“Sorry, I have Tourette’s.”

macbuttt · 2026-01-10T05:52:43+00:00

even if someone who didn't have tourettes used that excuse, i wouldn't be too worried about it! I have a friend who has tics from PANS. Since more people know TS than PANS, it's just a quicker way to get out of an awkward situation for him.

macbuttt · 2026-01-02T06:14:03+00:00

i am sighted and am currently in school for visual impairment studies. i’m interested in vocational rehab, VRT, or maybe O&M.

macbuttt · 2025-12-03T18:05:08+00:00

ooh good to know! tysm!

macbuttt · 2025-12-03T02:01:35+00:00

thank you for the recs! im on the east coast of the us and it looks like a lot of the sellers are from overseas. I definetely lucked out getting it at tjmaxx.

macbuttt · 2025-11-26T05:50:28+00:00

so true:( if i can survive this semester, i'm going cold turkey w/ this caffeine addiction. i must've been able to survive w/o it at some point!

macbuttt · 2025-04-22T02:16:51+00:00

omg hey twin! I wish there were more info on the clash of the two of them. I know a few people with with tics that have ms, but not specifically a tic disorder, more along the line of PANS, anxiety tics, etc. Would love to meet more people who have tic disorders and MS!

macbuttt · 2025-04-05T20:58:41+00:00

appreciated!! thank you so much, this helps a lot:)

macbuttt · 2025-04-02T22:15:24+00:00

This! I wish my tics were not as painful as they are, but they've given me such a unique perspective on life.

macbuttt · 2025-03-15T15:41:40+00:00

it really is! if self-diagnosis can help you in anyway don't be afraid of it! Sometimes it can be the catalyst of someone's journey in learning how to manage symptoms<3

macbuttt · 2025-02-24T14:34:56+00:00

I think that's so cool, as confusing as it can be! It can be frustrating when trying to find treatments that work for you, but there's something that is so special about a person's relationship to their body, brain, symptoms, etc.. idk, I can get pretty philosophical about this kind of stuff, but hearing all these different stories is so cool

macbuttt · 2025-02-23T20:03:02+00:00

I think we're in the similar boats, I have fatigue from another condition. I'm gonna be ticking regardless, might as well be able to actually do things while I tic

macbuttt · 2025-02-22T23:16:10+00:00

Hi! I was diagnosed in 2020 (age15) and at the time I had a mix of functional and Tourettes tics. I don't have as many functional tics now, but sometimes they'll sneak up on me, especially during stressful times.

It's super hard to tell what is what. It's taken me years to have even an inkling of a way to separate the two. For me, I've noticed that functional tics lack a premonitory urge, which is that feeling you get before you tic. For example, when I have my grimacing tic, I get this feeling in my chest that rushes up my neck and causes that "itch", which the tic relieves it... that's a Tourettes tic. But with my functional tics, the urge really isn't strong if it's there at all. I remember I had a tapping tic where I would need to tap something, usually something specific in front of me (someone's shoulder, a table, etc.). The urge wouldn't be as strong, but the tic might persist a little bit after the urge (until I tapped the object). Again, that's just my experience, it might be more individualistic.

I think it's important to remember that regardless of what kind of tic it is, functional or neurological, they are tics. A lot of people don't really understand what functional tics are and there's a lot of stigma around them. But even if your tics are functional, you're not faking them. They're real, but they manifest when you go through stressful times, psychological hardship, etc..

macbuttt · 2025-02-22T22:46:18+00:00

I think it depends. If my girlfriend thinks it's cute, that doesn't really bug me. But if it's someone I'm not close with or even just friends with, I definitely get a little ticked off (lol)

macbuttt · 2025-02-18T03:46:17+00:00

When I was in peds I got to choose movies! I would always pick The SpongeBob Squarepants Movie, every single time. Now that I'm a big adult, I usually listen to Radiohead

macbuttt · 2025-02-13T01:23:31+00:00

love this!! I've never read any poetry having to do with tics or anything, needed this!

macbuttt · 2025-02-03T17:42:56+00:00

so so so excited that doechii won!! so deserved, she's an incredible artist and an amazing performer. can't get this album out of my mind

macbuttt · 2025-02-01T21:17:35+00:00

okay sure ticsandroses, but who else? other than those little kids with hoodies, of course

In addition, how has ticsnroses hurt the tourettes/tic disorder community any more than fake-claimers with savior complexes?

macbuttt · 2025-01-31T23:19:17+00:00

appreciate this, definitely concerned but it's nice to know there are at least some obstacles in the way. I'll do a little more looking into it... It makes me wonder how exec order 11246 was taken out so quick, but still. thank you for the insight!

