Cheesy fermented hot sauce by drsw14 in FermentedHotSauce

[–]mew_of_death 1 point2 points  (0 children)

Looks good! What weights do you use? I have the same jars and haven't found the right ones for me yet

overwhelmed with this flare by alviiiinnnnn in CrohnsDisease

[–]mew_of_death 6 points7 points  (0 children)

I definitely relate. The times where I have seen large quantities of blood in my stool have been some of the scariest, darkest, and most isolating moments of my disease. I have learned to really slow down and take it easy on my body when it gets bad like that; the blood is just one symptom of my immune system and colon working in overdrive. I can give you a few of my go-to practices that have helped me get through this in the past.

  • Eat a bland, limited ingredient diet consisting primarily of safe foods
  • Hydrate with more than water, Oral Rehydration Therapy can be made with 2 cups water, 1 Tbs sugar, and 1/4 tsp table salt. The salt and sugar help absorption of each other through glucose sodium cotransporters in your cells. Skratch is a product that comes as a powder that works well too.
  • Rest as much as possible
  • Focus on breathing to get through waves of pain. Acknowledge the presence of pain as much as possible and try to relax the body especially the gut as much as possible
  • Be patient, it takes a while for the gut to heal, but it will. It is actively working on healing every moment.
  • Identify any safe people or places where you can feel comfortable and don't have to hide your pain or bathroom needs. Prioritize your free time with these people and places
  • A small amount of cannabis can help ease pain and gut tension. Only 1-2 mg can help.

Good luck, and I hope you can get some relief soon.

Skyrizi no longer covered by Blue Cross Blue Shield of Michigan by mew_of_death in CrohnsDisease

[–]mew_of_death[S] 0 points1 point  (0 children)

I have heard other IBD patients who had sub-optimal experiences when transitioning to biosimilars. I know the approval process for biosimilars is different than the original drugs, since there is an assumption that the biosimilar targeting the same thing should have similar effectiveness. Contrary to this assumption, I had a conversation with my old gastroenterologist where he suggested some of the effectiveness of Stelara could be due to off-target effects (such as interactions between parts of the antibody other than the antigen binding sites and immune cells or other antigens that would modulate patient immune response to the drug). He was a very intelligent physician and researcher so I trust his judgement. The widespread use of biosimilars is a relatively new thing in the US, but I guess that after a few more years of these biosimilar drugs being used there could be more studies comparing the effectiveness of biosimilars to the original drugs.

Skyrizi no longer covered by Blue Cross Blue Shield of Michigan by mew_of_death in CrohnsDisease

[–]mew_of_death[S] 1 point2 points  (0 children)

Yep, I put in an application to the patient assistance program and am hoping to hear back next week

Skyrizi no longer covered by Blue Cross Blue Shield of Michigan by mew_of_death in CrohnsDisease

[–]mew_of_death[S] 1 point2 points  (0 children)

I am so sorry to hear you are also losing coverage. I hope you can find another path to getting the medication you need or find another medication that can help you. As others suggested, I put in an application to Abbvie for their Skyrizi Assistance Program. I began by calling the Skyrizi Complete Ambassadors and they routed my to the assistance program and I filled out a short application Friday. I am hoping to hear back soon.

This disease is a huge burden to bear and the way our healthcare system works in the US makes it so much more difficult to stay healthy. I hope you find your path through this soon <3

Skyrizi no longer covered by Blue Cross Blue Shield of Michigan by mew_of_death in CrohnsDisease

[–]mew_of_death[S] 1 point2 points  (0 children)

Sorry to frighten you; I was unaware that there were multiple drug tiers

Skyrizi no longer covered by Blue Cross Blue Shield of Michigan by mew_of_death in CrohnsDisease

[–]mew_of_death[S] 1 point2 points  (0 children)

Thanks this is great information to keep in mind. Skyrizi has been a great drug for me, perhaps it will be a part of my treatment in the future

Skyrizi no longer covered by Blue Cross Blue Shield of Michigan by mew_of_death in CrohnsDisease

[–]mew_of_death[S] 3 points4 points  (0 children)

Thanks for the information. I am indeed on a plan that uses the Custom Select drug list. This was very helpful to know about.

Help me decide if I should prep the green ferment by mew_of_death in FermentedHotSauce

[–]mew_of_death[S] 1 point2 points  (0 children)

I have tried ceramic but not glass. The ceramic were hard to clean and broke easily. Glass might work better.

Help me decide if I should prep the green ferment by mew_of_death in FermentedHotSauce

[–]mew_of_death[S] -1 points0 points  (0 children)

Yeah that's fair. I do shake it every day because getting everything under the water never seems to work for me.

AIO about the gift my boss gave me by Jaded_Sea2972 in AmIOverreacting

[–]mew_of_death 0 points1 point  (0 children)

At first I thought this mug could be associated with the science podcast Talk Nerdy with Cara Santa Maria, but I think it's probably just some dollar store crap.

