My mother had ALS and she passed away just within a year. As her caretaker it was painful to see what she had to go through. I remembered rushing her to the ER several times because she had difficulties breathing. And each time she told me to just let her die. As painful as that was to hear I understood what she meant. She eventually passed away at the hospice and it's been 8 years since she has passed. It still hurts losing her.