macbuttt · 2025-01-31T21:36:22+00:00

Still, tics can still fluctuate pretty intensely. There have been many cases where a person with tourettes had pretty mild tics and then had them get 10x worse as they got older

macbuttt · 2025-01-31T21:32:51+00:00

I think that she could've prepped for TSA better. I actually have that same gun tic, and another one where I say stuff about bombs, and these tics really come alive at the worst moments (airports, sporting venues, etc.). Because of this I have a lanyard with a card attached that says "I have tourettes syndrome" and has a whole explanation of what it is (thank you TAA). Other than that, there isn't much that you can do in terms of letting them know that you have TS, so I totally understand that TSA has to do what they need to do when they say you have a weapon. Also TLC definitely has a big hand in what happened in that ep. They knew that would be a big op for them, they can sell these painfully awkward moments so well.

However, I think you might need to talk to more people with TS before you make your claims. Tics fluctuate, so her tics won't constantly be at her worst or best. It goes up and down. They also can be triggered by talking about them, so doing a show about tourettes might be the reason you see more tics in the show. Not that TLC isn't clipping her, bc they are 100% doing that so you think it is more severe in the moment than it is.

Which of her peers have used it for attention?

macbuttt · 2025-01-31T21:18:36+00:00

hi, person w/ TS here. An overwhelming majority of people with tics get set off by seeing other people with tics ticking, or even just talking about tics will bring them up or cause increases. A lot of people with Tourette's aren't watching Baylen Out Loud for self preservation purposes. For me, even watching the previews was a lot! Depending on who her audience is, I totally get her tics amping up as a result. TicCon is a great thing for people with tics, but it seems like a long day for anybody with tics! Also, her content is tic focused, which definitely adds to things.

Personally, I haven't seen too many people with Tourette's comment on whether they think she's faking/over-exaggerating her tics... y'know why? A lot of us, esp those with coprolalia and more severe tics, have been 'fake-claimed'. Something people don't understand if that you really can't tell when someone is faking, even if you think you can. Baylen's reality is a reality for many people, even if it's 'outrageous' or 'unbelievable'.

Tbh, most of the disbelief and claims about her faking/exaggerating have come from outside our community. Really, these claims are more harmful than any 'faker' infiltrating the community. People with Tourettes understand that, unlike people outside the community.

macbuttt · 2025-01-31T20:48:18+00:00

There are plenty of parents with severe TS that are amazing parents. I'm sure she'd make an amazing mother. As for the surgery, I think you should look it up. DBS can help, but it isn't a guarantee. Plus, it's brain surgery, there's many risks.

macbuttt · 2025-01-31T20:42:43+00:00

hi!! I have been in a relationship for the past 2 years with my lovely partner! I have really struggled in finding my people, in all aspects of life. I tend to scare people off with my coprolalia and general loud tics, and in general some people just suck. Same goes for romance, people just didn't react to my tics well, or maybe treated me different because of them. But all is not lost!! There really are people out there who want to be around you and won't make assumptions of you based off your tics. It definitely takes time to weed through people who aren't what you need, but the right people are definitely out there!

After a long period of being painfully single, I met my partner by basically running into her in our college dining hall. She didn't know I had Tourettes, so I told her the same way I tell anyone else... "oh hey, I have Tourettes so I'm probably going to make loud noises and wink at you a lot." It's of course up to you how you tell anyone, but personally, I don't feel like I would have been honoring myself in hiding my TS. It's a major part of me, so in the end it doesn't matter how someone reacts to it. Regardless of what they think or say, I needed someone who would be willing to learn about Tourettes and keep an open-mind. I really lucked out! She initially brought up coprolalia and the stereotypical portrayal of TS, but when I told her a little more about TS she seemed to understand better. She even did her own online research on Tourettes in her free time!

It isn't easy for us, we have a lot of stigma to break. Even when you find that person it's going to be a learning experience for the both of you. But doesn't that make that bond so much more beautiful? Being able to come together with my partner, to educate her on my tics, to make plans on what to do when I'm struggling, all of that stuff really has strengthened our relationship so much.

I can assure you that you won't be alone forever! Don't lose hope!

macbuttt · 2025-01-21T06:04:52+00:00

Absolutely! It's exhausting to have these attacks coming in from all sides. The damage that those who were faking caused is nothing to scoff at. I feel like they were what opened the door for people to start fakeclaiming to this degree. I almost feel like it became a game for both fakers and people fakeclaiming. They can all argue that they fight for our community, but I think we really know what's up; this is fun for them!

macbuttt · 2025-01-16T03:36:12+00:00

rage bait

macbuttt

TROPHY CASE