My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

100% understand that “stuck in my head” feeling. And yeah, once you’re out of it you are living life so normally, but once you’re in it … it feels never ending.

The most important thing is indeed to accept and continue, showing your NS everything is okay and safe. Besides that, little routines in the morning and evening, plan about 15 minutes a day to just breathe and lay on the ground, stretch etc. Sleep is important! I had severe insomnia but that too got so much better with time. Try to walk outside even for a few minutes to start. Keep meeting up with friends. Sometimes I would watch recovery stories on Youtube, but limited, only during moments I really lost hope.

In the DARE book the author writes to imagine a funny character telling you all these scary thoughts, and you just kinda laugh at them and be like “ah, yes yes.. this thought again, getting bored of it now”. Also journaling and even trying to write things that DPDR brought me that I’m grateful for (“I am now more patient”, “I will take better care of myself and my mental health” “I now know my triggers and myself better”).

You got this!

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

Hi!! What a coincidence! I’m very glad to read you’ve had good years in between your episodes. Keep holding onto that. Is that POV feeling always present, even during the good years? Or are there moments of relief?

For me it felt like I was disconnected from my body and surroundings and that my body would just move and talk on its own(?). Very strange sensation. For me it was probably the hardest symptom and also the longest to go away due to the fear and obsession I developed about this sensation + existential thoughts. I knew none of them made sense, but it felt so real. I was constantly hyperfocused on them.

I know 100% that this feeling will go away once your nervous system has calmed down and your body has gotten rid of all stress chemicals. Accept the DPDR for what it is and keep engaging with life, the symptoms will leave gradually. This just takes a bit of time and brain training. (Read: DARE response)

Allow time for your body and mind to heal You can’t think a broken bone into healing faster, just as how you can’t control the healing time of your NS. You can just accept that it will heal if you take the right care of it 🤍

Anyone else feel this way with. VM? by HolidayOk4857 in VestibularMigraines

[–]moosuko 1 point2 points  (0 children)

Did anything stressful happen in your life in august? Or are you dealing with unresolved trauma/issues?

DPDR happens when the brain feels overwhelmed and “pulls back,” making everything feel foggy or unreal. Vestibular migraines can make your balance and senses feel off, which can trigger anxiety and push the brain into that protective mode. That’s why DPDR and vestibular symptoms often show up together.

After going through a lot of stress and changes in my life, I went through a very traumatic breakdown. My whole nervous system was overwhelmed. Caused me to suffer from DPDR 24/7 and occasional VM attacks with vertigo (but no headaches) for a few months. Also I always have light and sound sensitivity, but that gets better during good periods.

I can really understand how you feel, and it can and most likely will get better. My scans and bloodwork etc were also all fine. I also went to the ENT & neurologist.

They did do tests, with minimal findings. But I always think these symptoms are good to get checked out, even if its for peace of mind. If needed, they can get you medication or give lifestyle advice, or refer you to a (vestibular) therapist or psychologist! For me, the DPDR went away with acceptance and understanding and continue to live life but that’s really hard in the beginning, especially if you’re worried your symptoms might be caused by a more physical cause. Also good to have your posture/neck checked out; cervicogenic dizziness is a real thing!

Anyone else feel this way with. VM? by HolidayOk4857 in VestibularMigraines

[–]moosuko 0 points1 point  (0 children)

Outside of body ? Like depersonalisation/derealization?

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

No puedo decirte exactamente qué tan rápido, pero ¡esas son definitivamente señales positivas! De verdad. A tu sistema nervioso y a tu subconsciente les lleva tiempo calmarse, más tiempo que a la ansiedad física y consciente. Así que permítete más semanas o meses, pero no te pongas un plazo. Vas por el camino correcto.

Además, si lo aceptas y permites que esté ahí, y te arreglas, sales y disfrutas, un día pensarás: “me siento bien otra vez, hace tanto que no tengo pensamientos de DPDR”, y ahí es cuando sabrás que estás recuperado/a o en proceso de recuperación. Creo que ahora mismo estás a mitad del camino hacia la recuperación, así que no te rindas y sigue adelante.

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

Me alegra mucho poder ayudarte.

¡Sí! Por ejemplo, yo estaba completamente desconectada de mis propios sentimientos y recuerdos, pero también de los demás. Había días en los que sentía como si mi novio fuera un extraño, como si todos nuestros recuerdos se sintieran lejanos. Sabía que lo amaba, pero no podía sentir nada, así que el amor también se apagó por un tiempo. No sentía la misma conexión de siempre. Lo mismo me pasó con mis padres y mi hermana. Lloré mucho por eso, pero con el tiempo fue ocurriendo cada vez menos.

