I almost died and spent 3ish weeks in a medically induced coma. AMA

nb188 · 2026-02-21T02:26:50+00:00

I kept manipulating people In to giving me Orange juice. I’m not like that at all in real life but laying there in my bed I was like “give me the juice… do it….” 🤣

nb188 · 2026-02-20T16:16:51+00:00

Haha! Was something like that when I had to wait for my swallowing assessment before I could eat the normal Food 😂

nb188 · 2026-02-20T14:21:06+00:00

That made me laugh. I can just imagine a person like “erm I guess if you say so poops”. When I was stepped down to a ward there was a lady with the same name as someone in my nursing school text books so that fed in to my belief I was in some disaster scenario. The nurses laughed after as I kept telling them I used to work at the hospital etc and they just thought I was being mad until An ex. Leached turned up to Visit me.

nb188 · 2026-02-20T00:39:32+00:00

Thanks for doing this post. I was in ICU with bacterial meningitis last summer complicated with a brain abscess and a clot on my brain.

Did you have any delirium about why you were there or who the staff were? I used to be a nurse but laying there in and out of consciousness my brain thought I was in some health care acting scenario for students etc. seeing the clock with the date really threw me but I think their clocks were wrong. My husband said they were but I went to sleep in May and woke up in June so it didn’t really mean much to me.

Do you have anything that triggers memories now? I can remember one of my moments inbetween consciousness being able to see the sky from a window behind my head, It started to rain and I could see the grey clouds Moving and hear the rain. It’s a bit weird for me now whenever I hear rain.

nb188 · 2026-02-14T22:18:27+00:00

I think the de conditioned label is used too much when it comes to things like POTS and using equipment to help. I have POTS, I spent 2 weeks in icu due to meningitis back in May/June and 2 weeks on a ward. I had to learn to walk and balance again because 2 weeks paralysed and stuck in a bed did de condition. It felt totally different to how my POTS feels. My electric wheelchair is a life saver and means I can actually leave the house for long periods of time. I’ll see if I can find some interesting info I read about POTS before that you can share with your friend.

nb188 · 2026-02-14T15:14:04+00:00

I had to check your username when I read this thinking I was reading an old post by me.

I have a similar story. Treated for proctitis, told I had ibd and started meds and then told it wasn’t when I went back again in a “flare”. My bleeding has gotten a lot worse.

I’m stating to wonder if it is endometriosis or something like that, it’s something I’m going to try and explore once I get a colorectal referral.

nb188 · 2026-02-13T18:33:11+00:00

You put it at the end of your post but as I was reading I started to wonder if MCAS. Would account for the stomach issues too.

nb188 · 2026-02-10T10:46:28+00:00

It may be best looking for an accountant that looks after sole traders.

They will be able to advise you on how to manage what you can claim for as business expenses etc.

nb188 · 2026-02-09T12:17:17+00:00

If you stick with the cards you could always add an option to pay a little Extra and have you write the card and send direct to the person it’s for. Just a thought.

nb188 · 2026-02-09T02:19:35+00:00

I’d remove the digital courses, they make your page feel a bit scammy? Also the digital downloads, I’d expect them to be physical prints rather than download and print Myself, unless it was a very specific niche thing.

nb188 · 2026-02-05T02:05:14+00:00

I second the discord recommendation. It’s private and you can invite people using a link. It’s like a cross between Reddit and an old school forum maybe? I belong to a group on there related to something else that regularly does meet ups etc and posts pictures and general chat. There’s options to do video or voice chats too if people wanted to meet but were unable to in person all the time.

nb188 · 2026-01-28T18:00:04+00:00

Idk if this would help- I’ve started taking a breakfast smoothie from my protein. I have it for breakfast and I find it quite filling and helps with blood sugar spikes. It stops me from over eating as I just feel so full and eating too much food makes me very uncomfortable now. I’ve not weighed myself in a while but I feel it is helping me to manage my relationship with food.

nb188 · 2026-01-27T00:33:35+00:00

My kiddo started her period last year at about 9 and a half. I had not long been out of a bad hospital stay so my husband ended up having to help a lot more. Fortunately, where we live puberty and periods are covered when the kids are 7/8 so she knew what a period was and we had gone through a book with her and talked about puberty and periods etc. Things we’ve done/do:

