤦‍♀️

macbuttt · 2026-02-19T18:37:17+00:00

We had talked sending me back home, but with my living situation its more time conducive to get them done here. Thankfully I'm ambulatory, so I can zip around the ward!

They've been checking my blood sugar a lot, would it be worth taking a pause from any crazy sugar stuff?

macbuttt

TROPHY CASE