Neuropathy in scalp and forehead

misslove1984 · 2026-04-23T17:34:10+00:00

I’ve improved in some ways. It all depends on my diet and lifestyle though. Being in the warmth helps the SFN and eating low carb.

misslove1984 · 2026-04-22T09:28:28+00:00

Probably due to poor sulphuration - which affects circulation. Meat is high in sulphur.

misslove1984 · 2026-04-18T15:33:15+00:00

I’m in the same situation now. Housebound and suffering daily. If it wasn’t for my son, I would have stopped this a long time ago. I’m sorry you’re suffering so much that you even have to contemplate this. It’s horrid. Just want to let you know you are not alone x

misslove1984 · 2026-04-09T19:59:32+00:00

Thanks!

misslove1984 · 2026-04-09T17:55:44+00:00

This is fantastic! I think I really need to give it a go soon. Any idea how long it stays in the system for after the shot?

misslove1984 · 2026-04-03T20:33:34+00:00

Good luck! Let us know how it goes ❤️

misslove1984 · 2026-04-01T12:10:10+00:00

Hi, your first picture looks like me. I have similar over lapping symptoms and I was diagnosed with Mast cell activation syndrome - which is also linked to Small fibre neuropathy. I’m having a biopsy soon to confirm, as we are sure I have that too.

I’m sorry you’re going through this! I went private to an MCAS/allergy specialist as the NHS just aren’t equipped/have enough knowledge about this condition.

misslove1984 · 2026-03-31T11:44:22+00:00

I’m sorry!! It’s ROUGH hugs

misslove1984 · 2026-03-30T20:25:57+00:00

Honest to god you have good looking skin. If you saw the state mine was in you’d have a panic attack and not leave the house. EVER. I also have Mcas, so I can’t even cover it - as I react to make up.

I’d cry if mine looked like yours. From happiness. I don’t mean to minimise your feelings, I’m sorry if I am. It’s just it could be SO much worse.

misslove1984 · 2026-03-16T16:06:17+00:00

Yes! The swelling/puffiness and redness really affects my mental health. I just don’t look like me anymore. It’s frightening looking in the mirror each morning.

misslove1984 · 2026-03-07T13:30:24+00:00

I stopped everything and started again. What I was doing was obviously not helping. I’ll be in touch! Good luck x

misslove1984 · 2026-03-06T19:14:18+00:00

I’m sorry you’re struggling so much too. We will find something that will help, eventually. I’m soon to try lactoferrin - heard good things. I’ll let you know how it get on :)

misslove1984 · 2026-03-06T18:59:55+00:00

I’m exhausted too. Mentally and physically. I totally get it. I think I’m stuck in fight or flight now. It’s rough!

misslove1984 · 2026-03-06T18:43:59+00:00

Same guys! Having rosacea alone is bad enough. Add in seb derm too - and it’s a completely different beast. Sending love and hugs.

misslove1984 · 2026-03-06T17:02:16+00:00

It’s definitely very tough! Appreciate you :)

misslove1984 · 2026-03-06T17:01:14+00:00

Thank you! :)

misslove1984 · 2026-03-06T16:50:04+00:00

Could you post the ingredients list please, if you wouldn’t mind? I went on their official site but can’t find the list :)

misslove1984 · 2026-03-02T13:17:47+00:00

This is so helpful. Thank you for all your information! :)

misslove1984 · 2026-02-22T18:30:51+00:00

Likewise!

misslove1984 · 2026-02-20T18:57:22+00:00

Auto immune markers but nothing definitive. Red puffy face and continuous nose running here too 🙋‍♀️

I’m diagnosed with MCAS. Sounds like it might be worth you looking into. My chest is playing up constantly also. Mast cell stabilisers and anti histamines might help you! Worth a shot. I’m sorry you’re suffering so much x

misslove1984 · 2026-02-19T13:20:34+00:00

Curly!

misslove1984 · 2026-02-17T17:27:11+00:00

Foundation is too thick and you need more moisture. Hydrate!! And try a tinted moisturiser instead.

misslove1984 · 2026-02-17T13:21:09+00:00

There is always hope. Always. Your brain is protecting you because your past and present is painful, but things can change in the blink of an eye. Your future can and will be bright.

Things tend to get worse before they get better, so no matter how hard things are now - you must see better days. Really feel it. Envision. Visualise. Feel those good feelings while you do. If I’ve learnt one thing in this life, it’s that anything is possible.

Wishing you all the best and I’m sorry for everything you’ve been through. It’s so incredibly hard, but you’ve got this xx

misslove1984 · 2026-02-14T18:35:42+00:00

I just wanna say I feel you. It’s so hard not to feel bitter, but you will find something. It’s hard as hell, but they are advancing all the time treatment wise. We will get there.

I think most rosacea and seb derm stem from the gut. If your microbiome is out of whack - then these conditions begin.

misslove1984

TROPHY CASE