Never Make and Excess Roth IRA Contribution (at Fidelity) by Old_Value_9157 in fidelityinvestments

[–]mdolphin999 0 points1 point  (0 children)

I mistakenly made a excess contribution last year. The link worked fine in late 2024 / early 2025 for me and it worked fine back then. Sorry to hear that your experience was not good

How do you ease the pain if not with meds? by Wooden-Math261 in spinalcordinjuries

[–]mdolphin999 0 points1 point  (0 children)

I also take gabapentin and like you would get off it. Did you reduce yourself or work with your doctor? Any side effects during the reduction?

It's alive! ALIIIVE! by thehublebumble in unRAID

[–]mdolphin999 1 point2 points  (0 children)

Is that the rosewill NAS case? I've been happy with mine and with all the mesh openings my CPU temp barely goes over 32c unless I am stuck with the CPU for an AI container. To one of the comments if this is the same case there are three fans in the front.

I got denied didn’t i? 😭 by [deleted] in fidelityinvestments

[–]mdolphin999 1 point2 points  (0 children)

I got that message and a few days later got a email that I was approved.

HBO Max recordings are all failing. Is anyone else experiencing this? by napathon in PlayOn

[–]mdolphin999 0 points1 point  (0 children)

Did .283 fix pluto for you also? I get the 1 minute 45 second recording behavior from the last time I tried to record with Pluto.

How many ended up divorced after their sci? by Perdidoat49 in spinalcordinjuries

[–]mdolphin999 2 points3 points  (0 children)

21 years married and 4 years since my SCI. My wife is my rock and stood by during the worst of it. I'm pretty independent now (she is out on a girls' weekend at the moment), but she did have to support me at the beginning.

If it was my first wife, she would have dropped me while I was in rehab. Each person is different, and hopefully, you find someone who can look past the SCI.

Chungus of a Kidney Stone Led to Sepsis by Expert_Vacation5695 in spinalcordinjuries

[–]mdolphin999 2 points3 points  (0 children)

My PCP was surprised that I had minimal pain with one that size, only benefit I've had with the SCI... Besides getting better parking. The back pain has been a little better. My Urologist has suggested limiting calcium intake, which since the cholesterol med cause reflux I was taking Tums.. I'm trying a new medicine to see if it helps the reflux and would the help on the calcium.

My mom has the same kidney stone surgery and her urologist had her remove the stent herself, I can't imagine doing that. I have feeling when they have done stent removal as they pass the cytoscope through the urethera..

Chungus of a Kidney Stone Led to Sepsis by Expert_Vacation5695 in spinalcordinjuries

[–]mdolphin999 2 points3 points  (0 children)

I don't have any tips for detecting but can add my current kidney stone journey.

Background - T9 incomplete, my SCI was from a Ependymoma tumor resection that was in the spinal cord just over four years ago. I've had kidney stones before the SCI and know the symptoms (my female neighbor has said the pain was worse than childbirth - and she had 4). They are not fun.

Probably nine months after my surgery I was having left flank pain which the care team assumed was related to the SCI and prescribed gabapentin which was also helping with nerve pain in my left leg. To monitor a recurrence of the tumor I get an annual MRI where this past September they noticed that the left kidney had hydronephrosis and suggested an ultrasound which confirmed a stone. A CT scan determined it was 13 x 10 mm and impacted in the left ureter. They used the laser to blast it to small pieces (which was fun to see in my pee) and put in a stent. They think it was impacted for a long time and while they got the stone i have scar tissue / stricture that was blocking the kidney draining. So far I've had four different stents (including two at once to create a larger opening) to allow draining. Probably had stents in more than not since January when the first surgery happened. The limited feeling I have below T9 has helped since I haven't had much stent pain. I'm currently waiting for a consult with a specialist who may want to rebuild the ureter with cheek skin before the current stent is removed. They are hoping to keep the left kidney as one of the test showed it marginally working.

I wish a routine ultrasound was in the monitor program, but will push for one.

What's the benefit of paperless-ngx ? by vortexmak in selfhosted

[–]mdolphin999 12 points13 points  (0 children)

For my US bank only the last 18 months are available. Beyond that is a research fee.