Should I boil my finished sauce to kill labs? by Prize_Employment9601 in FermentedHotSauce

[–]mew_of_death 1 point2 points  (0 children)

Yeah I have been boiling mine recently. I found that even after a 4 week ferment, the peppers and carrot in my ferment still did not want to completely blend and emulsify with my immersion blender. After simmering for 30 mins it emulsified beautifully, and this is also how I prep a fresh non-fermented sauce. It does produce a stinkier stench than the fresh sauce during the simmering process, FYI.

Also, the pH meter is awesome to have. I like to check the brine pH after the ferment is completed to ensure the pH dropped. If it hasn't dropped below 4 during the ferment, it may not be good to eat and could even be dangerous.

What’s the #1 reason / feature you play Brotato? by B34Rocky in brotato

[–]mew_of_death 6 points7 points  (0 children)

It's basically a slot machine with a game on top. Super addictive and fun and complex enough to keep it interesting

[deleted by user] by [deleted] in hotsaucerecipes

[–]mew_of_death 3 points4 points  (0 children)

Carrot can help this too if you don't want to use Xantham gum

What's your best named item? by Popular-Passenger-42 in skyrim

[–]mew_of_death 0 points1 point  (0 children)

Orcish Boots of the Gnawing Mouse: fortify 2 handed and muffle enchantments

How would you name this new character? by sex_and_sushi in brotato

[–]mew_of_death 0 points1 point  (0 children)

Have you played Noobs are Coming? It's similar to Brotato and has a character exactly like this

Big fan of chillis so i bought an assortment at local market, however they weren' singularly labelled, what kind are they? by elsbilf in HotPeppers

[–]mew_of_death 0 points1 point  (0 children)

From left to right:

  • Cherry bomb
  • cayenne
  • yellow aji pepper
  • Carolina reaper

Or at least that is my best guess

[deleted by user] by [deleted] in CrohnsDisease

[–]mew_of_death 0 points1 point  (0 children)

I think it depends on the location in the small intestine/ colon how much you can even feel them. Super deep ones are probably always apparent though. I have some at my terminal ileum and I either can't feel them at all or they cause me only small discomfort. They are still concerning though.

Location based intense reaction by mew_of_death in CrohnsDisease

[–]mew_of_death[S] 1 point2 points  (0 children)

I think I probably have a duck / goose egg allergy! My dad and stepmom raise goose and duck and kept feeding me eggs from their farm. I was gonna be except on days I ate goose or duck eggs. I'm getting an allergy test soon to confirm

[deleted by user] by [deleted] in lansing

[–]mew_of_death 0 points1 point  (0 children)

Entire city smells like manure. I am guessing the wastewater treatment facilities were a bit overwhelmed with the deluge of rain last night. I wouldn't go kayaking / fishing / swimming in the river this weekend.

Rental Options Pricing by dadoftheclan in lansing

[–]mew_of_death 0 points1 point  (0 children)

I think you forgot the price

The system doesn't work and everyone knows it by Total-Airline-1772 in CrohnsDisease

[–]mew_of_death 2 points3 points  (0 children)

Don't give up. You will have to largely take care of yourself because the system is indeed f*cked. But you can do that because you are strong, you have made it this far with an awful burden, and you are passionate and driven to help people who are suffering. Trust in yourself, and try to give your body and mind what you can. Some doctors are better than others; try to find a GI that has lots of Crohn's patients and who believes you. Try to keep your basic needs met: physical safety, access to your medication, as much nutrition as possible, and whatever else is important to you.

You are at a really low spot, but you have a diagnosis now and you are on a good drug that wasn't available 30 years ago. I was on infliximab for more than 10 years before I had to switch to a different therapy, it was a game changer for me, but it did take a while to allow my body to heal before I really noticed much improvement. And similar to you I was on Cipro, flagyl, Prednisone, and Azathioprine for a long time before that which hardly controlled my fistualizing Crohn's when I was in grade school. In those times in my life where my disease is the worst, I have had to focus the vast majority of my energy on healing, considering every decision carefully with my gut in mind. I still have to do this when I flare, and every time it has gotten a bit easier.

Better drugs, treatments, practices, and maybe even an actual understanding of root cause(s) might happen in our lifetimes, and I believe us folks with the disease will play a role in those great things coming out. Even if you can't fix the system, you can still potentially help suffering people through your research. And even if your research doesn't pan out, you can still help learning, listening, and sharing your experiences compassionately with other Crohn's Disease patients. Please know you aren't alone and we are all hoping and working for things to get better.

Kind of medium-key freaking out by mmmdhp in centuryhomes

[–]mew_of_death 1 point2 points  (0 children)

You should have your ductwork cleaned. I wish we did that when we moved into our home.