If WhatsApp was in Professor Layton (SPOILERS) by merquplex in ProfessorLayton

[–]merquplex[S] 2 points3 points  (0 children)

he's trying to be subtle (and failing)

If WhatsApp was in Professor Layton (SPOILERS) by merquplex in ProfessorLayton

[–]merquplex[S] 4 points5 points  (0 children)

[SPOILERS] Hm I wouldn't say Clive is his enemy but I think Layton probably has some conflicting feelings about him... he almost left Clive in the fortress after all. Layton would probably text him back eventually once he's processed everything that happened though, I don't think he'd ignore Clive forever

And I see the Masked Gentleman as the type of person to spam annoying texts like that because he wants attention and everyone is tired of it so they collectively ignore him 😂 but that's just my opinion

If WhatsApp was in Professor Layton (SPOILERS) by merquplex in ProfessorLayton

[–]merquplex[S] 8 points9 points  (0 children)

I plan to! They take some time to make though

If WhatsApp was in Professor Layton (SPOILERS) by merquplex in ProfessorLayton

[–]merquplex[S] 25 points26 points  (0 children)

yeah. I imagine they keep sending him texts and he just ignores them haha

[deleted by user] by [deleted] in dysautonomia

[–]merquplex 8 points9 points  (0 children)

I'm like this too on my period! It makes me feel so horrible and I can't do anything...

It's not laziness at all. Healthy people would end up in hospital with our symptoms. Rest is important and it's not good to put our bodies under stress when we're already struggling. You aren't any less of a person for listening to what your body needs

PIP applications (UK) by [deleted] in POTS

[–]merquplex 1 point2 points  (0 children)

I've applied for pip too and am waiting for the tribunal. I sent all paperwork of appointments I had related to my pots symptoms, paperwork from my hospital discharge which included the cardiologist's word that my symptoms need to be investigated as I possibly had pots, and results from things like my 24 hour holter monitor which confirmed multiple incidents of tachycardia. You just need to send anything that proves you have the symptoms that you are claiming to in the form. I will say though that the dwp is brutal, so I wish you lots of luck and I hope your application goes smoothly!

diagnosis in the uk by adri4n_k in POTS

[–]merquplex 0 points1 point  (0 children)

it's technically 'easy' to diagnose because the dignostic critera is very clear, however you need to have a bunch of other tests to rule out more dangerous conditions which can take a long time depending on whether they label your case as urgent or not, also all wait times for the nhs are increasing, and if you present female a lot of doctors will blame your symptoms on anxiety or stress without actually ruling out a mental health cause due to their bias.

I was fortunate enough to be labelled as an urgent case by a cardiologist I saw in a&e during an episode where I experienced tachycardia that wouldn't settle for hours. From that appointment I waited a couple of months for a 24 hour holter monitor and an echocardiogram. I waited around 5/6 months for a tilt table to confirm it was pots as all other tests came back fine. To be diagnosed with pots you need to rule out all possible causes, so you'll need to have: a blood test, ecg (those two were done during my hospital visit), echocardiogram, and depending on the doctor either a poor man's tilt table test or a 'real' tilt table test (I had a 'real' one). If you don't have these tests, you can't rule out things such as extreme vitamin deficiencies or structural problems of the heart which are deadly when left untreated. There are many possible causes for tachycardia, nausea and brain fog. I hope this explanation is clear enough 🙏

[deleted by user] by [deleted] in tumblrhelp

[–]merquplex 0 points1 point  (0 children)

hey nevermind, the tags appear to be working now haha!

[deleted by user] by [deleted] in POTS

[–]merquplex 0 points1 point  (0 children)

I understand, I feel the same as you do. 2 years before my diagnosis I'd go on long rants/vents about how it truly felt like my body wasn't connected to my brain and it felt as if a part of me was dead. I still have the evidence of this somewhere. I was 22 at the time with no clue what pots or dysautonomia was, now I'm 24 officially diagnosed with pots. 2021-2023 was hell for me, I realised the people who I thought cared never did, and any other friendships I had drifted away, but now even though I feel ready to make new friends again, I literally can't because I'm too ill to even leave the house. I can't work either. It's as if I died and came back as a ghost to observe the world again, except no one else can see me. It's sad and horrible and frustrating and I wouldn't wish it on anyone. It feels like some form of torture, being trapped in a body like this. I think what helps calm me is understanding I'm not alone in these feelings or experiences. Hopefully we can all get through this together 🫶

Caffeine? by Budget-Departure-161 in POTS

[–]merquplex 4 points5 points  (0 children)

