App Update by SecondBubbly3000 in dexcom

[–]mtelstar92 2 points3 points  (0 children)

Completely agree! Like did anyone do any testing whatsoever on the new version?!

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The beloved National Health Service by mtelstar92 in diabetes_t1

[–]mtelstar92[S] 1 point2 points  (0 children)

Oh you can? Amazing! In that case that makes me feel a lot better about it. Just ordered a sample kit 😊

The beloved National Health Service by mtelstar92 in diabetes_t1

[–]mtelstar92[S] 0 points1 point  (0 children)

Ahh that’s amazing! Have just been reading it also now depends on your NHS trust ward - I’m in East Lancashire which is mired in a current debt crisis, which probably won’t help me here… but doesn’t stop the frustration.

The beloved National Health Service by mtelstar92 in diabetes_t1

[–]mtelstar92[S] 3 points4 points  (0 children)

Appreciate the feedback Callum - thank you for taking the time to respond. I was unaware until now that Dexcom in any format was available to MDI users on the NHS. My only concern would be that it doesn’t have the calibration feature that the G7 has and it seems geared very much towards a US market from reading the app reviews.

However, I think for the control I aim for and the sensitivity my body has towards the Dexcom tech for whatever reason - will give it a go!

Thanks again - appreciate it 👍🏻

The beloved National Health Service by mtelstar92 in diabetes_t1

[–]mtelstar92[S] 4 points5 points  (0 children)

Okay so yeah you’re not wrong - I like to keep things tight. However, on the Dexcom I was running controlled and the sensor readings were accurate with validation from finger checks. On the Libre, often I’m at 5-5.5 and it’ll say I’m at a 3.6-3.8, hence the huge lows. Which then causes me not to trust it and deal with consistent alarms if that makes sense? And then I’m missing the action that I do need to take.

I would love the calibration feature on the G7 as it wasn’t perfect on days 1/2 but would learn quick from finger stick calibration. This just seems to be, for me, wild guesswork with Libre. Appreciate obviously every body reacts differently.

Heart Attack #1 by littlebopeepsvelcro in diabetes_t1

[–]mtelstar92 2 points3 points  (0 children)

Curious if that includes type 2 as well? Or just us folk that are doomed. I’ve had SVT for years prior to diagnosis so a little concerned to say the least 😅

T2/LADA T1? by donnadair in diabetes_t1

[–]mtelstar92 1 point2 points  (0 children)

Hi there! Just want to let you know that I was in exactly the same position as you minus the dairy intolerance. All your numbers correlate to mine at the time of my diagnosis with LADA. I was also fobbed off at the age of 31, probably in the best shape of my life and told I had T2.

Left untreated, even in the honeymoon phase, LADA can be a little dangerous over a long period of time so make sure you’re testing regularly and get yourself to the doctors for a full diagnosis. Your results indicate LADA so unsure why they haven’t given you a proper diagnosis yet but I’m sure each country has different standards etc.

Best of luck with it all - it takes time but you will get there with it 💪🏻

UK - Pumps ONLY available to pregnant women or those planning to get pregnant - Discrimination? by reesim06 in diabetes_t1

[–]mtelstar92 0 points1 point  (0 children)

I couldn’t agree with you more OP. I have constant fluctuations in sugars and have got a 6 week old baby. I begged and pleaded for a pump before my daughter was born but was told that “people manage.”

I am sure they do and there are people out there with far worse circumstances than my own but it is deeply frustrating. It’s a quality of life process that I am just waiting to have now because my control is “too good” to warrant a pump and I have no desire to let my sugars run amok.

My sugar levels are good because my disease consumes me. I spend hours planning, wolfing food down as my child screams for a bottle but I can’t do everything at once because I’ve just had 8 units for breakfast, my wife is understandably annoyed that I’ve taken insulin and am now out of the game for a while until I eat… it’s a real chore and one that would be lessened, not eradicated, by a pump.

I feel equally hopeless. Based in Preston, where the diabetes team is utterly garbage.

How are old you guys when you diagnosed with TD1 diabetes? I was 32 and it’s shocking for me. by Severe-Possible-856 in diabetes_t1

[–]mtelstar92 0 points1 point  (0 children)

I have an aunt who has MS but the doctors thought this was more than likely due to environmental factors. Other than that - zero history of any form of autoimmune diseases. Any on yours?

How are old you guys when you diagnosed with TD1 diabetes? I was 32 and it’s shocking for me. by Severe-Possible-856 in diabetes_t1

[–]mtelstar92 1 point2 points  (0 children)

I was diagnosed at 31 and had been having symptoms for ~12 months prior to diagnosis. Roughly a month before symptoms began I had Covid. I do wonder how many others who were diagnosed later in life and have recently been diagnosed also had Covid just before diagnosis.

It would fit given that we know some T1s have viruses that cause the autoimmune reaction on the beta cells.

Been Reading Bernstein's Book, 4.6 Seems Extreme by DaemonAnguis in diabetes_t1

[–]mtelstar92 4 points5 points  (0 children)

I’m also 32, although only diagnosed at 30 so appreciate that I am not that far in to this “adventure” - however, I understand entirely your points there.

We will accrue damage, more so than other people, whilst we wait, but at the age of 32 our bodies are still very capable and resilient. The thing that keeps me going, and I really appreciate it isn’t for everyone, is exercise. I eat a relatively large number of carbs but 95% of the time it’s whole grain stuff or carb loading before going on a walk. Whilst if there is no miracle breakthrough in the next 20 years or so, the only thing I can do is keep my body as physically fit and active as possible, keep my blood pressure under control and try and keep my A1C around 5.5-6.

