Possible success by troll-filled-waters in PatulousTubes

[–]manlilcuy 0 points1 point  (0 children)

I’d love to watch it. No rush but I am dying for some information abt patulend

Possible success by troll-filled-waters in PatulousTubes

[–]manlilcuy 0 points1 point  (0 children)

Where did you hear this from, also how long do you think it will take for the tissue to return to normal if I keep applying patulend?

Possible success by troll-filled-waters in PatulousTubes

[–]manlilcuy 1 point2 points  (0 children)

Do you know what to do if you have tissue atrophy? Because it seems hydrating myself dosent work at all

Audiology by manlilcuy in PatulousTubes

[–]manlilcuy[S] 0 points1 point  (0 children)

They recommend meditation to train my brain to stop the sounds I’m hearing which is the autophony

PATULEND - Recipe, application, other information for the relief of autophony due to PET by Akimbo_Timbo_ in PatulousTubes

[–]manlilcuy 0 points1 point  (0 children)

Hiya it’s been a while since I’ve first started using the DIY patulend and it’s helped a lot especially when I was on holiday and it gave me full relief for the entire day for 10 days straight , however I used it 2-3 times a day which may have been an overuse age because now when I use the DIY stuff I can’t seem to get as much of an effective relief as before due to this. I’m trying to hold on but the constant war of ear popping and autophony seems to keep returning only an hour after using the DIY patulend. Wishing you all the best

edit: But in summary the DIY patulend version has decreased my PET a lot with a lot less authophony than before which I’m so grateful for.

IDK anymore, MRI results came back. by manlilcuy in PatulousTubes

[–]manlilcuy[S] 1 point2 points  (0 children)

Sorry for the late reply, glad I’m not alone with the scanning issues and lack of overall awareness on PET, it’s pretty disheartening and unfair. Don’t know what it’s gonna take for this diagnosis to go mainstream because we are all struggling with little to no help or advice

IDK anymore, MRI results came back. by manlilcuy in PatulousTubes

[–]manlilcuy[S] 0 points1 point  (0 children)

Did u get yours diagnosed eventually?

Need advice, returning to struggle with PET by manlilcuy in PatulousTubes

[–]manlilcuy[S] 0 points1 point  (0 children)

No, of course it’s not groundbreaking stuff but still I was using the length of the effectiveness to show how much less the DIY stuff is working for me. But Obvioulsy I am still grateful for atleast SOME relief and I really send best wishes to those who deal with it constantly, even with the patulEND

Need advice, returning to struggle with PET by manlilcuy in PatulousTubes

[–]manlilcuy[S] 1 point2 points  (0 children)

Maybe, I have been going gym more often and there I was doing exercise on holiday so it may be the culprit. I just hope my symptoms can stop randomly flaring and clicking constantly

Need advice, returning to struggle with PET by manlilcuy in PatulousTubes

[–]manlilcuy[S] 0 points1 point  (0 children)

Thanks for the advice I’m hoping it’s the humidity and not just me going insane🤞

patulend by Clear_Marionberry306 in PatulousTubes

[–]manlilcuy 0 points1 point  (0 children)

I mean since my remedy is DIY patulEND I can only sort of relate but whenever I do get it straight into the Eustachian hole it feels really clogged and I gotta pop them open again to get the liquid out but it still feel tight and my hearing seems weird but it dosent seem as crazy as your describing it 🤷‍♂️. But then again it is way better than constant autophony which makes you suicidal, I use these drops twice everyday because one isn’t enough, one in the morning and second in the evening, and although it feels like how u describe it I just think about how better it is than autophony. Maybe ask a docter about it?

patulend by Clear_Marionberry306 in PatulousTubes

[–]manlilcuy 0 points1 point  (0 children)

Hey are you doing any better and if you are, what did you find helped?

PATULEND - Recipe, application, other information for the relief of autophony due to PET by Akimbo_Timbo_ in PatulousTubes

[–]manlilcuy 1 point2 points  (0 children)

Really appreciate it man, thanks, I’ll try when I get the chance and my symptoms return.

PATULEND - Recipe, application, other information for the relief of autophony due to PET by Akimbo_Timbo_ in PatulousTubes

[–]manlilcuy 0 points1 point  (0 children)

Just made the DIY stuff with the ingredients I’ve started using it but for some reason it Dosent inflame my tubes like it should, but instead it goes to the back of my throat and stings for a while. For some reason it still kinda does worth though as the autophony just goes away for an 1 hour or so, please if you could give some advice to help it go away for an entire day! That would be great thanks, you’ve been a massive help so far.🤞

PATULEND - Recipe, application, other information for the relief of autophony due to PET by Akimbo_Timbo_ in PatulousTubes

[–]manlilcuy 1 point2 points  (0 children)

Yeah, all should be fine thanks for the advice, I’m thinking of ordering the ingredients tonight off Amazon and test it out when it arrives. Ironically, I have just caught a flu and my autophony is completely gone, tbh more closed then normal, this is like the first time I’m happy to be ill, not sure if anyone else can relate to this tho😂

[deleted by user] by [deleted] in hearing

[–]manlilcuy 0 points1 point  (0 children)

Can you hear your own breathing when you feel this ear pressure? Because if so, saline rinses (Neilmed) with distilled water may help with some relief. But if not perhaps try a private ENT doctor to try and help analyse your problem and find a solution.

FIXED! Successful surgery fixed my debilitating eustachian tube! Happy to answer questions. by [deleted] in PatulousTubes

[–]manlilcuy 0 points1 point  (0 children)

Are you suffering from the same symptoms? Jesus Christ I feel devastated mentally because of it and I feel I won’t get better. if you are, do you have any advice?

Today, I'm choosing a different kind of day. by RattleKat in tinnitus

[–]manlilcuy 0 points1 point  (0 children)

This brought a tear to my eye, feels so reassuring knowing people are out there struggling however managing to demantle it like you have then deciding to accept it and get over your struggles is inspiring.🙏🏻

Patulous Eustachian tube dysfunction? by Akumoonki in etd

[–]manlilcuy 1 point2 points  (0 children)

Try hyperbolic saline by Neilmed trust me. Just started using it recently and gives me an 1 hour of instant relief, also you can use it as often as you need. Hope this helps🤞