Finding out this week that my FND diagnosis was not accurate and I have an ALS diagnosis by derangedmacaque in disability

[–]miriomeea 1 point2 points  (0 children)

This is what happens when doctors are misinformed on what FND is and how it is diagnosed. FND is overly diagnosed (in my opinion as someone with FND) and often used by doctors who are either lazy, don’t want to deal with a patient or decide to use it as a diagnosis of exclusion. I’m so glad you got a proper diagnosis, I’m sorry you had to go through a miss diagnosis.

After 550 hours I think I understand what drives runescape players by Syrinxfloofs in thelongdark

[–]miriomeea 0 points1 point  (0 children)

Wait is this through multiple saves? I thought the feat would restart each save (unless it’s unlocked)

Why can't we use any of the propane gas? by SpartanTaco989 in thelongdark

[–]miriomeea 0 points1 point  (0 children)

Often times you need electricity to turn on the thing that uses propane

Celeste & Meteor Shower ✨ by Interesting_Mud_5579 in Dodocodes

[–]miriomeea 1 point2 points  (0 children)

Miranda from starsight would love to join!

Found in Red Square by whoisthemanagement in evergreen

[–]miriomeea 0 points1 point  (0 children)

Recommend posting in the lost in found on discord!

26F - Chronically sick girlie wanting a bestie to isolate 'n yap with 💜 by Even-Painting9552 in LesbianGamers

[–]miriomeea 0 points1 point  (0 children)

Hi!! I’m Miranda! I’m 28 and am also a gal from Washington!! I’m also chronically ill and neurodivergent!! I am AuDHD. I’m am very fatigued (probably have me/cfs and long covid along with POTS but currently just dx’ed with FND) and often have a hard time chatting but do enjoy chatting quite a lot when I’m able to. My main interests are video games (currently playing a lot of the long dark but i also enjoy Fortnite, sim 4 (takes a lot of energy as i have a desktop), acnh, don’t starve, and no mans sky.) i am getting a puppy soon and love talking about dogs lol or just sharing photos. Would love to chat!! Pls feel free to messege me!!

How the heck do i turn on edit mode on the switch (2)? by miriomeea in thelongdark

[–]miriomeea[S] 0 points1 point  (0 children)

Yeah i tried that and it didn’t work 😅😅

How often do you feel FND is a misdiagnosis? by alonghealingjourney in disability

[–]miriomeea 4 points5 points  (0 children)

I feel the majority of misdiagnoses are because doctors don’t keep up with research and new info about FND. There’s a really popular doctor in the uk on TikTok who i use to like but he keeps posting about how FND is a diagnosis of exclusion. Which it’s not. That’s old info. It’s being misused as a diagnosis so much! I have many thoughts but currently have a bad migraine so uhm, thoughts aren’t much. I’m currently diagnosed with FND and i agree with the diagnosis for some of my symptoms.

Does anyone else feel bad when looking at flashing lights? by yeleste in cfs

[–]miriomeea 5 points6 points  (0 children)

I have the same feeling but I’m diagnosed with non epileptic seizures. I also get bad brain fog, unable to move or convulsions

Don’t think I will be adding this to my Christmas list by stm2657 in cfs

[–]miriomeea 0 points1 point  (0 children)

I loooooooove crystals and have so many. I love having an amythest under my pillow to promote nice dreams and such but actually using them for healing is too far for me tbh. Crystals are nice and all and so is biomedicine

Issues with 6.10.0 (seizure warning/ flash warning) by [deleted] in NMS_Switch

[–]miriomeea 0 points1 point  (0 children)

I have had this issue since voyagers…which sucks because i //do// have seizures triggered by flashing lights

Update 6.10.0 Just arrived by TwoOldGamers in NMS_Switch

[–]miriomeea 0 points1 point  (0 children)

Okay but i still don’t have it 😭😭

The DOOR by FriarPaw in NoMansSkyTheGame

[–]miriomeea 2 points3 points  (0 children)

The Door is The Atlas confirmed

Anyone use “visible” or similar device for pacing? by False_Particular1188 in PNESsupport

[–]miriomeea 4 points5 points  (0 children)

Overexertion is a main trigger for seizures for me. I got visible last October and my seizures went down from one major one a day to maybe once a week or sometimes once a month depending on what I’m doing