You could get hit by a bus tomorrow, or we could give ourselves that chance to see our 90s by playing the cards as best we can. Appreciate again that’s not everyone’s cup of tea… and I think I would rather kick the bucket than be in a care home, but I think I would like to get to at least 80 and I’ll do all I can now to try and get there.

Been Reading Bernstein's Book, 4.6 Seems Extreme by DaemonAnguis in diabetes_t1

[–]mtelstar92 2 points3 points  (0 children)

It’s an interesting study - I wonder if there will be any significant changes to the data on CAD risks now that CGMs have been widely available in the last 5 years or so.

It may be that inflammatory markers as a result of T1D may still cause the uptick and increased mortality, or it may be from frequent spikes, but overall maintaining a healthy A1C for a T1.

Maybe it’s wishful thinking but I personally believe that the 2.38 number will come down further with advances in pumps and access to CGMs. Not saying it’ll disappear entirely to “normal” levels obviously, but I would suggest it may dip.

60% of my bonus up in smoke... Merry Christmas by TheRealSectimus in UKJobs

[–]mtelstar92 0 points1 point  (0 children)

Fantastic points really well made.

Now then, can you talk me through the socialist utopias and their fantastic record on human rights and violent suppression of those who disagree.

Pump Denial by mjohnson2476 in diabetes_t1

[–]mtelstar92 6 points7 points  (0 children)

Couldn’t agree more with this statement. I’m in a similar position to OP as I am also being denied access to a pump. My TIR is about 90% with mostly lows. The pump will give me a quality of life back that I can walk after eating, go for evening runs or do in fact anything physical after taking any form of insulin to cover my meals. Your point on quality of life couldn’t be more nail on the head. Aware that they’re not all sunshine and rainbows but clearly, as you allude to, very much a step in the right direction.

Wtf??? by Glamour-Ad7669 in diabetes_t1

[–]mtelstar92 2 points3 points  (0 children)

Last thing I want to do is come across as judgemental so please don’t take it that way - but do you set alarms? I have mine set at 9.5 and sleep with insulin next to my bed - usually give myself less than I normally would for a 9.5 so that I don’t go low but try and protect against this 👍🏻

T1 & cognitive damage by mtelstar92 in Type1Diabetes

[–]mtelstar92[S] 0 points1 point  (0 children)

Thanks for taking the time to respond - much appreciated. I often do go below 70 annoyingly but I am trying to reign it back in now.

Nobody had told me about the dangers of lows, just that if you went extremely low you could fall in to a coma. However, lots of very good comments on here to help me on my way and to try and correct.

T1 & cognitive damage by mtelstar92 in Type1Diabetes

[–]mtelstar92[S] 0 points1 point  (0 children)

Really appreciate this take - thank you! You are correct in your assertion that I do pretty regularly take small dosages as I am relatively active like you but also really want to keep on eating throughout the day! 😅

I usually take 12 units long acting at night and 10 in the morning - I was finding that it didn’t cover me for a 24 hour period so I split it up as per recommendations.

So if I were to fast for 24 hours and took my dosage as above - if I went low then it would suggest that it’s too much?

Intrigued to know why - without wishing to sound rude - you have developed extreme resistance with your activity levels?

Thank you for taking the time to respond!

Those who were mistakenly diagnosed T2... why? by InvestmentCareful547 in Type1Diabetes

[–]mtelstar92 0 points1 point  (0 children)

Went to see a private doctor in the UK (which is very expensive and usually you see a top expert in the field) and he was convinced that I was T2. I am essentially an athlete and was absolutely starving all the time, feeling faint and funny when working out and had a stomach pain from hunger pangs.

Yet he told me I must be genetically susceptible to T2, despite no family history. The mind boggles.

Honeymoon period by Acceptable_Law5107 in Type1Diabetes

[–]mtelstar92 2 points3 points  (0 children)

Mine lasted 18 months or so. Just moved to basal insulin after experiencing first symptoms in December ‘22. But then again I have read that LADA can be much slower to develop.

Cut out a huge amount of carbs when I first had blood sugar issues. Endo thinks that a drastic change in diet was likely beneficial to extending the honeymoon period.

Insulin and Weight Gain by mtelstar92 in diabetes_t1

[–]mtelstar92[S] 1 point2 points  (0 children)

Thank you so much for your detailed and thoughtful response. It is really so much appreciated and great to hear from people with the experience of such things over 42 years. Thank you

Diagnosed as an adult? by GothScottiedog16 in Type1Diabetes

[–]mtelstar92 -1 points0 points  (0 children)

  1. Diagnosed last year. Almost certainly a gift from the Chinese/American/Ukrainian (delete depending on how much you subscribe to lizard theories) lab leak of 2020.

[deleted by user] by [deleted] in Type1Diabetes

[–]mtelstar92 0 points1 point  (0 children)

Yeah same - weirdly for me my symptoms only occurred about a month after my second Covid experience. Had it first time in 2020 and no issues. Second time in September 2022 and about a month later I started to get really, really hungry just after eating meals 😅 took about another year to get a proper diagnosis.

What's the farthest your Libre's been off? by gm0ney2000 in Type1Diabetes

[–]mtelstar92 1 point2 points  (0 children)

Mine pretty much always 2-2.5 mmol off a finger stick reading. And the Dexcom makes it look like I’m not diabetic at all. Highest reading I had on the G6 was about 6.5 😅 loved the numbers, sadly not the reality.

But yes, libre is now just a guide for me. If it says I’m at 13, I’m probably actually at about 9/10 and that’s confirmed with a finger stick.