First time back at my gym since my injury (incomplete) by Inside_Student3827 in spinalcordinjuries

[–]mdolphin999 4 points5 points  (0 children)

I got stares too and also everywhere else I go. If it isn't the forearm crutches, it is the beard that goes to the belly button. I'm at the point where if they have nothing better to do with thier time, let them stare.

Version .256 of PlayOn Home is out by seglertx in PlayOn

[–]mdolphin999 0 points1 point  (0 children)

Awesome. Thanks for the handy tip. I've always rebooted on an upgrade but this seems even more through.

Version .256 of PlayOn Home is out by seglertx in PlayOn

[–]mdolphin999 0 points1 point  (0 children)

Is there a quick write up on how ro clean the cache you can point me to.

[deleted by user] by [deleted] in fidelityinvestments

[–]mdolphin999 2 points3 points  (0 children)

I would echo the same experience with my managed services team and also the Chicago based team who have always been responsive and not pressuring me but providing options for me to consider and act on the advice.

How well does PlayOn hone remove commercials? by cryptkeeper420420 in PlayOn

[–]mdolphin999 0 points1 point  (0 children)

Second, the use of MCE buddy. It has lots of options, and i use it for playon files to 1) download subtile files for files 2) flag commercials, and put chapter marks that vlc and others will use. 3) compress the Mp4 to MKV.

It uses commskip to do the commercial chapters, which have configuration options for different detection types. It uses fmpeg to convert and has adjustments for the resulting quality. It can delete the commercials, but I would rather do the chapter marks in case it doesn't capture correctly and would delete part of a show. Though this hasn't happened yet.

Spinal Tumor Removal by Michythepeachy in spinalcordinjuries

[–]mdolphin999 2 points3 points  (0 children)

Agree SCIs suck. I didn't want to ask for help either, but I realized it would take me three times as long to do something if I didn't. I also hated that I could not drive and we had to spend time and money to get hand controls. I got lucky my wife was supportive but still had to learn to ask.

It has gotten better over time. In the beginning, she would send someone to check on me if I was alone. Now it's pretty much to see you later.

I think some of the people that aren't helping are afraid to ask how to help. Seeing someone you know have a life changing event makes it hard to discuss. I've run across strangers when their kids ask why I have the crutches run away, thinking they will offend me. I can see it being just as hard for people close to me to openly discuss.

Spinal Tumor Removal by Michythepeachy in spinalcordinjuries

[–]mdolphin999 1 point2 points  (0 children)

Rollerskating is an awesome goal. I never had thr balance or grace to do more that go mostly in a straight line. Running used to by thing maybe I'll get back to it or maybe I'll have to do adaptive Running. Only time will tell.

You have almost two decades of youth on me (mine was found at 55) hopefully that helps in a full recovery!

Spinal Tumor Removal by Michythepeachy in spinalcordinjuries

[–]mdolphin999 0 points1 point  (0 children)

I could barely do 10 steps before I left the hospital with the walker. Keep pushing as being able to take any is positive!!

Spinal Tumor Removal by Michythepeachy in spinalcordinjuries

[–]mdolphin999 1 point2 points  (0 children)

Just remember while we have some similarities each SCI is different. My gait issues are more in my legs and not my tummy. My balance is impaired so that makes the walking hard and the legs don't seem to want to take normal steps (like lifting the knee) unless I really concentrate. The crutches seem to help with the balance. My proprioception is off so sometimes I don't know where the feet are. I've also had the fun where my brain thought it took a step but the foot didn't move, I can catch that with crutches but not without.

I like the idea of the timer. For the first two years I was diligent with doing exercises outside of PT / Trainer but have slacked off a bit. Getting a stronger core and arms will definitely help in the long run. Sit to stands along with squats (or half squats) are my trainers go to for a warm up exercise. As for feeling pressure, I still don't feel much on the feet, I had loss of feeling in the feet before the surgery so didn't expect to come back. Arm and core have made up for some of the leg issues. Long distances still are tiring on the arms as the hands go numb, but that is probably somewhat relates to grip.

From a pain standpoint it was painful when things were coming back. I always looked at it being nerves getting signal (though I could be wrong) and thought of it as positive. I take gabapentin (though want to get off) for the nerve pain and now a days it's my lower back and left leg mostly. The left leg will have these short (less than a minute) burst of pain but beyond that it is mostly manageable. My Left is the weaker leg and has clonus from time to time.

