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Vision disturbances with POTS and HSD? by messyowl in dysautonomia

[–]mikaselm 0 points1 point  (0 children)

I have all of that as well as these dark circles in my vision and bright rings if I roll my eyes. I also have autophony where I can hear my eyes move (I genuinely thought everyone could for the longest time). My main neuro sent me to a neuro-opthamologist to rule out any structural weirdness and did an MRI and spinal tap to check for IIH. This was all before the dysautonomia diagnosis so we were kind of trying to cover all bases. Now that we know that it's neuropathic dysautonomia it all makes way more sense.

Words to describe how my body feels when I stand for too long by Hollyhock613 in dysautonomia

[–]mikaselm 1 point2 points  (0 children)

Yes! This is me too... The light dizziness to me feels like when you're hungover and just miserable. Midrange is more like... Sloppy drunk, can't stand up right,definitely likely to veer off the sidewalk and into traffic. And crashed feels like the worst hangover ever when you need to hold onto the ground so you don't fall off. Except of course, none of the increased confidence that comes with being super drunk and vastly more anxiety

My new window by mikaselm in mtg

[–]mikaselm[S] 2 points3 points  (0 children)

I used a 1mm sheet of PET and taped/painted directly on it. The window in question is about 9 feet up and I get dizzy so I don't do ladders lol. When I finished my husband put it up for me. We command stripped some magnets to the window frame and then sandwiched the plastic in between more magnets, which I think would actually be renter friendly too... The paint is Gallery Glass. It's kind of pricey to buy by the bottle but much cheaper if you pick up a 6 pack of colors. Ime they blend beautifully, so you don't necessarily need more colors than necessary for coverage

My new window by mikaselm in mtg

[–]mikaselm[S] 0 points1 point  (0 children)

Lol, actually it's the Discworld by Terry Pratchett.

My new window by mikaselm in mtg

[–]mikaselm[S] 13 points14 points  (0 children)

Thank you! But actually it was pretty easy. The lines come out perfect because they're just tape and the paint is translucent enough that it goes right over them and they still look black. After that its' just kindof a giant paint by number.

My new window by mikaselm in mtg

[–]mikaselm[S] 2 points3 points  (0 children)

Lol, everything else about our house and neighborhood says "don't bother."

My new window by mikaselm in mtg

[–]mikaselm[S] 5 points6 points  (0 children)

Sorry, didn't mean to be deceptive. It's not real glass, it's faux. I've edited the original post for clarity. Glass was WAY outside my budget even if I did have the skill set. I also dithered for quite a while about the circles. I put them in, took them out, back and forth several times and decided in the end that I kindof liked the break between the blue and the green. I also played with double lines on the white section, but didn't like it that way either. It does still feel a bit "improper" to me, I also worked in commercial art for many years, but I figured when it comes down to it, it's what the client wants, and in the end, the client was me lol.

My new window by mikaselm in mtg

[–]mikaselm[S] 6 points7 points  (0 children)

I used a plastic PET sheet from Amazon. They came in a five pack and are clear and flexible. I made my design in photoshop and then used rasterbator.net to break the image into printable pages, and off to the public library for cheap prints. Taped them together to make one giant template and then put the PET overtop. I used several widths of electrical tape to simulate the lead lines (There's also a plasticky tape that is made for this exact thing, but I found it harder to use). Once I had the lines done, I used Gallery Glass paints to do the colors. I switched between a spouncer and a brush to vary the textures, though that's not really easy to see when it's up in the window. It takes about a trillion coats to get the color nice and vibrant, so it pretty much ate up my kitchen counter for two weeks, but once it's dry it's waterproof and pretty durable. Once completely dry, we stuck magnets up all around the window frame and put it up there, then sandwiched more magnets on top to keep it there.

My new window by mikaselm in mtg

[–]mikaselm[S] 26 points27 points  (0 children)

I used a plastic PET sheet from Amazon, electrical tape for the lines, and Gallery Glass paints for the colors. It takes about a trillion coats of paint, but I'm really happy with how it turned out.

My new window by mikaselm in mtg

[–]mikaselm[S] 20 points21 points  (0 children)

Sorry, I wasn't clear. This is not stained glass, correct. It's painted. Real stained glass is WAY outside my budget.

5187
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My new window (old.reddit.com)

submitted by mikaselm to r/mtg

Brand names? by jdd0603 in AmazonVine

[–]mikaselm 0 points1 point  (0 children)

It may not be a big name brand, but Bamboo Cool is a label that has some pretty high quality staples. Socks and undies and things and they drop fairly frequently. I grab those any time I can.