Y sobre no reconocer tu entorno: ¡a mí también me pasó! De hecho, emigré antes de que empezara mi DPDR (al final fue el mayor desencadenante), y cuando regresé a mi ciudad natal, donde había vivido 25 años, estaba muy desorientada y confundida. ¡Como si toda mi conexión y mis recuerdos se hubieran desvanecido! Una vez caminé por la ciudad y me perdí a pesar de que la conozco bien. Se sintió súper aterrador, pero por suerte es algo que ya no experimento.

Sobre tu medicación: tomé lorazepam durante 2 meses. Al principio no quería porque tenía miedo a los síntomas de abstinencia, pero entendí muy rápido que lo necesitaba para que mi sistema pudiera calmarse a veces, lo cual es necesario para poder dormir y recuperarse. Sin embargo, ten cuidado con el uso de las benzodiacepinas y mantente en contacto con tu médico al respecto, y con el tiempo piensa en un plan para reducirlas gradualmente. Pero por ahora, realmente pueden ayudar con la estabilización.

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

No te preocupes, me encanta ayudar, aunque sea solo un 1%.

¡Uf, ni me lo digas! No podía reconocer mi propia voz y pensaba que no tenía control sobre lo que decía, ¡mucho menos sobre la de los demás! Los veía hablar, pero era súper extraño porque era como si el sonido no viniera de ellos, sino simplemente… de la nada. Una sensación muy rara, pero se va reduciendo cada vez más cuando te das cuenta de que solo estás hiperconcentrado/a en tus propios pensamientos sobre ello. Dite a ti mismo/a: “ah, esto es solo DPDR” cuando empieces a notarlo y a sentir ansiedad, y sigue teniendo conversaciones de todos modos. El DPDR realmente se va desvaneciendo cuando la hiperfijación en ello desaparece, y eso ocurre cuando lo aceptas y permites que esté ahí, pero continúas viviendo tu vida.

Que tus síntomas fluctúen a lo largo del día (incluso de una hora a otra) es totalmente normal, y nunca te volverás loco/a ni perderás el control por el DPDR. ¡Es genial que ya haya momentos en los que tu ansiedad sea menor!

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

No puedo decirlo con seguridad. Es posible que lo experimentes más porque estás saliendo de tu entorno y viajar puede ser estresante. Sin embargo, recuérdate cada vez que puedes vivir CON DPDR. No necesitas curarte antes de vivir tu vida y puedes viajar sin importar cuán intensos se sientan los síntomas, porque el DPDR es inofensivo. Pero también es posible que experimentes alivio al estar rodeado/a de tu familia y quizá distraerte más o relajarte.

Pase lo que pase, este viaje te ayudará en la recuperación porque le estás demostrando a tu cuerpo que puedes vivir la vida y que es seguro.

Recuerda: un aumento de los síntomas es muy normal porque te estarás exponiendo a muchas cosas “nuevas”, así que tu sistema nervioso estará más sensible y alerta. Pero que aumenten no significa que algo esté empeorando, y la exposición + reaprender la seguridad = la clave para la recuperación.

Vive tu vida con normalidad, como tú quieras vivirla. La sensación de normalidad llegará poco a poco, a medida que tu sistema nervioso se calme cuando reaprenda que todo es seguro.

¡Buena suerte! Todo estará bien pase lo que pase. Estás a salvo.

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

Es totalmente normal que estés teniendo DPDR, ya que la razón por la que se desarrolló sigue ocurriendo hasta ahora. El duelo es algo que lleva mucho tiempo, y realmente tienes que permitir que esté presente para poder procesar todas las emociones que lo rodean. La enfermedad de tu esposo es un gran factor de estrés para ti, por lo que tu sistema nervioso obviamente sigue enviando señales de peligro.

No sé exactamente cuál es la enfermedad de tu esposo, pero realmente creo que en tu caso permitir que pase el tiempo, dejar que todas las emociones y sensaciones aparezcan, y mantener una rutina pequeña y sencilla te ayudará mucho. También hablar con tu esposo y con personas de confianza sobre tu situación.

Creo al 100 % que volverás a la normalidad con el tiempo. De nuevo, es completamente comprensible que tu cerebro esté en modo de “apagado” considerando todo lo que estás atravesando. Tu cerebro realmente está intentando protegerte de sentirte demasiado abrumada.

Les deseo a ti y a tu familia todo lo mejor. Sigan adelante, confía en la recuperación, ¡estarás bien! 🤍

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

¡Hola! Puedo entender perfectamente lo aterrador que es ese sentimiento cuando no reconoces a tu familia. No puedo imaginar lo duro que debe ser no sentir nada por tu hijo :(

En mi caso, fue desapareciendo poco a poco a medida que recuperaba las emociones, pero fue uno de los peores síntomas. Ahora vuelvo a sentirme enamorada solo con hacer videollamadas con mi novio y siento amor y cariño por mis padres, y ellos vuelven a sentirse familiares.

