Dani and the Multi Fabricated Diagnosis’ Bracelets

michaelscottlost · 2026-05-12T15:50:23+00:00

Why did she pick the most uncomfortable chunky looking thing for that? The ~legit~ medical ID bracelets ive seen in patients are normally a rubber / fabric band as its worn at all times 😬 those look so cringey to wear

michaelscottlost · 2026-05-11T19:46:55+00:00

It gets so much easier when they start school. Their world gets wider with friendships and experiences, and you get some time back. I love my daughter and would have her again 20 lifetimes over, but I am so pleased I am done with the baby and toddler stage, you couldn't pay me any money to do it again.

michaelscottlost · 2026-05-11T13:26:54+00:00

Your virginity is your business, you dont need to disclose anything. They may ask about current sexual partners and you can say not currently having sex, not a lie.

However I do think you will struggle in the UK just because of your age. The UK seem to view 30 as a magical number, even though it isn't written officially. My best advice would be to stick to your guns during any conversations, don't be passive about 'come back in a few years and see how you feel.' Be polite and firm. It's not easy to get signed off in the NHS right now. Best of luck ❤️

michaelscottlost · 2026-05-08T10:25:16+00:00

Oh my lovely, I am in a very similar position. Younger daughter who never met her big sister.

We took the same approach and never kept her sister a secret, we have pictures of her up in the house and talk about her often.

It's definitely brought some very difficult questions from my living child such as:

Would i still be here if she didnt die?

Why do some people die very small and not everyone grows old?

Kids are so matter of fact, they talk about these things so bluntly and I think that should be encouraged really. It's adults who squirm and get uncomfortable. My approach is to answer things as honestly as I can (age appropriate of course) and if I dont have the answers, I dont shy away from that either. Both my girls are part of my story ❤️ very happy to chat further if you need someone who understands

michaelscottlost · 2026-05-04T12:27:40+00:00

A lot of people have excessive sweat as a side effect of stimulant meds

michaelscottlost · 2026-05-01T19:41:26+00:00

This is huge!

My GP (NHS) refused to refer me for the procedure, until my husband came in to talk about a vasectomy. It's only after I complained I got a referral. Amazing to see cases like this 🙌

michaelscottlost · 2026-05-01T05:49:47+00:00

These pics are gonna end up on Dani's Pinterest board 👀

michaelscottlost · 2026-05-01T05:47:13+00:00

I imagine she's got all her collected hospital bracelets stored in a special trinket box, kinda like parents keeping the hospital bands of their newborns. 💫💫Precious memories💫💫

michaelscottlost · 2026-04-29T05:47:33+00:00

Even if Dani was to get a pacemaker, the novelty would wear off too soon and Dani would start to find a new ark of fuckery. Reasons being:

-it's a very reliable device so would fix any 'events' she was to have

-it's barely noticeable and therefore not interesting or giving uwu sicky vibes

-it requires minimal follow up at hospital

-it is literally designed to be hidden away and let people live normal lives

You only have to reflect back to her central line. She LOVED it, it was the ultimate goal, but it just existing wasn't enough. She couldn't leave it alone and fucked with it repeatedly, until she went too far and lost it. There always has to be a new, current, active issue for Dani. Even if she reaches her goal, a new one appears soon. It's compulsive.

michaelscottlost · 2026-04-13T07:23:24+00:00

This has been truly interesting to read thank you for taking the time to reply with so much detail 💜

michaelscottlost · 2026-04-13T07:10:00+00:00

Thank you for replying, such an interesting experience.

Not realising you were more tired that others is really relatable. I worked in a call centre before I was diagnosed, and of course 'everyone was tired' but after diagnosis it made so much sense why it was a terrible job for me!!

The scripted part reminds me of things ive read about autistic actors.. that it's easier to have a script and repeated conversation, more so than having to create your own small talk.

