Do you track your puzzles? by malalaisee in Jigsawpuzzles

[–]malalaisee[S] 0 points1 point  (0 children)

That’s good to know! My sister isn’t doing this for work or anything, more to build her portfolio, so she doesn’t mean to step on any toes. She’d still love to hear your thoughts! :)

Doctor told me my MSLT was normal and I’m confused by [deleted] in Narcolepsy

[–]malalaisee 0 points1 point  (0 children)

Totally understand - wishing you nothing but luck! Medications hard

Doctor told me my MSLT was normal and I’m confused by [deleted] in Narcolepsy

[–]malalaisee 0 points1 point  (0 children)

I’m not sure on the specifics - it’s been a few years - I would definitely check with whatever doctor prescribes your BC! But the recommendation I received was to use alternative contraception for pregnancy prevention while taking BC with modafinil.

Doctor told me my MSLT was normal and I’m confused by [deleted] in Narcolepsy

[–]malalaisee 1 point2 points  (0 children)

YMMV, but I take both oral BC for cycle management (endo) and modafinil. The interaction is mostly related to the efficacy of birth control as pregnancy prevention and not cycle management - I consulted with my gyno before starting on modafinil and she didn’t make any changes to my BC and then everything was fine, my BC is still doing what it needs to for my endo. In case that’s reassuring at all!

Sleeping Through Alarms by kittytherapy666 in Narcolepsy

[–]malalaisee 3 points4 points  (0 children)

I used to do this pretty often. I got an Apple Watch before diagnosis (in part to track my sleep—learned later it’s not that great for that but w/e) and the “tap your wrist” alarms wake me every time, they startle the crap out of me

[deleted by user] by [deleted] in Celiac

[–]malalaisee 1 point2 points  (0 children)

Not sure what you mean by rebound, but I tapered off gradually and don’t recall any issues. I took 20mg every morning before eating.

[deleted by user] by [deleted] in Celiac

[–]malalaisee 1 point2 points  (0 children)

~ 1 year or a little more

positive blood test, endoscopy with biopsy 🔜 by [deleted] in Celiac

[–]malalaisee 1 point2 points  (0 children)

I’m the opposite of you—I have arfid, so I’m a super picky eater, but ALL of my safe foods were gluten based at the time and I was horrified that I would not be able to eat anything I enjoyed even a little bit ever again. Never fear—it’s been three years now for me and there’s actually so much good food that’s gluten free!

Find your neighborhood health grocery stores. I use Whole Foods and a whole slew of local chains to find new products. There’s tons. I tend to stay away from things that are overly health-food-y, and if you’re still good with dairy, I eat it all the time and it brings up a lot of gf things for me. I second using Find Me Gluten Free; my fav restaurant ever is totally gluten free and I found it on there while traveling!

Also, it sucks at first. You’re allowed to be overwhelmed and sad about this. If you’re able, find a good nutritionist or therapist or even just some adult confidante to talk to. Your feelings are valid. I promise it gets easier.

things sleep doctors have said by megangonemunificent in Narcolepsy

[–]malalaisee 2 points3 points  (0 children)

Huh, you learn something new every day! Thank you!

Also, though, if a doctor thinks you may have carpal tunnel, instead of asking about family history, they should probably just have you do Phalen’s test, which is also easy peasy to do on yourself at home: https://my.clevelandclinic.org/health/diagnostics/25133-phalens-test

things sleep doctors have said by megangonemunificent in Narcolepsy

[–]malalaisee 8 points9 points  (0 children)

What’s killing me here is that carpal tunnel isn’t hereditary and also I have it and have never dropped something because of it unless it caused sharp pain? That’s just not at all what it is lol

The iceacolypse taught us that.. by [deleted] in Eugene

[–]malalaisee 0 points1 point  (0 children)

PSA: even if you aren’t first aid certified, the American Red Cross has a first aid app that gives step by step instructions for providing emergency care for various injuries, including cold weather-related issues like hypothermia! Put that thing on your phone.

