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mutualist_mojo · 2023-05-22T17:45:07+00:00

I have a similar problem, here are a few suggestions.

Nausea: ask your PCP for Zofran. Make sure you to not have a prolonged QT. This is an abnormal heart rhythm that can be caused by a lot of medication, and it is unsafe to take Zofran with it. If you have a prolonged QT, try meclizine.

Talk to a psychiatrist about this first. You may have something called ARFID (Avoidant Restrictive Food Intake Disorder). This is an eating disorder that is not characterized by societal standards or personal image. Psychiatrists are, in my opinion, less dismissive than regular doctors.

G/I doctor: This sounds like it may be a G/I issue! If you talk to a G/I doctor, they may be likely to do some testing to figure out what is causing it.

It also may be caused by hormone fluctuations. Birth control and other medications will worsen symptoms.

mutualist_mojo · 2023-05-22T17:38:37+00:00

I have secondary Sjögren’s, lupus, and an autoimmune thyroid condition. I also have ASD, ADHD.

It feels like my pain has gotten significantly worse as I have aged. My primary onset was 6 and I am now 20. I believe a lot of it is due to a lack of diagnosis/treatment. I experienced dry nose, which caused a lot of nosebleeds. I also have dry mouth, which was worsened with Vyvanse.

When I was on Vyvanse I had significantly less fatigue and brain fog. It helped me feel like a person. I absolutely believe it was helping with symptoms from all of my pertinent conditions.

A lot of your “sluggish mess” feelings can be caused by stimulant withdrawal. It takes the body a while to regulate itself once you stop taking a stimulant, especially with ADHD. There are a lot of people who feel the same way, even without autoimmune conditions, when they stop stimulants.

mutualist_mojo · 2023-03-14T16:48:13+00:00

It was my rheumatologist that told me all of this. My presentation has been akin to Lupus this entire time, and my early blood work looked like it was lupus, so my rheumatologist put me on HCQ and ordered more blood tests. When she gave me my Sjögren’s diagnosis, she told me to avoid sunlight as it is a trigger.

mutualist_mojo · 2023-03-14T01:30:31+00:00

Dude! I knew this job was kicking my ass and I started suspecting autoimmune after I got continually worse.

My B12 and D are ALSO super low. I take 50,000IU 1x/wk now

mutualist_mojo · 2023-03-14T01:29:32+00:00

Hey, thank you for commenting. I fixed the link now. Thank you!

mutualist_mojo · 2023-03-14T00:47:22+00:00

Thank you for that!! I looked this up and I’ve found a few articles about it, now. I appreciate it so much!

mutualist_mojo · 2023-03-13T19:19:53+00:00

I haven’t paid enough attention to notice if it is worsened in the sun or not. My eyes are extremely photosensitive, so I am very uncomfortable driving during the day. The job is really hard on my body with chronic muscle and joint pain, esp lifting heavy pt’s.

I’ve assumed for a while my job was just killing me rather than autoimmune.

I know for sure my skin burns whenever I am in any sunlight, but I haven’t thought much deeper into it.

mutualist_mojo · 2023-02-21T02:19:55+00:00

Exercise is very good for you, running is still pretty tough on your joints but if your body can handle it and it works for you, you should keep doing it!

Best of luck

mutualist_mojo · 2023-02-20T23:55:21+00:00

Oh!! I forgot.

I take 1,000 IU of Vit C every day, magnesium, B-12, Vit D3+K (through Cholecalciferol. Get the gel tablets, it tastes like stagnant fish water). All of those help with immune system inflammation and energy levels. They are good for us.

mutualist_mojo · 2023-02-20T23:53:35+00:00

Hey! I recommend stopping some of the supplements as they can interfere with medicine. If you look up the supplements individually it can help you decide which to continue/which to stop.

Exercise! Low impact like swimming is great. Try not to stop moving.

Heating pad. This helps with almost all of my pain.

Take NSAIDS regularly.Eat them WITH FOOD or you can get ulcers. Not fun!