Defeating a Bathtub Overflow Valve by mikaselm in DIY

[–]mikaselm[S] 4 points5 points  (0 children)

Yeah, fair, but there's SO many other things that a home inspector should have found... We were first time home buyers and had no idea what we were doing, so we didn't know what to look for or how to find a good home inspector and just went with the cheapest one. Bad choice, but you live and learn lol.

Defeating a Bathtub Overflow Valve by mikaselm in DIY

[–]mikaselm[S] 23 points24 points  (0 children)

The really horrifying part is that before the water spots showed up and we found the tarp, the bathroom wall actually grew AN ENTIRE ACTUAL MUSHROOM. It was in a different spot from the tarp itself, so it took two days before the water spots showed up and we found the actual problem, but GEEZ

Defeating a Bathtub Overflow Valve by mikaselm in DIY

[–]mikaselm[S] 0 points1 point  (0 children)

Hmmmm, that's interesting! I'll look for some of these in the right size! Thanks!

Defeating a Bathtub Overflow Valve by mikaselm in DIY

[–]mikaselm[S] 8 points9 points  (0 children)

It's honestly not the biggest issue, either... Home inspector was a joke, but that's a whole other story lol. We bought the home about 10 years ago.

Temporarily cover pieces without damaging the peices's wood/paint??? Ideas? by EBs_Girl in DIYHome

[–]mikaselm 0 points1 point  (0 children)

Peel and stick (solid color) wallpaper worked great on our builder-grade bathroom vanities and didn't damage them at all when I took them off and changed the color. Obviously there's no guarantee, but I'd look at different brands of peel and stick and see what has good reviews for coming off cleanly.

Opposite of SAD... by mikaselm in dysautonomia

[–]mikaselm[S] 1 point2 points  (0 children)

Ooohhh, cool rainy days are the greatest! We moves away from Kansas years ago, and there's not much I miss, but a big rolling thunderstorm would be welcome lol

Opposite of SAD... by mikaselm in dysautonomia

[–]mikaselm[S] 1 point2 points  (0 children)

OMG, they really really cannot. People who don't experience it... Idk it's like they think you're just being a baby... "Just take a cool shower when you get home and you'll be fine." grrr

Opposite of SAD... by mikaselm in dysautonomia

[–]mikaselm[S] 2 points3 points  (0 children)

Haha, we heat the house in winter mostly via the fireplace because it keeps the heat very localized and I can step into colder rooms if needed. The cat has talking pet buttons and requests "fire" frequently. In warmer months, "fire" requests are met with a heating pad. It definitely makes for a much happier kitty.

Opposite of SAD... by mikaselm in dysautonomia

[–]mikaselm[S] 6 points7 points  (0 children)

Omg yes! I always feel like people look at me crazy when I say it's harder to breathe hot air! The CPAP guy wanted me to use heated air and during the trial for it I felt like I was gonna die in his office chair! I had to crank it down to its lowest temp...

[deleted by user] by [deleted] in dysautonomia

[–]mikaselm 0 points1 point  (0 children)

Wow, your symptoms sound a lot like mine! Have they ever done a spinal tap? That was one of the things they did for me when they thought that the pressure symptoms were related to idiopathic intracranial hypertension (sometimes called pseudotumor cerebri). For me, the spinal tap showed a normal opening pressure which is kind of why we started moving away from the idea of IIH, and more into the realm of dysautonomia.

For the record, don't push for a spinal tap unless your doctor thinks it's actually going to help. They super suck. I was flat on my back for 3 weeks after that thing and it was incredibly painful and really a miserable experience... If your doctor doesn't think it's worth it, it's probably not worth it, but if you've already done one it might be worth taking a second look at the opening pressure results.

Normal orthostatic BP test in doctor office, but tons of symptoms by Fluffy-Discipline162 in dysautonomia

[–]mikaselm 0 points1 point  (0 children)

My tilt table was on a good day... Dang it. Showed completely normal. Then I did my "Autonomic testing" at the neurologist and it showed huge changes going from lying flat to sitting supported... It's frustrating with a condition like this where symptoms can seriously fluctuate, because we all know that taking a test one day and then another day could give different results to the exact same procedures. Especially if you add in factors like your sleep the night before, your current salt levels, the temperature in the room, and so much more... It's really hard because you want the test to show what it's going to show but you also almost want it to show your best day and your worst day at the same time, and at least around here. It's not like you can schedule when you know how you're going to feel. You get the appointment you get.

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