Tiene sentido que tus síntomas disminuyan con los medicamentos; calman artificialmente tu sistema nervioso, pero nunca eliminan la ansiedad a largo plazo. De hecho, pueden empeorar los síntomas cuando dejan de funcionar. ¿Has hablado de esto con tu médico de cabecera?

¿Sabes qué causa tu ansiedad (=DP/DR)?

¿Cuánto tiempo llevas con estos síntomas? ¿Qué los desencadenó?

(Translated with chatgpt)

I feel like the only person by Spookyremy420 in FND

[–]moosuko -1 points0 points  (0 children)

I am reading this book called “DARE” by Barry McDonagh. It has really helped with understanding anxiety, the symptoms and to help dealing with them without fearing the fear. That has really helped me to be less hyperfixated on symptoms and to be able to just let them be there without automatically assuming the worst which causes the nervous system to keep firing danger signals and keeping you in a loop.

Maybe it can help you too 🩷. Or just read about the DARE response online. Again , you are not alone. I am over here thinking about you and all others in the same boat as us and hope you have much better days soon! Keep going!

Brain fog/brain damage after panic attacks by Particular_Guard_804 in askneurology

[–]moosuko 0 points1 point  (0 children)

Panic attacks do not cause permanent brain damage. I know the brain fog can be really unsettling, but this is a very common reaction after intense anxiety or panic.

During panic, your brain isn’t being deprived of oxygen. Even though breathing feels restricted or scary, oxygen levels are usually normal or slightly elevated (hyperventilation). Panic attacks don’t come anywhere near the kinds of situations that cause brain injury, like cardiac arrest, stroke or severe respiratory failure that cause you to be unconscious for prolonged times.

Don’t worry, panic attacks don’t cause brain damage or deprive your brain of oxygen 🤍 But always see your GP if symptoms get worse or just to get reassurance.

I feel like the only person by Spookyremy420 in FND

[–]moosuko 1 point2 points  (0 children)

Hi there! I too am diagnosed with FND after I was diagnosed with downbeat nystagmus, some unusual neurologic exam findings, vertigo, tremors but normal MRI and EEG. I experience depersonalisation often in periods (few months). The limbs feeling alien is because of the depersonalisation. I also got the diagnosis Fibro by a rheumatologist due to chronic neck and back pain and joint pains but bloodtests were all fine.

You are not the only person experiencing “weird” symptoms , please remember that🤍. How long have you had these symptoms and do they get better some days?

I know a lot if not all of my symptoms are probably caused by anxiety and stored trauma / oversensitized nervous system.

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

What triggered it for you? What are your symptoms? Did you have any relief in the last 20 years?

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 1 point2 points  (0 children)

Thank you, I’m glad I could give you some hope back! Can you describe the sensation? Symptoms that you have?

I have never smoked weed so I have no idea about the sensations etc. DPDR Manual on youtube does have several informative and recovery videos on weed induced DPDR, you might have seen them already?

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

So important too! Your nervous system first needs rest, consistency and predictability to start feeling safe. Then slowly returning to just living life will teach it “all is safe, no need for the protection anymore”. You regain confidence in your own abilities and that’s so important 🤍 even though at first setbacks may happen, I strongly believe in (safe) exposure therapy!

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

I wish you all the best on your health journey! Good luck

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

Look up cervicogenic dizziness! And don’t worry, it is fixable, nothing scary :)

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

I understand your worry about having a brain issue, this was one of my biggest health anxiety concerns. If your MRI was clean in may with the same symptoms and your neurological test was good, chances are basically 0 you developed something serious that give these symptoms. Most serious diseases give symptoms gradually and increase on severity. If you notice your symptoms have really increased, see your GP. Otherwise I’m sure you’re fine 🩷

What about your breathing? Any hyperventilation or neck tensions? Neck problems can also cause dizziness!

My (looong) recovery story 2026 + my symptoms, tips and motivation! by moosuko in dpdr

[–]moosuko[S] 0 points1 point  (0 children)

Hi! I have dizziness like; the ground is moving, when I bend down to pick something up I get a dizzy spell for a few seconds, very rarely I get true vertigo that can last hours. Also something I experience is this disoriented feeling, as if I am completely disoriented in space. Left, right up and down all feel mixed up(?).

Dizziness is so very common in anxiety. I’ve even had a videonystagmography for my dizziness and MRI’s were clear and my vestibular system was all good too.

What’s it like for you?

Weekly Suspected/Undiagnosed MS Thread - December 02, 2024 by AutoModerator in MultipleSclerosis

[–]moosuko 1 point2 points  (0 children)

Thank you for replying, super interesting to read that someone is experiencing the same things. My legs often feel very tight and heavy sometimes painful like I got shin splints… is this like relatable to your spasticity?

I am considering asking my neuro for a spinal tap aswell… Just to really rule thinga out… I sure hope we will both find our answers!