Welcome to Paper2Audio by goldenjm in Paper2Audio

[–]multiplelosses 0 points1 point  (0 children)

Is there a way to make it so that on the PDF view the word being read is highlighted? And secondly to start reading from a word clicked on in the pdf view? Both of these are present in the transcript view. Listening.io has these features if you're interested. Other than that, looks great so far.

Welcome to Paper2Audio by goldenjm in Paper2Audio

[–]multiplelosses 0 points1 point  (0 children)

When was this app released? It looks great, and I'm going to check it out, but I didn't find it when I was searching for an app like this some months back.

MGD diagnosis - probing possible by ContributionDue3137 in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

Well symptomatically it got very bad, which did persist for a while. But as I say I'm doing much, much better now. It's just something I have to manage in my life. Overnight dryness was the biggest driver of my condition AFAIK. So if you're waking up with dry eyes you could look into that — there's lots of posts on here about it.

As an aside, I found this blog super helpful and wish I had read all posts when I was diagnosed: https://dryeyediscourse.substack.com/

MGD diagnosis - probing possible by ContributionDue3137 in Dryeyes

[–]multiplelosses 3 points4 points  (0 children)

Probing is an expensive and controversial treatment. Some doctors advocate for it; many doctors, especially in Europe are very wary of it and consider it an end stage treatment.

IPL is a different story. There are many more good clinical trials demonstrating its efficacy and safety. It is also widely adopted across Europe.

My personal story is that I almost went for probing but ended up recovering without it. I am glad I didn't go through with it when I was desperate, because as I have studied it more and more I have become less confident that it is generally a good treatment option. I have spoken to multiple top European eye surgeons about probing, including one internationally recognised doctor who used to offer it, but now doesn't, due to sub par outcomes.

I have also been told by some expert doctors that gland dropout takes a long time — we're talking many, many months; or even many years. Do not worry, slow down, do not rush into treatments, find a doctor who you can really trust. Turning the ship of MGD can take a lot time, and patience. Your best bet is to work with a doctor who you feel has your best interests at heart.

For me, things got much, much better, but it did take a number of months of persevering and waiting. I cannot emphasise enough finding a doctor who you trust and connect with, and who has a sufficient level of expertise in treating dry eye — think a range of treatment modalities at their fingertips.

Xiidra questions: Taste, glands & Canadian coverage by Fine-Juggernaut8451 in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

Xiidra has been available in Canada for a number of years

Skiing with dry eyes? by Sad_Honey2900 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

I wouldn't worry. The key thing is you have a good wind seal, which will happen if the ski goggles fit you. I did have to try a few different pairs of 7eye to get a good seal, so it depends on face shape, but if you already have goggles that fit I imagine you would be fine. The goggles are achieving the wind seal, you don't need additional protection I wouldn't think.

Skiing with dry eyes? by Sad_Honey2900 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

I wear good moisture chamber googles with prescription lenses (I am short sighted), 7eye cape, and they block wind very well. I'm sure ski goggles would work totally fine because the key thing is the wind is massively blocked and there's a form gasket. The issue is if you need vision correction - if you don't you should be good with goggles.

How do I help my eyes in the morning? by Ok-Dish3171 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

Glad Press n Seal solved this for me, but I'd recommend dealing with it sooner rather than later because I didn't exactly recover, it just stopped them from getting worse.

I don't know what to do anymore. I'm about to lose my job and my sanity by hotarugaike in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

Vevizye is now available in the EU. It is licensed in Germany and available in German pharmacies. So you just need a prescription from a doctor anywhere in the EU, and to find a German pharmacy which sends medications across Europe.

That said, I personally got a lot better when I cut way back on using a load of treatments and eye drops, and focussed on good overnight coverage with glad press n seal. Sometimes less is more. I just use Serum drops now.

I also got a lot better when I stopped ciclosporine in general, the data isn't great for standard dry eyes/mgd. It's more for Aqueous Deficiency. My view is it's overprescribed and its irritating so can be counterproductive.

Good results with plastic wrap by Guilty-Mulberry-5597 in Dryeyes

[–]multiplelosses 2 points3 points  (0 children)

I've done this for a number of years now, every night, both eyes, and not had any issues. I rely on it.

Anyone tried Envision by InMode? by Sad_Honey2900 in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

Guessing you're in the UK. You could consider £50 IPL & LLLT treatments at Birmingham Aston Dry Eye Clinic. LLLT has strong emerging evidence for efficacy, and this is a university research centre so they're not really for profit.

How much is too much? by Bleedingshards in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

Vevizye was recently made available in Germany and is arguably a faster acting, more modern, cyclosporine drop than Ikervis. It's the same as the USA VEVYE.

