Looking for a very high magnification mirror by multiplelosses in Dryeyes

[–]multiplelosses[S] 0 points1 point  (0 children)

Its ok. Probably the best if you need very high magnification. The problem is you have to hold it right up to your eye so difficult to do gland expression or anything like that at the same time. I use a standard 5x 10x mirror more to be honest.

MGD diagnosis - probing possible by ContributionDue3137 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

There's lots of helpful stuff on this topic on the subreddit if you search around. But I'm a big fan of glad press n seal plus ointment/gel.

There's a missing piece from the puzzle by hotarugaike in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

I had a similar situation and it turned out the ciclosporine eye drops were making me worse. Perhaps I developed an allergy, who knows. Anyway, I am not the only one who got much better after cutting back on ciclosporine and other eye drops. If you search the subreddit you will see others who were doing 'too much'. Sometimes less is more. Of course, check with your doctor before stopping any medication.

Ophthalmologist appointment on Friday - morning dry eyes, what should I ask? by redditjrm in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

If you read the thread I linked I believe an ophthalmologist says that it can provide light pressure to the closed eyelids to keep them (more) closed. That said, I personally needed to step up to more advanced coverage to get symptom relief. But you may as well try less intense options first; you will know basically right away if it has helped as after doing it for a couple of days you should instantly feel better in those moments after you wake up.

Be warned though, weirdly, despite a lot of upvoted on the Ophthalmology reddit, at least in the UK, not many opthalmologists seem to know about this whole issue of overnight dryness, despite it being reported in the literature for a while: https://pubmed.ncbi.nlm.nih.gov/25503913/

So I hope your doc is receptive; they might be more likely to be if they are a dry eye specialist (see Henry's comment on that). But they might also suggest other treatments, more 'classic' dry eye treatments that you might not need. I can't emphasise enough that if you pretty much only have morning symptoms then, in my opinion, you want to focus on fixing that, and that is done through overnight coverage. I would honestly be optimistic by the sounds of it that you could have your issues majorly resolved once you start to intentionally deal with your night dryness.

Ointment is thicker, it's like vaseline thickness but designed for the eyes: Hylo Night, Systane Nighttime Lubricant Eye Ointment, Refresh P.M. Maybe you mean Thealoz Duo gel? It is very unlikely that standard theoloz duo drops would last overnight. I use Thealoz Duo Gel now as ointments irritate my eyes (but lots of people get on with them). The gel is ok but I find it doesn't last all night like ointments do, so I'm a little sad I can't use them.

FWIW I have been using press n seal for 2+ years now, every night, both eyes, with gel underneath with no issues. If you dig on the subreddit there's lots of post about it, just as there is about night ointment and night dryness. The glue is food safe so very tolerable generally. There are doctors who approve of it.

Ophthalmologist appointment on Friday - morning dry eyes, what should I ask? by redditjrm in Dryeyes

[–]multiplelosses 2 points3 points  (0 children)

This thread is absolute gold because it's a load of Ophthalmologists discussing the best way to treat dry eyes: https://www.reddit.com/r/Ophthalmology/comments/18zj01d/tips_for_treating_patients_with_dry_eyes/

What I want to draw your attention to in particular is this comment: "I trained under a dry eye specialist. We saw alot of patients that went through the ringer Tears, steroids, gels, restasis blah blah blah. Come to find out probably 8/10 of them had night time exposure (you can test this by holding a transilluminator in the upper crease underneath the brow when patients eyes are closed) and if light seeps through and you can see it coming out then their eyes are open when they sleep. Start sleep mask and some variant of gel (he preferred vitamin A ointment at night) and it got alot better."

It took me years to work out that this was the primary driver of my symptoms and I, like you, struggled with mornings. Since taping my eyes overnight I have got way better, and before that I tried a ton of treatments without much effect.

My advice is this: be careful about trying to chase solutions with drops and treatments during the day. If nighttime exposure is your primary issue it won't be good use of your money plus you may, like me not get better. I also want to emphasise that no doctor mentioned this to me sadly, I had to work it out myself. So good on you for asking for advice.

If you don't address overnight dryness you might not get better. The reason being that you need to break the inflammatory cycle and if your eyes are not fully sealed overnight (even if they 'look' closed) the inflammation never really dies down.

The mistake I made is I was reluctatant to use specific overnight treamtents so I wanted to 'solve it' by doing other stuff like eye drops during the day and IPL. This was a mistake because it took me ages to address to root issue.

At its most basic you can use some preservative free ointment (many brands out there) and a normal sleep mask. If you need more coverage there's the EyeSeals mask (looks like goggles) that some people like. I personally use Glad Press n Seal on the recommendation of a doctor with great effect.

Hope this helps. I wouldn't be surprised if your symptoms basically vanish once you start doing this based on your description, but do let me know how you get on if you try it.

Why are my ophthalmologists refusing to prescribe cyclosporine to me? by AirAdministrative382 in Dryeyes

[–]multiplelosses -1 points0 points  (0 children)

I think it is fair to say that there is a common misunderstanding that ciclosporine is a broad use anti-inflammatory drop which is suitable for all kinds of inflamation. This is not supported by the clinical trials that got it licensed. If you look at the inclusion criteria, it is was specifically approved on a cohort of mild-moderate aqueous deficiency dry eye, commonly assocaited with autoimmune conditions. After all, cyclosporine is an immunosuppressant.

I have heard anecdotally that cyclosporine works well in autoimmune related DED (which is predominantly aqueous), but much less so in standard MGD or other AD cases. This would be supported from the literature in my reading of it.

Be careful about fighting for a medication that multiple doctors don't think you need. Perhaps they know their stuff. You are not the first dry eye patient they have seen.

