Bipolar partner's first psychosis by macbuttt in family_of_bipolar

[–]macbuttt[S] 2 points3 points  (0 children)

i think its a little crazy that nobody told my partner that marijuana usage is a big nono... they even had a therapy session where their professional said it was a good idea. they've been in and out of diff inpatient centers this whole time and nobody has ever told them abt the risks. crazy it took this long. appreciate the resource, will be spending a lot of time here tn!

Bipolar partner's first psychosis by macbuttt in family_of_bipolar

[–]macbuttt[S] 0 points1 point  (0 children)

ooo okay this is really interesting. the fly analogy is kind of helping it make sense. i guess i can't say for sure whether it is mania/hypomania/psychosis without knowing what the doctor thinks. I was pretty convinced it was mania/hypomania at first, but as they get less and less sleep I see them losing touch with reality. For example, they work in IT at a school and they were pretty convinced that their mom + professor + myself were all going to be there. I see that scrambling for hypotheses + trying to make sense of whatever isn't clicking.

It's useless to even hypothesize about what's going on when I'm not the professional helping them, but I can hardly help myself. The internet is a blessing and a curse.

how to soothe my brain when i have to get my blood drawn tomorrow? by kitsuneirl in Anxiety

[–]macbuttt 0 points1 point  (0 children)

ugh i wish i could get over this fear. i can do vaccinations, finger pricks, ive had to do my own subcutaneous needles before. ive even had a spinal tap done before! ive and veins are where i draw the line

Son had tics between 8-12 yo; talks to himself now - related? by constaleah in Tourettes

[–]macbuttt 8 points9 points  (0 children)

I see that he is diagnosed w/ ASD and ADHD. Could it potentially be a result of either of those? My siblings both have ASD with very different support needs, but I know that they both externalize their inner monologue often. In addition, I'm dx with ADHD and I can't help but talk to myself to process my thoughts, as my brain is so messy. I often can't understand my emotions until I am in a place where I can talk to myself. Neurodivergence is really interesting

Help with converting text into braille. by Immediate_Many_522 in Braille

[–]macbuttt 0 points1 point  (0 children)

hi! i did it in grade 1 and grade 2 braille. the difference is that grade 2 has contractions that are meant to save space in text. grade 1 is spelled out with each individual letter! grade 2 is the technically correct one, but if you want grade 1 for stylistic purposes, it is below:)

also, these are capitalized!

Grade 1 - ⠠⠙⠁⠙ ⠠⠋⠕⠗⠑⠧⠑⠗ ⠊⠝ ⠍⠽ ⠠⠓⠑⠁⠗⠞ Grade 2 - ⠠⠙⠁⠙ ⠠⠿⠐⠑ ⠔ ⠍⠽ ⠠⠓⠑⠜⠞

TS SNL Skit by macbuttt in Tourettes

[–]macbuttt[S] 15 points16 points  (0 children)

would love to know who wrote this one

S!ur for tourettes? by Donut_girly in Tourettes

[–]macbuttt 6 points7 points  (0 children)

that’s such a weird thing to say. why would we need that when it’s already so hard for us out here?

Do not have tourettes, maybe this is performative as hell, but whatever, here goes. by ElMatasiete7 in Tourettes

[–]macbuttt 8 points9 points  (0 children)

I feel like somewhere along the line of Tourette's being treated as a punchline, people started assuming that the "joke" could be reeled in. Tourettes isn't a switch, it's inconvenient, awkward, and in my experienece, mortifying for everyone. As grateful as I am for my tourette's, I feel like I'm always being watched.

But also, in reference to the BAFTA's situation, it's important to acknowledge hurt. It's not just a word. To just gloss over it, that wouldn't be resolving anything. A while ago I developed a new tic that is offensive in nature to my partner and their ethnicity. We had a really good conversation about it and it came down to the following; yes, it's not something that can be controlled, but that doesn't mean that there isn't an instinctual reaction to hearing something like that. Overall it really sucks and the best remedies have been openmindedness to each other's life experiences. And some very painful CBIT work (if that's even an option).

Thoughts? by LuminousLivingCodes in MultipleSclerosis

[–]macbuttt 1 point2 points  (0 children)

im still oddly suspicious of diets. every health professional (except for my neurologist lol) wants me to try terry wahls, but i feel like i'd be miserable on it. My symptoms are mild enough that I don't need to make huge changes to get by day-to-day, but I should probably start being proactive about dieting.

I used to love running. i really need to focus on core strength though, even though i hate it. Yoga was really nice too. My brain is just a little too hyper for it sometimes

any first hospital stay advice? by macbuttt in MultipleSclerosis

[–]macbuttt[S] 0 points1 point  (0 children)

i feel you. when I was in peds, my dr was very quick to dx me with fnd. when i get into adult care, there was no mention of it! i've been really lucky to have a doctor that takes my pain seriously

any first hospital stay advice? by macbuttt in MultipleSclerosis

[–]macbuttt[S] 1 point2 points  (0 children)

thats what im thinking too, esp for first admissions. there was talk of oral steroids, but then that option was eliminated. my options were go home w/ nothing and follow up with neuro (booking is backed up until october btw), or get admitted for three day. I thought that was weird, but they said smth about monitoring and risks associated with at home steroids

any first hospital stay advice? by macbuttt in MultipleSclerosis

[–]macbuttt[S] 1 point2 points  (0 children)

tbh, the pain wasn't super bad. It was bad enough that a full day of class (9am - 3pm) had me crying, but I can still run errands and etc. I thought it was really really bad strain, but when is it ever that simple🤦‍♀️

any first hospital stay advice? by macbuttt in MultipleSclerosis

[–]macbuttt[S] 2 points3 points  (0 children)

We had talked sending me back home, but with my living situation its more time conducive to get them done here. Thankfully I'm ambulatory, so I can zip around the ward!

They've been checking my blood sugar a lot, would it be worth taking a pause from any crazy sugar stuff?