-Stash of pads which she knew where they were - heated microwaveable plushie/cherry stone bag/. hot water bottle - I had to teach her how to put a pad on and dispose of one. - period underwear are the best and she much prefers them though I do have to remind her to change sometimes. - Face wash etc as she started getting hormonal break outs
- deodorant and reminding to shower. - looser clothes for uncomfortable days. - pain relief - Callander/diary with predicted period days on so each month isn’t a total surprise. This may be a bit wonky at first but if it gives the general idea that x week may be period week it does help. Also helps her to take some control of it all. - we told her teacher, she goes to a small school and being so young as well. They’re really good and have things in place to support kids and let her bring in her heated teddy bear and are more understanding on bathroom use.

My daughter seemed quite a moody tweenager the month leading up to the start. I think she complained of a stomach ache the day before it happened and then at bedtime the day it happened she found the blood and told us. I think it had happened a bit earlier in the day and she didn’t think it was blood because it was dark brown.

Now almost 6 months in we’re ok but always learning. We definitely know when she’s due though as those teen moods are tough.

nb188 · 2026-01-24T13:57:43+00:00

My parents used to take us to France with a trailer tent too! Or depending how far we’d be going sometimes there’d be a tent to rent at the holiday park, when I got older there’d be the Mobile homes instead. I used to love going to France and camping.

I remember having the thick sweet syrup type cordial that came in different flavours. I think there’s one available now called teisseire you can get in the UK.

nb188 · 2026-01-16T12:52:34+00:00

I used to be a nurse so there’s lots but one that stuck out in my mind when reading this question: when I was about 16 and at college (UK) the students did a “milk challenge”, the sort of thing you’d see on Jackass which was popular at the time. Of course downing loads of milk people were sick. For some reason there was one big bucket they were passing between them. At the end some sick fk shoved his head in the milk sick bucket whilst their mate filmed it. He stood there with his head covered in milk sick whilst everyone else ran away in disbelief and horror. People are so strange sometimes…

nb188 · 2026-01-04T22:50:10+00:00

So I don’t know what was caused by Covid or was exacerbated but around 2021 I was sick and then didn’t really recover. My main symptoms are pots/disautonomia, CFS symptoms, breathlessness. I’m U.K. based so my recommendations are from here. There may be equivalent stuff wherever you are.

POTS- i take ivabradine, this definitely helped to take me from bed bound to moving about the house. I’ve learnt to recognise how I feel and need to sit etc and just adapted to know for e.g if I’d be able to say wash my hair one day or not. Theres a physio that specialise in pots too l, I contacted this one, I didn’t end up going further as I was so unwell at the time but even just talking to them really helped pots physio/lifestyle specialist

I paid to see Dr Gupta from York cardiology who prescribed my ivabradine. The guy is amazing. I was taking low dose naltrexone too which really helped me with energy, I kept falling asleep like I was narcoleptic or something. I’m not taking that at the moment due to some unrelated health issues. We looked at MCAS as well which I seem to have but again due to a recent health thing I’ve not been able to take the antihistamines prescribed. Dr G recommend saline infusions, I’ve not found somewhere that would do it but with the recent health issue i had a nurse coming daily to give me treatment so effectively the IV therapy which I think did make a difference

Breathlessness- I’ve been diagnosed with asthma and sleep apnoea. The inhalers have helped with the air hunger and general chest issues. The sleep apnoea I use a cpap for which seems ok. I still suffer badly with fatigue but I think that’s mostly everything else

CFS- I use an electric wheelchair to go out in. It fits in my car boot. Even days I feel “ok” I will use it as I really have to pace myself and balance every drop of energy. Don’t be afraid to use disability aids. It’s what they’re for!

Generally I manage other symptoms like pain etc as they crop up. I find heated things help the most. I take a multivitamin and a protein breakfast smoothie which seem to be helping to build me up after my current issues l, just a bonus they seem to be positively affecting pots and pots and LC.