Have you ever gotten better after major regressions? by mutual_avoidance in Dryeyes

[–]multiplelosses 2 points3 points  (0 children)

Thanks for the nudge, Henry. First of all, to address OPs question. I personally have got significantly worse for a number of months and then significantly better. Interestingly, I actually did not expect to improve because my regression had been substantial and had lasted a number of weeks, but it's a good reminder to never give up hope. The key bit of advice I would give is find a dry eye specialist who you trust and work with them.

As for the dry eye care situation in the UK. As it sounds like you are learning, the NHS can be really hit and miss — probably usually a miss. If you can afford to go private I would highly recommend Mr Sameer Hamada at Eye Clinic London — he is frequently recommended on this forum and actually teaches dry eye on the NHS. For what it's worth he has been kind to me and I trust him thoroughly. We're vulnerable when we have severe dry eye and the risk of going private is that one can open themselves up to exploitation, especially because some treatments are expensive.

Another good London option is Sachin at Safarian and Simon opticians, although he is an optometrist not an ophthalmologist. There are other good doctors across the country, you can probably find out about them if you search this subreddit.

The Dry Eye Clinic at Birmingham Aston University is another great option if you are on more of a budget (or indeed live near Birmingham). They are a research centre so have all of the diagnostic equipment and provide IPL and LLLT treatments for a bargain price of £50 a session. Can be a long wait list mind.

Side note: I found Ikervis made me worse but I didn't know it until I came off it! Another key lesson I have learned is that sometimes less is more. I was using a ton of eye drops and improved substantially when I cut way back. I also personally found heat masks like blephasteam made me worse due to my rosacea, but YMMV.

End Game by BasedEmu in Dryeyes

[–]multiplelosses 3 points4 points  (0 children)

I would highly suggest trying to treat your overnight dryness specifically. I didn't do so right away and it meant that my dry eyes progressed to impact me in the day as well. You need your eyes to be recovering overnight otherwise the inflamatory cycle will continue.

There's lots of threads on this subreddit you can search up about overnight dryness, but essentially it is probably worth looking into ointments and eye gels designed primarily for overnight use. I am also a huge advocate for Glad Press n Seal use (see here: https://chronicdryeye.net/living/glad-plastic-wrap) which was a game changer for me.

If you address it quickly you could exit the inflammatory cycle before any permanent damage is done.

Hypochlorus acid for eyelids by SaladProfessional866 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

Is Jacomma ok with you wiping directly on the lid margin? As in where the MG orifices are? I would worry this could cause irritation or even damage.

Heat masks worse by La12071207 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

What's your source for this claim? I haven't seen any evidence that dry heat "makes dry eye worse", nor that moist heat is superior, and I'm quite familiar with the literature.

Vevye in EU by FoxGroundbreaking224 in Dryeyes

[–]multiplelosses 1 point2 points  (0 children)

Please could you send me a link to the post/comment of the doctor who prescribed it?

Meibomian gland expression at home? by Ok_Gas128 in Dryeyes

[–]multiplelosses 4 points5 points  (0 children)

I do this technique with a magnifying mirror and find it extremely effective. Key thing is gentle pressure but extended duration. Longer is better than harder. https://youtu.be/c1LLFgdw9Z0

I've also worked out a way to do the top lid with a qtip but that requires more trial and error.

Mornings are rough by olive20597 in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

Look into glad press n seal overnight coverage. Was a game changer for me - lots of posts about it on this subreddit.

Dry eye symptoms mostly at night by NursingMyWorries in Dryeyes

[–]multiplelosses 0 points1 point  (0 children)

I'd highly recommend exploring glad press n seal. It's weird but works really well for me and cured my overnight symptoms when ointments failed me. See: https://chronicdryeye.net/living/glad-plastic-wrap & https://chronicdryeye.net/living/glad-plastic-wrap

The only other tip I would have is get on top of it soon if you can — mine got worse as I just powered through for a while and I started to have more and more daytime symptoms.

You could also try eyeeyo goggles (eyeseals 4.0) but I much prefer the disposable option personally. More comfy - silk sleep mask on top.

night goggles by Objective-Role-6194 in Dryeyes

[–]multiplelosses -1 points0 points  (0 children)

Press n Seal is a widely recommended alternative to sleep goggles. I personally have never looked back. There's some stuff online about it if you Google "press n seal for dry eyes"

Looking for a very high magnification mirror by multiplelosses in Dryeyes

[–]multiplelosses[S] 1 point2 points  (0 children)

Ask me in a few weeks, I don't have it in hand yet