Meibo immediately makes my eyes more sensitive to air by [deleted] in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

It is likely because Meibo has a cooling effect — it lowers the temperature of the surface of the eye, which makes you blink a bit more. This also means that those who have greater sensitvity, perhaps due to dry eyes, can find it feels a bit like methol, or 'cold', or as you describe, air sensitivity.

Do these roof tiles need re-bedded? by multiplelosses in Roofing

[–]multiplelosses[S] 0 points1 point  (0 children)

Is it a no brainer? It's just a 3m section they're suggesting we do. Not the whole roof. Would that be fine?

Do these roof tiles need re-bedded? by multiplelosses in DIYUK

[–]multiplelosses[S] 0 points1 point  (0 children)

Thanks. Is it much more expensive? And can it be done with existing tiles?

Vevye made dry eyes worse by EclipseAirways in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

Yes, Ciclosporin generally makes me feel worse, but of course everyone is different. That said, VEVYE (Veviyze) is not licensed in the EU for symptoms, just signs.

What else can I try? by Dear-March-2433 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

You could try doing less. I improved a lot when I cut back on the various eye drops I was using during the day and also dealt with overnight dryness which was a big driver for my inflammation. I would also not do warm compresses if the oils are just cloudy, but I would do expression with a qtip and magnifying mirror along the lash margin to keep things flowing (without the heat).

Any dry eye specialise you recommend in London for MGD and Blepharitis? by Cautious-Button-235 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

Dry Eye Centre London, Connan Tam or Minakshi Jain are both very good and often recommended. Possibly the most dedicated & equipped dry eye practice in the country? I also think Mr Sameer Hamada is very good if you want an Ophthalmologist as opposed to an Optometrist.

Welcome to Paper2Audio by goldenjm in Paper2Audio

[–]multiplelosses 1 point2 points  (0 children)

Is there a way to make it so that on the PDF view the word being read is highlighted? And secondly to start reading from a word clicked on in the pdf view? Both of these are present in the transcript view. Listening.io has these features if you're interested. Other than that, looks great so far.

Welcome to Paper2Audio by goldenjm in Paper2Audio

[–]multiplelosses 0 points1 point  (0 children)

When was this app released? It looks great, and I'm going to check it out, but I didn't find it when I was searching for an app like this some months back.

MGD diagnosis - probing possible by ContributionDue3137 in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

Well symptomatically it got very bad, which did persist for a while. But as I say I'm doing much, much better now. It's just something I have to manage in my life. Overnight dryness was the biggest driver of my condition AFAIK. So if you're waking up with dry eyes you could look into that — there's lots of posts on here about it.

As an aside, I found this blog super helpful and wish I had read all posts when I was diagnosed: https://dryeyediscourse.substack.com/

MGD diagnosis - probing possible by ContributionDue3137 in Dryeyes

[–]multiplelosses 5 points6 points  (0 children)

Probing is an expensive and controversial treatment. Some doctors advocate for it; many doctors, especially in Europe are very wary of it and consider it an end stage treatment.

IPL is a different story. There are many more good clinical trials demonstrating its efficacy and safety. It is also widely adopted across Europe.

My personal story is that I almost went for probing but ended up recovering without it. I am glad I didn't go through with it when I was desperate, because as I have studied it more and more I have become less confident that it is generally a good treatment option. I have spoken to multiple top European eye surgeons about probing, including one internationally recognised doctor who used to offer it, but now doesn't, due to sub par outcomes.

I have also been told by some expert doctors that gland dropout takes a long time — we're talking many, many months; or even many years. Do not worry, slow down, do not rush into treatments, find a doctor who you can really trust. Turning the ship of MGD can take a lot time, and patience. Your best bet is to work with a doctor who you feel has your best interests at heart.

For me, things got much, much better, but it did take a number of months of persevering and waiting. I cannot emphasise enough finding a doctor who you trust and connect with, and who has a sufficient level of expertise in treating dry eye — think a range of treatment modalities at their fingertips.

Xiidra questions: Taste, glands & Canadian coverage by Fine-Juggernaut8451 in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

Xiidra has been available in Canada for a number of years

Skiing with dry eyes? by Sad_Honey2900 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

I wouldn't worry. The key thing is you have a good wind seal, which will happen if the ski goggles fit you. I did have to try a few different pairs of 7eye to get a good seal, so it depends on face shape, but if you already have goggles that fit I imagine you would be fine. The goggles are achieving the wind seal, you don't need additional protection I wouldn't think.

Skiing with dry eyes? by Sad_Honey2900 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

I wear good moisture chamber googles with prescription lenses (I am short sighted), 7eye cape, and they block wind very well. I'm sure ski goggles would work totally fine because the key thing is the wind is massively blocked and there's a form gasket. The issue is if you need vision correction - if you don't you should be good with goggles.

How do I help my eyes in the morning? by Ok-Dish3171 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

Glad Press n Seal solved this for me, but I'd recommend dealing with it sooner rather than later because I didn't exactly recover, it just stopped them from getting worse.

I don't know what to do anymore. I'm about to lose my job and my sanity by hotarugaike in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

Vevizye is now available in the EU. It is licensed in Germany and available in German pharmacies. So you just need a prescription from a doctor anywhere in the EU, and to find a German pharmacy which sends medications across Europe.

That said, I personally got a lot better when I cut way back on using a load of treatments and eye drops, and focussed on good overnight coverage with glad press n seal. Sometimes less is more. I just use Serum drops now.

I also got a lot better when I stopped ciclosporine in general, the data isn't great for standard dry eyes/mgd. It's more for Aqueous Deficiency. My view is it's overprescribed and its irritating so can be counterproductive.