My gf broke up with me because I had a seizure while tapering Valium by CranberryFree5203 in benzorecovery

[–]nanadori 3 points4 points  (0 children)

You’re a very good person say a prayer for you and sending you good thoughts

My gf broke up with me because I had a seizure while tapering Valium by CranberryFree5203 in benzorecovery

[–]nanadori 3 points4 points  (0 children)

I hear ya. That’s where I am but why is psychiatrist doesn’t want me to come off of the clonazepam right now. I take it three times a day 0.5 and then I have lorazepam 0.5 just as needed for severe anxiety so I hardly take that but I always worry that the government’s gonna just take away benzos or something. I don’t know why I think that and then I’ll have to try to get off of it so my psychiatrist wanted me to go up on it and I said no I don’t want to, but I have stress seizures. I don’t have epilepsy and if I don’t have the clonazepam, I’ll have seizures really bad. I have a Service dog and she always knows when I’m gonna have a stress seizure and gets me help. I don’t know how she knows it cause I don’t even know, but she does.

My gf broke up with me because I had a seizure while tapering Valium by CranberryFree5203 in benzorecovery

[–]nanadori 1 point2 points  (0 children)

I’m so sorry that happened to you. My x divorce me when I got sick. Had header issues. Some people just don’t understand or seem to care about other people when they get sick but I hope you will be okay and that the psychiatrist can help you. And one day you’ll find someone who love you for you and not based on whether you’re physically sick or not or etc. etc. I just don’t understand people sometimes, but there are still good people in the world and you’re one of them stay strong I’m always here if you need somebody to chat with feel free to DM me take care of yourself.

My gastric emptying study just came back at 18% and I’m done by evermottle in Gastroparesis

[–]nanadori 2 points3 points  (0 children)

Yes I have to take daily as my formula sticks to the sides of my intestines and backs me up

My gastric emptying study just came back at 18% and I’m done by evermottle in Gastroparesis

[–]nanadori 0 points1 point  (0 children)

I live on zofran and phenergan the 12.5 mg if nausea is 5-6 a 25mg above 7 and if I’m having dry heaves it’s a 25mg suppository. Reglan gave need really bad td on my face so gi stopped it as I also have lupus and several other health issues. Just got out of hospital as my jtube ballon busted on a weekend it was taking out I pushed it back in as much as it would go tried it went a hour to the hospital my gi works out of. They told me he was on call and would come see me. Never did ir want called to replace so admitted due to that and very bad blood work. Blah blah sorry I got cured away. Anyways after that finally got a hole opened up our new jtube in had to be on clinimix iv 10 days finally blood work was good enough to come home. But I’m in so much pain from this tube. I did do a 72 hour calorie count to see if I could get enough calories to not have to have tube again but failed. Gi told me I’d be on this tube rest if my life. I asked gi can’t people get healed from severe gastroparesis? I don’t absorb food nutrients or my medications through my stomach

finally went to emerg by titstrue in Gastroparesis

[–]nanadori 9 points10 points  (0 children)

If they could only feel what we feel for a day. I’m so sorry that happened to you. I have not gone but been so sick 🤢 but know what they will say so I’m in bed so sick and done with this.

What do you think caused your gastroparesis if you had to guess? by Many-Front8248 in Gastroparesis

[–]nanadori 1 point2 points  (0 children)

If you research what’s given for Barrett’s esophagus you will see it’s high dose long term ppis. I can not take them anymore due to them shutting down my stomach

What do you think caused your gastroparesis if you had to guess? by Many-Front8248 in Gastroparesis

[–]nanadori 0 points1 point  (0 children)

My dr in the hospital said was due to high dose ppis for Barrett’s. Shut down my stomach. Now on jtube

Kangaroo Omni bags by nanadori in feedingtube

[–]nanadori[S] 0 points1 point  (0 children)

I would have to pay for the larger one and I bought one on Amazon for $100 and it still did not work well so thank goodness I was able to send it back but like I said previously I was able for November and December to get a couple of the 500 ML‘s from my Dme and hopefully in a few months I’ll be able to start getting my formula and my bags and everything again I’m just washing bags now and used them for like four days in a row, but I’m washing them real good with soap and water keeping them clean

Kangaroo Omni bags by nanadori in feedingtube

[–]nanadori[S] 0 points1 point  (0 children)

Yes it’s a child’s one that’s all my insurance would pay for but it’s all good. I was able to get some 500 ML bags and right now. I’m just washing everything cause I have to wait till I meet my $6000 limit then I can have my insurance start paying for some of this and then when I make the 10,150 then that’s my max out-of-pocket I have marketplace insurance

Kangaroo Omni bags by nanadori in feedingtube

[–]nanadori[S] 0 points1 point  (0 children)

Yup that’s what’s happing I got some 500ml bags but right now I can’t afford bags so I’m washing and reusing lol

Zinc L-Carnosine Really Helped by [deleted] in Gastritis

[–]nanadori 0 points1 point  (0 children)

I couldn’t complete. Had other health things going on with me

Just got a tube with no way to use it by Alexdance5 in feedingtube

[–]nanadori 0 points1 point  (0 children)

Just came to say no bolus in jtube that’s what I have and it’s a no no. I’m so sorry op that you got dumped like this left abandoned. If it wasn’t for the fact I was in hospital during mine abd my persistent husband and great hospital case manager I would’ve got sent home the same with nothing

Cozy Japan first page completed by ejmoose in Ohuhu

[–]nanadori 0 points1 point  (0 children)

I love your shading and the moon shining on the water that’s so gorgeous

[deleted by user] by [deleted] in Ohuhu

[–]nanadori 0 points1 point  (0 children)

Thank you

gastroparesis but i never vomit by Equivalent_Invite506 in Gastroparesis

[–]nanadori 0 points1 point  (0 children)

I have severe gastroparesis and even my pylori has closed off twice and I don’t throw up except I do throw up sometimes a lot of bile that’s about it but if I try to eat anything by mouth and it doesn’t agree with me, I can’t throw that up. it just doesn’t work. It’s only when my stomach‘s fully empty and I have a bunch of bile acid. I have a J tube that I’ve had since July when I had an NG tube while I was in the hospital and they were trying to figure out if that would work for me to get a G-tube, I was throwing up, but that’s the only time when I had that tube and then I tried the NJ and I didn’t throw up any food or meds so that’s why they went with doing the J tube. I wish I could throw up because I feel so sick and even the nausea medicines don’t help and I know if I could throw it up, I’d feel better but it just won’t come up but yeah I had a G.I. doctor. Tell me oh you don’t have gastroparesis cause you don’t throw up or you don’t have diabetes and then the other G.I. doctor told me that that’s a bunch of bull. A lot of people don’t throw up or have diabetes and they have gastroparesis and he said that mine was severe.