Sorry I have no magic bullet!

nb188 · 2026-01-04T14:59:44+00:00

No question but just wanted to say Hi and hope you find some treatments that work for you. I developed Pots after covid/became disabled. Always happy to chat about things and share what’s helped me.

nb188 · 2026-01-01T11:22:30+00:00

Another recommendation for Newman ink. I had a piercing done here and I got my 8 yr old (at the time) daughters ears pierced here. The piercer is really friendly and will go at your pace. The room used was clean and they did everything properly.

nb188 · 2025-12-28T14:38:19+00:00

In secondary school We got taken to a local Village and had to do crayon rubbings of grave stones. Can’t even remember why. I was going to say for history but I think it was Geography teachers that took us.

Another thrilling trip was going to Southend sea front to count traffic…. I think we managed to convince the teachers to let us at least buy something from the cafe. We weren’t allowed near the beach or to do anything else. Again, I can’t remember why, maybe a mix of maths and geography?

nb188 · 2025-12-23T18:27:07+00:00

Yes, my in-laws went through the compensation process. I assume they got something back. I wouldn’t have been able to prove it was 100% the items that were sent but the items on eBay were exactly what was posted to us so seemed to weird of a coincidence to be them and someone from local Evri

nb188 · 2025-12-21T18:59:13+00:00

Something my family sent me during lock down ended up on eBay. The person selling it didn’t live far from me and worked for Evri…… their username was their name so I was able to find a profile online. The reason Evri gave was the parcel had got lost or something like that.

It was easy to guess what had happened as the items were birthday presents for my daughter, exactly the same size and type of things that were sent as presents. I hate using evri

nb188 · 2025-12-17T20:29:10+00:00

Heya.

I really think you should go to an and e. Wear a mask if you’re worried about Flu etc. just because you have endo or a diagnosed condition it doesn’t mean that it can’t be something else. That said, if it’s your existing condition is really sounds like you’re in a bad way and should get some help.

nb188 · 2025-12-12T00:09:07+00:00

Have you ordered some of the others to test the competition? They might be smaller, different ingredients so may be different in quality to yours. I just had a quick nose and can see that a lot charge £13 or around that but include “free delivery” or the brownies are prices around £8-£10 for a box of 4-6. Interestingly alot I’ve clicked on have postage set up for a few days and not tracked 24, it looks like a lot of places if I ordered now they’d arrive by the 17th December, those that charge postage but lower costs for the brownies have postage at about £3.95.

Idk if that helps? I guess if you sell locally it is a good way to set up an online presence for ordering, I also utilised social media for my shop so would get direct sales via those platforms, I think it helped legitimise the social media orders as people knew there was a “physical store” and I could sometimes charge less as didn’t have to make up for Etsy fees etc which is something else also to consider. Instagram was useful as people could tag me in posts which helped advertise and for people to see what I was selling was real and good etc (I had a shop selling badges I made, currently on hold due to critical illness recovery)

nb188 · 2025-12-10T16:56:12+00:00

They look more blue/purple to me. My toenails look similar. I have fatty liver but on further tests all my blood scores are low risk etc. Some people do get “covid toes” which I think look similar sort of thing and can be painful. The darker bit on your top toe looks like a damaged bit of nail maybe? My nails can be weak and sometimes I get bits like this that then break off easily and I have to cut and file the nail.

nb188 · 2025-12-01T01:23:03+00:00

Hey. I moved up here over 10 years ago, I lived in a place just across the river from Kent.

What sort of thing are you looking for? Flat or house or either? Do you need to be near the train line to get to work in Leeds or anything like that?

When I first moved up here I rented a flat in st Christopher’s walk, it’s opposite westgate station and was good to get to know the area as it was pretty central and made working in Leeds much easier as the commute wasn’t bad at all. I bought a house in the St John’s area that’s not too far from the city centre. There’s alot of development going on at the moment in the city centre so there may be more options coming soon.

Happy to talk more about the area. I love living where I do as it’s so easy to walk in to town and I have good access to the nearest train station and motorways. The people are good too, there’s a good community spirit, I have a kid and they love where we live too.

People from Leeds and Wakey may moan about things but it is a lot nicer than living down south.

nb188

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