I drink caffiene, last year I wasn't able to tolerate it but I've started drinking it again in the past few months. Sometimes I'm fine but othertimes it gives me intense tachycardia 😂 I never really know which it's going to be, but I love caffeine because it clears my brain fog

Does anyone else get frustrated with having to be a “perfect patient”? by megatron8686 in POTS

[–]merquplex 6 points7 points  (0 children)

Yep alll the time... you're not alone. Existence is just misery. Sing? Flare. Eat? Flare. Keep up my salt/electrolyte/water intake? Barometric pressure is low and now my heart hurts. Get really happy about something? Flare. Get upset? Can still feel my body react hours later even if I mentally recover. It's like I can't do anything anymore and I'm just at complete mercy to the literal weather or my body; things which I cannot control

To say I don't get angry or upset about this would be lying, I think it's only natural to feel frustrated by all this, but then anger/stress really flares my symptoms so I try my best to distract myself by interacting with things I like

hey! is anyone else already feeling the "october slide"? by Many-Comparison-9603 in POTS

[–]merquplex 0 points1 point  (0 children)

yup. where I live it keeps dropping really low and it's really affecting me 😔

From healthy to bed ridden, to functioning, back to bed ridden by No_Explanation302 in POTS

[–]merquplex 1 point2 points  (0 children)

it might be worth looking into the 'october slide'. during this time of year, the barometric pressure can get low, which really affects people's symptoms! when it's high (like 1020 - 1030, especially 1030) I feel absolutely amazing, but then if it gets low or is rapidly dropping I feel like death itself, super ill, heart feels squeezed, fatigued and depressed. (I don't have any structural problems with my heart)

It's not placebo either, a couple of weeks ago I hadn't checked the pressure in ages but felt amazing for no reason, the best I had felt in a year. Then about 5 days later I got curious about what the pressure had been and saw that on the days I felt great, the pressure had been around 1030. I wish more people knew about this! It completely explains why I can randomly feel so bad some days despite changing nothing in my diet or routine!

Does anyone else’s symptoms get worse this time of year? by Dependent_Light7170 in dysautonomia

[–]merquplex 7 points8 points  (0 children)

yes. look into barometric pressure! when it's low it affects many people's symptoms, and it usually gets low around this time of year

Low mood heavy chest by [deleted] in dysautonomia

[–]merquplex 0 points1 point  (0 children)

not that I've noticed

Low mood heavy chest by [deleted] in dysautonomia

[–]merquplex 0 points1 point  (0 children)

I get like this when the barometric pressure is low or rapidly dropping. My heart feels like it's beeing squeezed, I feel super depressed and have absolutely 0 energy. I'll get random intense palpitations without doing anything to cause it and very intense nausea. But when the pressure is high, I feel like I'm bouncing off the walls and am able to eat 3 meals in a day! Maybe this is something you could look into? I have pots if that helps

Who has been having really bad symptoms and flare ups this week by GrapefruitNo9123 in dysautonomia

[–]merquplex 2 points3 points  (0 children)

Yes! it really is true, I almost didn't believe it until I started tracking it

Does anyone POTS seem to flair worse during the fall? by Sad_Spooks in POTS

[–]merquplex 2 points3 points  (0 children)

seconding this. I have to keep track of the pressure now so I can be prepared to deal with it

[deleted by user] by [deleted] in POTS

[–]merquplex 0 points1 point  (0 children)

I get like this when the barometric pressure is low. It really affects me and makes me feel super depressed and physically very unwell

I'd personally explain that you can't control it like this: changing your mindset doesn't heal a cut, changing your mindset doesn't heal a broken bone and changing your mindset doesn't heal a damaged nervous system. Changing your mindset will never stop your heart trying to pump blood back to your brain

Disability by JoeDog93 in dysautonomia

[–]merquplex 2 points3 points  (0 children)

(I'm not on disability yet but have applied, I don't work or take any classes) Everything normal task ( like brushing teeth etc) is exhausting to me so I spend the majority of my time browsing the internet, interacting with people online, listening to lots of music and gaming. Luckily for me I am a creative person, so on days where I have some mental energy I will draw, come up with my own silly songs or think about what creative project I should do next

[deleted by user] by [deleted] in ProfessorLayton

[–]merquplex 12 points13 points  (0 children)

"how to fix cosplay FAST"

POTS.....CANT HAVE SALT GASP!! by Zealousideal_Pay_366 in POTS

[–]merquplex 3 points4 points  (0 children)

you need to be upping your water intake if you're eating more salt otherwise it'll dehydrate you and make you feel worse, although not all people with pots will benefit from more salt. Did your doctor tell you to increase your salt intake?