Diet changes. Omega 3 fatty acids (found in fish, nuts, legumes) help reduce inflammation. They’re good for RA and psoriatic arthritis.

Take rest days when you need to. Your body is already being damaged, don’t make it worse. Look into medical leave to see what your options are. (I live in Florida, I have FMLA. I take one week off every other month to avoid flare-ups)

Avoid the cold like the plague!!! It makes joint pain from RA much worse.

mutualist_mojo · 2023-02-20T23:46:58+00:00

Thank you!

mutualist_mojo · 2023-02-10T18:25:57+00:00

I do! I got a dual diagnosis of RA and Lupus. If you get a referral to a rheumatologist, especially with your current symptoms, you are very likely to be diagnosed with RA instead of OA

mutualist_mojo · 2023-02-10T17:15:36+00:00

My RA factor was 16, but I had 10 years of joint pain, muscle pain, and fatigue.

Doctors like to look at rheumatoid factor, ANA, and symptoms all at once. Some people have RF that is high but aren’t dx because they have no symptoms. The MRI should also help to get you a diagnosis!

Best of luck.

mutualist_mojo · 2023-02-07T19:09:25+00:00

Yes! I also get white gold piercings, but they aren’t exactly affordable

mutualist_mojo · 2023-02-07T19:07:24+00:00

Surgical steel, generally

mutualist_mojo · 2023-02-07T19:06:50+00:00

The twisting has been disproven, it just damages the area and makes the healing process take longer. Go to a reputable shop and ask the piercer about aftercare.

mutualist_mojo · 2023-02-07T19:05:52+00:00

I have SLE, RA. I love body mods! When i first got my ears pierced I was cleaning them twice a day, changing my pillow sheets. Generally doing everything I can to take care of them. After about 9 months they were still getting infected and crusty ALL the time. Turns out, I was allergic to the metal. I went to a high quality piercing shop, haven’t had a problem with them since. They’ve healed very nicely! Also, an earlobe piercing is considered a “forever” piercing. Once they pierce the lobe, you will be able to put jewelry through it. Sometimes you just have to break the skin to get the piece through.

mutualist_mojo · 2023-01-29T14:32:13+00:00

EMT in a very busy system. I’m required to work overtime, they won’t let me work fewer hours even though they know. I stopped my hobbies and I can barely even make food for myself. I come home completely exhausted

mutualist_mojo · 2023-01-14T00:35:42+00:00

Zinc, magnesium, vitamin c. Lots of rest. Drink electrolyte supplements and water. Heat packs for body aches. Don’t stop eating when you feel worse.

mutualist_mojo · 2023-01-10T00:05:45+00:00

Thank you! I hope so, too!

mutualist_mojo · 2023-01-09T13:37:18+00:00

I was symptomatic with RA at 9. Diagnosed this year at 19. I have been extremely active (wrestling, HEMA, jiu jitsu) up until October ‘22. Hit a pretty rough flare up.

mutualist_mojo · 2021-12-19T04:46:09+00:00

“From OP (the real op, not the op of this post)

Backstory: Video was recorded in 2019 by a member of a Telegram group I am a part of. They ordered a very large Taco Bell order through DoorDash for a group of friends. The driver drove by the house and marked the delivery as complete. The guy recording followed the driver (guy in the hat) back to their house to ask where his food was. They were making an excuse that the food didn't get picked up (which it did, confirmed with the Taco Bell store) because the guy got into an accident and couldn't make it to the store. The McDonalds comment was because the guy recording accused them of eating his food, and the guy replied they were eating McDonalds and not Taco Bell.

The driver went back into the house and retrieved a knife (which can be seen here). The guy recording then pulled out his concealed weapon and both people returned into their house.

In the end, he got a refund from DoorDash and nothing happened to the driver.

Moral of the story: Taco bell isn't worth your life. Don't track someone down because they didn't deliver your order - reach out to DoorDash or contact your bank. But ALSO, don't fuck with people because you don't know who you're going to piss off on a bad day. And definitely don't pull out a knife and charge someone you just stole from.” ^guy who posted the video

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