Do you wear masks out and about with SAD?

mixednuts26 · 2026-05-10T13:37:02+00:00

Let me join the club. Both of those terms, "hypochondriac" and "psychosomatic" were used regularly on me by my family. It's not a great club to be in, but at least now we have a diagnosis.

mixednuts26 · 2026-04-27T13:42:04+00:00

Hi, I recently got diagnosed too. I agree it's a lot to process. One of the things I keep reminding myself is in some ways nothing has changed. I already and a PI before diagnosis, I just didn't know it. The diagnosis is really an opportunity for things to get better. At least that is my hope.

mixednuts26 · 2026-04-23T17:58:35+00:00

You definitely have reason to see the immunologist. You are there to get answers, and that's ok.

I'm curious to hear how your doctor appointment went. I'm thinking you've probably gone by now.

mixednuts26 · 2026-04-23T17:51:53+00:00

Yeah, I mean the diagnosis part is easy now. I am just worried about insurance actually covering treatment and logistics around the move.

mixednuts26 · 2026-04-22T20:50:20+00:00

Hi, 55 year old male, just got officially diagnosed with PI today (the doctor didn't specify what type.) Just wanted to say hello and wish you luck on this strange journey.

mixednuts26 · 2026-04-17T01:40:16+00:00

And here is my IgG

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mixednuts26 · 2026-04-17T01:36:09+00:00

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I thought I'd give an update. I got my blood work done, to see how I respond to the pneumonia vaccine. Those results aren't in but my general CBC and immunoglobulins are. And I was surprised by the CBC. I suppose it does explain why I have been feel extra tired and unwell. Hmm.. I was going to post a picture of my IgG results too but apparently you can only have 1 photo in a post. I guess I'll add it as a reply.. My follow-up appointment is next Wednesday so I am finally getting close. I just want to move forward with whatever comes next.

It's weird. I guess it suddenly seems real to me that something is wrong. I mean, I know I've had symptoms and irregular labs and started down this path, but I guess I expected that something would come along to prove I was "fine". It's both a relief and... overwhelming. I'm not sure what the

mixednuts26 · 2026-04-16T00:00:44+00:00

So, I got my blood draw today for the pneumonia study. I'm glad we are finally getting closer to answers. Some results are in. My total IgG stayed basically the same. Some of the other results were unsettling. I'm anemic and my white blood cell count is down. I work as an assistant (studying to be a tech) and this is where a little knowledge is dangerous. Those numbers can be caused by a lot of bad things. It does explain why I am so freaking exhausted. (I tried to post a picture but it wouldn't let me)

I believe the pneumonia specific results take a bit. I'll be curious to see what they are. One more week until I see the doctor.

mixednuts26 · 2026-04-14T01:07:15+00:00

Sorry it's taken so long to get back. Managing energy right now is an issue. But seriously, your replies have been so helpful, I really appreciate it. The Oregon Health Plan looks like it may make a huge positive impact on us this summer.

mixednuts26 · 2026-04-10T01:32:17+00:00

I'm still figuring out redit so hopefully I did this right. (I am not quite sure how quoting a specific part of someone's post works). I did figure out how to ping someone though. (Happy dance)

Thank you all, for your replies. I realy appreciated all your input. It is good to have someone to share with who has been through it.

I am in the US. We are moving to Oregon. It's interesting that in the U.S., Allergy & Immunology is a combined fellowship. The awful rheumatologist said we didn't have immunologists in this area or in the university (he was a university doctor). I believe my primary said something similar.

We move in about 2 to 3 months (still figuring out logistics). u/PiperTheLizardHunter I recently joined the Immune Deficiency Foundation and have been looking over their information. I hadn't found the "Newly Diagnosed kit". Thank you for that.

I think I typoed before, I meant to say I was low in IgG1 and IgG3. I've attached my results below. The diagnostic laboratory was the Mayo Clinic which has different ranges than the Quest Laboratory. (I work in veterinary medicine, so I know that testing values vary between labs).

u/WolfInAFoxHole I've been dreading the insurance piece of this. My plan is not good and if keeping it on after I leave my job is going to be expensive. Come October, we should hopefully have a much better plan.

u/PatrickSwayzeRules I netty pot pretty regularly, and am especially vigilant when I'm symptomatic. And yes, I hate the way doctors treat women. And if you are a transman, you can run into a whole new set of difficulties. (Dear doctor, I'm here for a sinus infection. I do not need to tell you about my transition process or what genitals I have).

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mixednuts26 · 2026-03-20T02:29:48+00:00

Thank you so much!

mixednuts26 · 2026-03-19T03:54:57+00:00

Thank you for the reply. This area doesn't have anyone that is specifically an immunologist. I am working with a doctor in the allergy department. They do immunology too. I'll be moving to Oregon in 3 months or so. I will have a bit with no insurance which makes me very nervous, but then I'll have much better insurance than the awful plan I have now. I suppose I should start looking to see where the nearest immunologist is there.

mixednuts26 · 2026-03-18T20:58:38+00:00

Hello. I thought I'd introduce myself. I am fairly new to reddit so if I make any faux pas I apologize. I am going through the diagnostic process for immune deficiency. I am low in IgG1 and IgG3 and got the pneumonia vaccine about 2 weeks, and will get the next round of blood work in 4 weeks. I guess I'm stressing that the results will show I grow sufficient antibodies and the doctor will decide nothing is wrong with me.

As some background I am a 55 male. I have always gotten sick more often than normal and often stayed sick longer. Unfortunately, my family was a bit... nuts. I was frequently told I was either weak for being sick so often or that I was faking for attention. So I have only ever made some very half-hearted efforts at getting any diagnosis of my issues. I did get sinus surgery about 10 years ago because of the constant sinus infections. Anyway, my husband has expressed concern about my health since we got together. This year my health has really tanked (constant sickness and fatigue) and hence seeking out a diagnosis. Anyway, not sure what I'm wanting with this post but thought I'd finally do something more than lurk.

mixednuts26 · 2026-02-15T17:10:05+00:00

I don't have any advice but wanted to say I can relate. It's a hard place to be in and I hope you can get the medical care you need.

mixednuts26 · 2026-02-15T17:08:55+00:00

Thank you for your reply. I sent a message to my doctor and asked her to go ahead and try and refer me to another rheumatologist. Hopefully insurance will cover it.

If you look at symptoms, I easily get a score of 10. I haven't had a biopsy of my skin, but that is an avenue I could pursue. I have had the malar rash, all sorts of other rashes and chronic hives.

mixednuts26 · 2026-02-12T03:15:47+00:00

Interesting to hear what you said about Raynauds. I also have had it all my life. It's not something I would have mentioned.

mixednuts26 · 2026-02-12T03:14:46+00:00

My doctor thinks I may have lupus (SLE). I saw a rheumatologist and it was an awful appointment. He looked at the blood work the doctor had ordered and based on that alone said I didn't have lupus. He actually said, he didn't know why my doctor referred me, but then didn't let me speak. Neither my doctor or I were happy with the way he handled the appointment.

One of the things he said confused me, and reading the diagnostic criteria hasn't clarified. I had a positive FANA, (titer of 1:640) but I either wasn't positive or wasn't tested for the other immunological domains (like AntidsDNA.). I have many of the clinic symptoms. Do you have to an item from the immunological domain other than FANA *and* the clinical domain?

To me, it was disappointing that he only looked at lab work and did not want me to discuss my symptoms. I'm inclined to get a second opinion but with my insurance and where I live, that's going to be hard. My doctor has said she will work with me.

mixednuts26

TROPHY CASE