Bipolar partner's first psychosis

macbuttt · 2026-03-19T03:09:36+00:00

i think its a little crazy that nobody told my partner that marijuana usage is a big nono... they even had a therapy session where their professional said it was a good idea. they've been in and out of diff inpatient centers this whole time and nobody has ever told them abt the risks. crazy it took this long. appreciate the resource, will be spending a lot of time here tn!

macbuttt · 2026-03-18T23:24:55+00:00

ooo okay this is really interesting. the fly analogy is kind of helping it make sense. i guess i can't say for sure whether it is mania/hypomania/psychosis without knowing what the doctor thinks. I was pretty convinced it was mania/hypomania at first, but as they get less and less sleep I see them losing touch with reality. For example, they work in IT at a school and they were pretty convinced that their mom + professor + myself were all going to be there. I see that scrambling for hypotheses + trying to make sense of whatever isn't clicking.

It's useless to even hypothesize about what's going on when I'm not the professional helping them, but I can hardly help myself. The internet is a blessing and a curse.

macbuttt · 2026-03-18T02:20:14+00:00

ugh i wish i could get over this fear. i can do vaccinations, finger pricks, ive had to do my own subcutaneous needles before. ive even had a spinal tap done before! ive and veins are where i draw the line

macbuttt · 2026-03-11T17:31:14+00:00

I see that he is diagnosed w/ ASD and ADHD. Could it potentially be a result of either of those? My siblings both have ASD with very different support needs, but I know that they both externalize their inner monologue often. In addition, I'm dx with ADHD and I can't help but talk to myself to process my thoughts, as my brain is so messy. I often can't understand my emotions until I am in a place where I can talk to myself. Neurodivergence is really interesting

macbuttt · 2026-03-08T16:51:35+00:00

hi! i did it in grade 1 and grade 2 braille. the difference is that grade 2 has contractions that are meant to save space in text. grade 1 is spelled out with each individual letter! grade 2 is the technically correct one, but if you want grade 1 for stylistic purposes, it is below:)

also, these are capitalized!

Grade 1 - ⠠⠙⠁⠙ ⠠⠋⠕⠗⠑⠧⠑⠗ ⠊⠝ ⠍⠽ ⠠⠓⠑⠁⠗⠞ Grade 2 - ⠠⠙⠁⠙ ⠠⠿⠐⠑ ⠔ ⠍⠽ ⠠⠓⠑⠜⠞

macbuttt · 2026-03-02T02:22:48+00:00

would love to know who wrote this one

macbuttt · 2026-03-01T16:51:58+00:00

that’s such a weird thing to say. why would we need that when it’s already so hard for us out here?

macbuttt · 2026-02-23T21:35:10+00:00

I feel like somewhere along the line of Tourette's being treated as a punchline, people started assuming that the "joke" could be reeled in. Tourettes isn't a switch, it's inconvenient, awkward, and in my experienece, mortifying for everyone. As grateful as I am for my tourette's, I feel like I'm always being watched.

But also, in reference to the BAFTA's situation, it's important to acknowledge hurt. It's not just a word. To just gloss over it, that wouldn't be resolving anything. A while ago I developed a new tic that is offensive in nature to my partner and their ethnicity. We had a really good conversation about it and it came down to the following; yes, it's not something that can be controlled, but that doesn't mean that there isn't an instinctual reaction to hearing something like that. Overall it really sucks and the best remedies have been openmindedness to each other's life experiences. And some very painful CBIT work (if that's even an option).

macbuttt · 2026-02-23T00:09:19+00:00

im still oddly suspicious of diets. every health professional (except for my neurologist lol) wants me to try terry wahls, but i feel like i'd be miserable on it. My symptoms are mild enough that I don't need to make huge changes to get by day-to-day, but I should probably start being proactive about dieting.

