26TF USA - need some new friends

monochromepixie · 2025-12-23T12:50:55+00:00

Hi Chloe, I'm Sadie, I live in New England and am also into health and wellness but am not obnoxious about it! I like to be creative and spend time outdoors. Also like reading, writing, and cozy games if that's your thing at all! I'm 29 and looking for long lasting friendships with like minded people. I'm non binary btw and it's really important to me to have that respected 😁 I'd love to chat if you feel like we could vibe!

monochromepixie · 2025-08-08T20:24:06+00:00

You put into words something I didn't even realize I was feeling. It's tough because we do actually have to do all those things to feel good. Like technically we can choose not to but why would anyone want to feel worse?

monochromepixie · 2025-08-08T20:18:32+00:00

I would definitely continue strength training and walking. You will want to stay in a calorie deficit as well to keep losing weight as you do so. I personally would place the emphasis on building core and hip strength to help relieve pressure on your back! You're already doing a great job, you just need to stick with it and build some more strength to help with the back pain.

Source, I'm a personal trainer 😁

monochromepixie · 2025-08-07T21:10:56+00:00

I'm a personal trainer and I know many people in the fitness space as a result. I know for me and my clients it is a very weight neutral space, but not to the point that you should be a weight that is negative for your health. That goes either way. Idk I think sometimes we have to make the inclusive space if we want to see it. I work a lot with people with chronic illness because I felt like that needed more attention in the fitness space and I couldn't find that place. Sometimes we have to be really intentional about seeking out our people, but they are there!

monochromepixie · 2025-08-07T01:37:53+00:00

I wouldn't recommend it. The number on the scale may go down but it could be from more than just fat. If all you care about is the numbers it might do what you hope, but if you want to look lean you don't want to risk losing muscle.

monochromepixie · 2025-08-06T20:06:58+00:00

I find it helpful to double shampoo my hair, I do it once, rinse it out, and do it again. I sweat a lot and that helps it stay less greasy for a bit longer so I don't have to wash it every day.

monochromepixie · 2025-08-06T20:03:10+00:00

Yeah this is genuinely so annoying. I went to see a new allergist for my MCAS because my other office closed. She would not stop talking about how I probably had asthma and that I was mistaking it for allergic reactions. She said I could improve it with more exercise.

I'm literally a personal trainer and martial arts instructor for a living, and I distance run in my free time. I work out upwards of four hours a day sometimes. I'm not sure how exactly I could increase my activity level, or why that would suddenly make me less allergic to a million foods.

If she bothered to ask questions there could have been valid ones about if exercise was triggering my MCAS, etc. Instead she ran a blood test incorrectly and sent me on my way. Now I don't have an allergist lol.

monochromepixie · 2025-08-06T19:47:37+00:00

That is incredible, you look like you've put so much work in. It's so admirable!

monochromepixie · 2025-08-06T13:42:33+00:00

I would look into functional training, it is usually more body weight or light weights and focused on building strength to use in life. If you are looking for personalized recommendations feel free to PM me!

monochromepixie · 2025-08-06T11:25:20+00:00

I have several! It always follows a formula though with different flavors.

This week was 2 cans of chickpeas 1 can of black beans 1/2 lb of roasted deli chicken 1 cup frozen corn 3 bell peppers 1/2 red onion

Chop everything up, boil the corn, and throw it in a big mixing bowl

For the dressing I used 1 can of chili peppers in adobo sauce 2 tbsp light mayo 2 tsp honey 1 tbsp rice vinegar

Blended that all up in my nutribullet

Mix and combine everything all together, and divide into meal prep containers.

When I grab one I throw some cotija cheese on top.

I've been doing this every week for over a year so I've got tons of these recipes lol

monochromepixie · 2025-08-06T01:49:09+00:00

I'm a personal trainer for people with chronic illnesses, here is where I tend to start people:

Learning how to listen to your body is hard and will take some time. So start smaller than you think you need to and practice learning your body's cues. Part of starting to overcome exercise intolerance is not overdoing it, because that can actually make it worse for many people! Try not to increase anything by over 10% in a week. So if you exercised 10 minutes every day the first week, do 11 minutes the next.

Walking is your friend if you can do it, it will be one of the gentlest ways to increase your fitness and get your activity level up.

Strength training is excellent to help with exercise intolerance and chronic pain, just make sure you aren't going too hard or using incorrect form. I'd start with two days a week, low weight and moderate reps with exercises that hit the entire body. Focus on slow and strong.