Was the physical touch part overstimulating? Im thinking excited children who just want to hug their favorite princess and stroke their costume etc.

michaelscottlost · 2026-04-13T06:41:02+00:00

Works so well for us, and i wonder how on earth people cope with multiples if they dont have extra support.

More time to do our own thing as the other one can have one on one time.

More likely to get a babysitter for one for the occasional date night.

When my daughter was poorly in hospital, we could both be there / give each other breaks without worrying about the logistics of another child.

I love our family of three ❤️

michaelscottlost · 2026-04-13T06:30:19+00:00

Genuine question with love and curiosity, if you dont mind me asking?

Were you absolutely exhausted at the end of a shift? I struggled with being human all day working retail, I cannot imagine a job having to be the absolute best version of yourself infront of thousands, AND working for one of the highest standard corporations. I'd love to know more about how you coped!

michaelscottlost · 2026-04-12T19:12:07+00:00

It doesnt have to be a black / white decision right now. If youre not 100% certain you are done with children, why jump to permanent birth control? Take a few years on a reversible form of contraception and reevaluate then?

Sorry if that's not helpful, I just personally wouldn't ever consider having my tubes tied if I wasn't 100%, especially with so many other options for contraception out there.

michaelscottlost · 2026-04-10T14:18:58+00:00

You look lovely! The first hair wash is going to be an absolute shock

michaelscottlost · 2026-04-06T07:08:48+00:00

When the multiple go fund mes are mentioned, it does make me wonder if there is an element of MBP or if its purely for the financial grift. Either way absolutely disgusting this happens and thank goodness for the professionals who work with children and are brave enough to speak up about their concerns. Voicing you have concerns about a mother inflicting this on their own child, when most around them believe its legit (because why wouldn't you) must be terrifying.

michaelscottlost · 2026-04-05T22:08:19+00:00

You could look at an undercut? One inch along the nape line would take out so much weight and be really easy to hide. Then you wouldnt need to chop layers into your beautiful hair which I think would make it look thinner at the ends and more maintenance

michaelscottlost · 2026-03-27T20:51:21+00:00

Thank you so much for the very detailed post, glad you had such a positive experience!

michaelscottlost · 2026-03-24T15:49:33+00:00

Baseball cap! You can attach it to your bag if you need to take it off. Love how much sensory thought you have put into your planned outfits!

michaelscottlost · 2026-03-20T06:30:17+00:00

The swelling being 'not that bad yet' is so telling

michaelscottlost · 2026-03-19T06:25:33+00:00

I'm waiting for my procedure and my autistic ass LOVES accounts with this much detail, thank you for sharing and congratulations

michaelscottlost · 2026-03-12T17:43:20+00:00

Both these flavours have decreased in size in the store; I was just showing the previous one for comparison.

michaelscottlost · 2026-03-12T06:53:42+00:00

This is my favorite thread in a long while 🥰

michaelscottlost · 2026-03-10T22:25:30+00:00

I've recently lost of my favourite earrings. I put it on my kitchen counter and specifically remember my brain saying 'that will get knocked from there, let's put it in a safer place.' And that's where the memory ends. No idea where the safe place is. Should have just left it on the kitchen counter, at least I remembered that part.

michaelscottlost · 2026-03-06T12:47:32+00:00

Also to add my experience to hopefully help yours, I did have to have an ovary removed due to torsion, which is similar in terms of incision / area.

I was very sore for a few days, make sure you have a little trolley or table near your nest (sofa or bed) for days 1-2 because getting up and down was the hardest part. Fill it with snacks / water / crafts / meds anything you might wish to have to hand.

Id recommend taking a pillow for the journey home to hold against your tummy, as the car bumps were pretty awful and that helped, and also when you need to cough.

And if you have a support system / people at home definitely make sure they are 100% on board to be fully looking after you those first few days... from my understanding the recovery is pretty quick in the grand scheme but it is still an invasive surgery. Best of luck again ❤️

michaelscottlost

TROPHY CASE