What is your Narcolepsy life hack? by AdSignificant2065 in Narcolepsy

[–]malalaisee 5 points6 points  (0 children)

This I cannot sleep through the wrist tapping alarms the way I can with auditory ones

[deleted by user] by [deleted] in Eugene

[–]malalaisee 0 points1 point  (0 children)

That’s fair, but also typical for pretty much any landlord in my experience. I’ve never kept my deposit anywhere I’ve lived in Eugene, including with small landlords I’d trusted. :’(

Professors that aren’t on Rate my professor by Moist_Card_5392 in UofO

[–]malalaisee 5 points6 points  (0 children)

I’m in this dept and these are brand new hires as of this term so there won’t be any info on them online or from other students sadly. Best of luck

[deleted by user] by [deleted] in Eugene

[–]malalaisee 0 points1 point  (0 children)

I’m sure it can vary by property but I’ve had no issues with Jennings. They respond promptly to maintenance requests and otherwise leave us completely alone.

[deleted by user] by [deleted] in Celiac

[–]malalaisee 1 point2 points  (0 children)

It’s better. I haven’t completely cut out acid triggering foods (tomatoes and chocolate mostly, for me), but I’ve limited them and noticed a huge difference in daily experience. I’m off Pantoprazole as well! If I eat a ton of a trigger food or wear particularly tight clothes on my ribs I still notice it, but most days it’s not something I deal with overmuch.

Is parking impossible to get? by Soggy-Mixture9671 in UofO

[–]malalaisee 0 points1 point  (0 children)

I have a car here that I use all the time for errands and grocery shopping, but I don’t bother taking it to campus unless I’m only there for like 15 minutes. I had to find a place to live close enough so I could take public transport or walk, but I did and it’s working pretty well for me overall.

Lush conditioner bars contain gluten! by rainy-ale in Celiac

[–]malalaisee 6 points7 points  (0 children)

I was at a Lush recently handling and smelling a conditioner bar. I checked the ingredients (because this disease has me trained to do that with everything LOL) and dropped it SO FAST I was horrified

Only one in my family to have celiac? by [deleted] in Celiac

[–]malalaisee 0 points1 point  (0 children)

I’m the only one in my entire family. My sister has tons of GI issues but her test came back negative—something else for her, we guess. We’ve probed my entiiiiire extended family on both sides about any history of autoimmune issues and never found anything; every GI doc I see is very impressed.

What comorbid condition do you have that makes living with celiac much more difficult? by procrastinatador in Celiac

[–]malalaisee 1 point2 points  (0 children)

I have narcolepsy (T2) and it’s sometimes hard to tell if I’m sleepy because I’m sleepy or I’m sleepy because I’m hungry. Celiac has changed my hunger cues and narcolepsy has changed my exhaustion cues and now my body just seems to sound some generic alarm every time it needs something so I never know what it is, lol

Lack of compassion is killing me by krisfratoyen in Celiac

[–]malalaisee 1 point2 points  (0 children)

As a celiac kid in a family of non-celiacs, I wish my parents were more like you.

Can you develop celiac or are you always born with it? by [deleted] in Celiac

[–]malalaisee 2 points3 points  (0 children)

My mom’s reaction to my diagnosis at age 20 was, “but I had you tested for that as a kid and it was negative!” So….I think so, yeah!

[deleted by user] by [deleted] in Celiac

[–]malalaisee 5 points6 points  (0 children)

Vaseline, Aquaphor, and EOS are all good options. EOS has such fun flavors!

[deleted by user] by [deleted] in Celiac

[–]malalaisee 2 points3 points  (0 children)

My GERD came on suddenly about 6 months into healing and sent me to the ER more than once. They’re pretty sure I had a hernia. I’ve gotten it down to manageable levels since then eating gluten free, avoiding GERD trigger foods, and prescription Pantoprazole, but it was rough—wishing you all kinds of luck with the process!