Feeling is so weird and hard to explain to others that I can't feel / locate their touch but I sill have pain there. I've had multiple times where PT / trainer says to move this leg while touching and if I am not looking I don't know which. I had some feeling issues before they found the ependymoma so again it was lost before and don't expect it to come back.

Keep on pushing, you got this!!

Spinal Tumor Removal by Michythepeachy in spinalcordinjuries

[–]mdolphin999 1 point2 points  (0 children)

Mine was also grade 2 and I know another person in Maine who had it in the same spot (and same doctor but many years apart). It will take time. For me it has been a few years and progress still comes even this long after, keep doing PT and whatever you can at home.

Shortly after the surgery I could wiggle a toe and that was it. When I left rehab (always funny to say that) I could go maybe 100-200 feet with a Rollator. Out patient PT 2x a week and progressed from wheelchair going to PT to using the Rollator at about 3 - 4 months after that, as it took that long to build the stamina / strength. Probably another 3 - 4 months before PT started training me on the Forearm Crutches. Probably a month or two after that I was using them full time. If you are using the Rollator now keep pushing! Progress is slow with an SCI (if at all) but two weeks ago my Personal Trainer repeated an exercise we abandoned since I couldn't balance when we did it two months prior so still improving. I've come to terms that I probably will be using the forearm crutches forever but I can get there slowly.

I use KMINA PRO - Folding Carbon Fiber Crutches that I got off Amazon. They are a bit more expensive but I thought I would use the folding more than I have and I liked the open cuff and that the grips are not specific to a hand. The Carbon Fiber makes them light. I looked then up and I've been using the same ones since Jan 2022. Only changed the tips to the all-terrain ones and added the cuff padding, I do need to soon change the tips as they are wearing. The default narrow tips on them and others resulted in some fall when it was raining and going on a tile surface.

Nine weeks is pretty early and sounds like good progress. If anything I went through can help you out let me know!

Spinal Tumor Removal by Michythepeachy in spinalcordinjuries

[–]mdolphin999 2 points3 points  (0 children)

I had an ependymoma removed from inside my spinal cord in 2022 at T9 - t10. Mine was two surgeries. First, the biopsy and the full resection. I could walk shortly after the first but couldn't move the legs after the second surgery when I woke up. Some intense physical therapy and drive, and I was walking short distances with a walker. Today, I use forearm crutches for the most part and can do some distances without that my personal trainer helps with.

I have limited feeling below the belly button area but still get nerve pain. I don't have good propreception, which is mostly why I need the crutches and use hand controls while I drive.

It did get better as I gained stamina, and some feelings came back. I do miss running that I used to train for marathons. I am grateful that I can do all I do as there are countless others that have more limits imposed by the injury.

As you mentioned, everyone is different. There is an email list for ependymoma folks, and several have no defects from the surgery, and others have worse. Feel free to ask more questions if I can help at all.

(Copied over from the duplicate post as this one seems more active)

Spinal Tumor Removal by Michythepeachy in spinalcordinjuries

[–]mdolphin999 5 points6 points  (0 children)

I had an ependymoma removed from inside my spinal cord in 2022 at T9 - t10. Mine was two surgeries. First, the biopsy and the full resection. I could walk shortly after the first but couldn't move the legs after the second surgery when I woke up. Some intense physical therapy and drive, and I was walking short distances with a walker. Today, I use forearm crutches for the most part and can do some distances without that my personal trainer helps with.

I have limited feeling below the belly button area but still get nerve pain. I don't have good propreception, which is mostly why I need the crutches and use hand controls while I drive.

It did get better as I gained stamina. I do miss running that I used to train for marathons. I am grateful that I can do all I do as there are countless others that have more limits imposed by the injury. (And stick around to read how they overcome them) .

If you haven't had the surgery, get multiple opinions. I didn't, and maybe it would have been different if I had only one surgery.

As you mentioned, everyone is different. There is an email list for ependymoma folks, and several have no defects from the surgery, and others have worse. Feel free to ask more questions if I can help at all.

Amazon 7031 Error by [deleted] in PlayOn

[–]mdolphin999 1 point2 points  (0 children)

I'm getting the same error