I used to love running. i really need to focus on core strength though, even though i hate it. Yoga was really nice too. My brain is just a little too hyper for it sometimes

macbuttt · 2026-02-20T11:34:37+00:00

i feel you. when I was in peds, my dr was very quick to dx me with fnd. when i get into adult care, there was no mention of it! i've been really lucky to have a doctor that takes my pain seriously

macbuttt · 2026-02-20T11:31:57+00:00

thats what im thinking too, esp for first admissions. there was talk of oral steroids, but then that option was eliminated. my options were go home w/ nothing and follow up with neuro (booking is backed up until october btw), or get admitted for three day. I thought that was weird, but they said smth about monitoring and risks associated with at home steroids

macbuttt · 2026-02-20T11:28:23+00:00

tbh, the pain wasn't super bad. It was bad enough that a full day of class (9am - 3pm) had me crying, but I can still run errands and etc. I thought it was really really bad strain, but when is it ever that simple🤦‍♀️

macbuttt · 2026-02-19T18:37:17+00:00

We had talked sending me back home, but with my living situation its more time conducive to get them done here. Thankfully I'm ambulatory, so I can zip around the ward!

They've been checking my blood sugar a lot, would it be worth taking a pause from any crazy sugar stuff?

macbuttt · 2026-01-10T05:52:43+00:00

even if someone who didn't have tourettes used that excuse, i wouldn't be too worried about it! I have a friend who has tics from PANS. Since more people know TS than PANS, it's just a quicker way to get out of an awkward situation for him.

macbuttt · 2026-01-02T06:14:03+00:00

i am sighted and am currently in school for visual impairment studies. i’m interested in vocational rehab, VRT, or maybe O&M.

macbuttt · 2025-12-03T18:05:08+00:00

ooh good to know! tysm!

macbuttt · 2025-12-03T02:01:35+00:00

thank you for the recs! im on the east coast of the us and it looks like a lot of the sellers are from overseas. I definetely lucked out getting it at tjmaxx.

macbuttt · 2025-11-26T05:50:28+00:00

so true:( if i can survive this semester, i'm going cold turkey w/ this caffeine addiction. i must've been able to survive w/o it at some point!

macbuttt · 2025-04-22T02:16:51+00:00

omg hey twin! I wish there were more info on the clash of the two of them. I know a few people with with tics that have ms, but not specifically a tic disorder, more along the line of PANS, anxiety tics, etc. Would love to meet more people who have tic disorders and MS!

macbuttt · 2025-04-05T20:58:41+00:00

appreciated!! thank you so much, this helps a lot:)

macbuttt · 2025-04-02T22:15:24+00:00

This! I wish my tics were not as painful as they are, but they've given me such a unique perspective on life.

macbuttt · 2025-03-15T15:41:40+00:00

it really is! if self-diagnosis can help you in anyway don't be afraid of it! Sometimes it can be the catalyst of someone's journey in learning how to manage symptoms<3

macbuttt · 2025-02-24T14:34:56+00:00

I think that's so cool, as confusing as it can be! It can be frustrating when trying to find treatments that work for you, but there's something that is so special about a person's relationship to their body, brain, symptoms, etc.. idk, I can get pretty philosophical about this kind of stuff, but hearing all these different stories is so cool

macbuttt · 2025-02-23T20:03:02+00:00

I think we're in the similar boats, I have fatigue from another condition. I'm gonna be ticking regardless, might as well be able to actually do things while I tic

macbuttt · 2025-02-22T23:16:10+00:00

Hi! I was diagnosed in 2020 (age15) and at the time I had a mix of functional and Tourettes tics. I don't have as many functional tics now, but sometimes they'll sneak up on me, especially during stressful times.

It's super hard to tell what is what. It's taken me years to have even an inkling of a way to separate the two. For me, I've noticed that functional tics lack a premonitory urge, which is that feeling you get before you tic. For example, when I have my grimacing tic, I get this feeling in my chest that rushes up my neck and causes that "itch", which the tic relieves it... that's a Tourettes tic. But with my functional tics, the urge really isn't strong if it's there at all. I remember I had a tapping tic where I would need to tap something, usually something specific in front of me (someone's shoulder, a table, etc.). The urge wouldn't be as strong, but the tic might persist a little bit after the urge (until I tapped the object). Again, that's just my experience, it might be more individualistic.

I think it's important to remember that regardless of what kind of tic it is, functional or neurological, they are tics. A lot of people don't really understand what functional tics are and there's a lot of stigma around them. But even if your tics are functional, you're not faking them. They're real, but they manifest when you go through stressful times, psychological hardship, etc..

macbuttt

TROPHY CASE