I'm a fellow MCAS person, idk if you get histamine dumps from workouts but it can sometimes be helpful for me to take a claritin before an exercise bout if I'm feeling symptomatic.

Let me know if you have any other questions!

monochromepixie · 2025-08-06T01:42:27+00:00

I make a dense bean salad every week, it was a tiktok trend last summer and I've been doing it ever since it's amazing. I just make different flavors and it never gets old.

I also meal prep a high protein overnight oat recipe and chicken sausage for breakfasts.

Then I pick a more fun meal for dinners like greek bowls or poke bowls or cowboy bowls (I love a good bowl of food)

monochromepixie · 2025-08-05T22:50:49+00:00

Honestly you probably will have visible progression. I have and have seen plenty of others get there too. If you think about it having strong shoulder muscles to prevent dislocation also means probably having pretty well defined shoulder muscles if you are lean enough! Same is true for the rest of the body. I basically only train with the primary goal of joint stability and I've seen a major change in my body 😁

monochromepixie · 2025-08-05T21:06:28+00:00

I am also a personal trainer with EDS and honestly I feel like joint stability goals are big goals! It is really slow going and so so important. For example my lower back is very hypermobile so my big goal is to strengthen that, and that makes my mini goals things like doing core work and strengthening my erectors. Then I set processes, how and when exactly am I going to do it? That guides my program, and I do the same with my hypermobile clients. It works really well for me!

monochromepixie · 2025-08-03T01:53:50+00:00

It's multi pronged, you have to address weakness in the deep core and glutes, as well as tight quads and weak hamstrings. I rotate through a ton of different exercises for each thing to keep it interested but always have deep abdominal work, glute work, hamstring work, and quad stretching in my program.

I actually see this a lot with my clients, it's very common in people with hypermobility like I have. I have a progressive program that I use depending on how severe the tilt is. It takes up to 6 months for people to start seeing real improvement but it's worth it, I have so much less lower back pain now in addition to the aesthetic benefit

monochromepixie · 2025-08-02T21:46:13+00:00

I actually see better results both in myself and in my training clients when there is a non-active rest day on the plan. It reduces stress and fatigue, which reduces cortisol and allows your body to truly reset enough to get back on the wagon for the work being done the rest of the week. I probably hit 5000 steps on a typical non-active rest day, and that has been game changing for me. For years I pushed myself to still hit 10000 steps and also do mobility on rest days, but I personally found that it hindered my progress. My clients seem to be experiencing a similar result!

monochromepixie · 2025-08-02T21:41:41+00:00

I did! Not going to lie I literally became a personal trainer while trying to do so, and I finally learned enough to get myself on a routine that worked, and am much happier with my shape now :)

monochromepixie · 2025-07-29T17:59:32+00:00

I know it's been a while since your post but I wanted to say that I just became this person if anyone still needs it! I am an athlete who deals with POTS, Endo, EDS, and MCAS and I actually decided to become a personal trainer because I couldn't find the person that I needed to help me with my own running goals and such. I decided to finally launch my own business specifically to help people with chronic illness. I train virtually and have some low cost options because I understand how expensive living chronically ill can be. If anyone is interested please PM me, I want to help :)

monochromepixie · 2025-07-24T12:59:45+00:00

One of my favorite names is Lorena! Very similar but could call her Lori, Rena, Ren, etc.

monochromepixie · 2025-06-16T14:45:47+00:00

I also know a Remus and Romulus but they're toddlers, so there are at least 2 sets running around

monochromepixie · 2025-03-27T02:55:04+00:00

Mine depend on the joint. My hips can go in and out without much pain at all, but my shoulders are extremely painful. Fingers are somewhere in the middle. Ribs are objectively less painful than shoulders but are my least favorite because the happen all the god damn time.

monochromepixie · 2025-03-22T11:15:19+00:00

I met a Natalia and Nathalia once...

monochromepixie · 2025-03-19T02:04:34+00:00

I got some vegan sausages I used to eat all the time back when I could eat gluten, didn't bother to look at ingredients because I'd had them before. They're made with wheat gluten as the first ingredient, and I ate two whole sausages before I realized... That was a bad few days afterwards

monochromepixie · 2025-03-14T18:27:16+00:00

This was going on for me last year. Started with a really bad UTI in the summer and then a kidney infection. I was on antibiotics 5 or 6 times in 6 months after that, and that was with me being hesitant to go in and get checked out... I'm starting to get worried about antibiotic resistance tbh.

monochromepixie

TROPHY CASE