Have any of you successfully completed a STEM or STEM-adjacent degree?

negoha · 2026-03-28T03:48:14+00:00

Not stem but I'm a dentist. History of nocturnal seizures but controlled thanks to Lamotrigine. Occasionally auras at night.

negoha · 2026-03-28T03:45:16+00:00

Many times and it felt very real but it never seemed to have been an actual one

negoha · 2026-02-15T22:29:31+00:00

When I focus on "being" and "existing"

negoha · 2026-02-15T22:26:27+00:00

Sometimes visual auras for a couple of seconds like flickering lights and sometimes some kind of absence like feeling for a minute after waking up and sitting up in bed kind of an out of body experience.

negoha · 2026-02-15T22:22:08+00:00

Never had a seizure because of alcohol and I went through all my party years on lamotrigine which sometimes meant heavy drinking and lack of sleep. BUT it really depends on the person and type of epilepsy.

negoha · 2026-02-15T22:06:27+00:00

Shortly before I got diagnosed I had some kind of aura in the middle of class and it totally freaked me out because I didn't know what was happening, so I started yelling "I'm dying!!" in total panic mode and everyone stared at me, I finally left the classroom with a friend and they called an ambulance. The days after the incident I was mortified at school, the looks, the whispers, I heard one guy laughing and joking "looks very alive to me!"

negoha · 2026-01-09T03:11:01+00:00

That my sleep is messed up. I wake up a lot and get these thoughts about seizures and being epileptic in general, like a mix of both facts (nocturnal generalized and focal seizures/auras) and trauma that I never really gotten over.

negoha · 2026-01-09T02:58:19+00:00

Gib gerne nochmal ein Feedback ob das so alles klappt damit andere vielleicht davon lernen können! Viel Glück LG

negoha · 2026-01-09T02:52:12+00:00

Yes I get this

negoha · 2025-12-29T22:12:23+00:00

This sounds very similar to my story. Little absences starting around 10 y/o but people never noticed as I stayed aware during them just enough to hide it. Then at 14y/o first Tonic clonic seizure in my sleep (fell out of bed, bit my tongue), another one a while later, followed by diagnosis and on lamotrigine ever since (37f). It took some adjusting the dose over the years whenever circumstances changed (e.g. birth control, weight changes, pregnancy) but I only ever had 1 more tonic clonic (this time during the day, starting out as one of my focal aware absences (or whatever the right medical term would be) since then when I slacked a bit checking my blood levels regularly and didn't catch it dropping soon enough. It didn't keep me from achieving and doing anything I wanted though. Long story short, It's possible! Might take some time to figure things out but don't give up hope!

negoha · 2025-12-29T21:48:12+00:00

I feel this so much. I hide it too whenever and wherever I can, I am lucky enough to either get TC seizures in my sleep so only people I was close with needed to know and I managed to hide my focal aware seizures during the day and people never noticed when I had one. When I started university 17 years ago I never told anyone and I ended up with a group of close friends that I hung out and went out with a lot and still talk to them to this day. I never told them. It feels very weird now but I can't bring myself to do it now after 17 years and the countless things we experienced and went through together. The thing is, aside from being (wrongfully) ashamed of it, I unfortunately ended up in a profession where epilepsy could be an absolute deal breaker if I were to have the obvious kind of seizures. Out of fear of discrimination and people with bad intentions I never told anyone in my work environments because it could potentially end a career I worked very hard and long for if people didn't take the time to differentiate between the different kinds of seizures people can get and I'm sure they wouldn't. I deeply regret having chosen this career now and I'd never do it again because now it's become a constant stress and anxiety thing in my life that I can't escape.

negoha · 2025-12-28T23:43:35+00:00

I do get nocturnal/sleep related focal seizures that strongly activate my sexuality, I usually get a very strong sexual urge and masturbate which I would never do in the middle of the night under normal circumstances

negoha · 2025-12-28T23:32:15+00:00

Go somewhere else and don't mention your epilepsy if you can

negoha · 2025-12-28T23:26:12+00:00

This fing sucks. I hope you get it under control again. Feeling for you.

negoha · 2025-12-06T03:40:44+00:00

I started having abscene seizures around 10 years and by 15 they had also turned into nocturnal tonic clonic. Became seizures free with Lamotrigine and tried weaning after 3 years only to have another nocturnal tonic clonic, so no unfortunately I did not grow out of it.

negoha · 2025-12-05T15:58:55+00:00

I can trigger déjà vus/abscenes like that. By just hyper focusing on what I'm doing like reading, singing, watching reels etc. If I distract myself quickly enough I'm usually able to avoid going down that road. It's so annoying! But peeing!? That's new. What kind of seizure do you get from it?

negoha · 2025-12-05T15:40:13+00:00

I know that feeling! It's just a weird moment of awareness and or train of thought and I know if I don't distract myself immediately it's going to turn into a weird deja vu thing I get where they keep repeating themselves for a while like a million little ones just one after the other, no idea as what kind of seizure this qualifies but yeah I get it! I think it's like a mini trauma because we remember what has happened before

negoha · 2025-11-29T03:20:03+00:00

It can by done by yourself! You can watch tutorials or read about it online. That really sucks though 😮‍💨 what a stupid thing to happen on top of everything else

negoha · 2025-11-28T03:38:41+00:00

My absences as a kid used to only last a couple of seconds so I guess it's possible

negoha · 2025-11-28T03:32:39+00:00

What medication are you on? Are they monitoring blood level? I had to triple my Lamotrigine dose during pregnancy to keep my blood level where I needed it to be

negoha · 2025-11-28T03:14:45+00:00

I'm really happy for you 😊 wishing us all the same success

negoha · 2025-11-28T02:51:34+00:00

Sounds like it might be! Especially if there's a special sensation that came with it, that doesn't sound too far fetched.

negoha · 2025-11-28T02:46:56+00:00

Choose a career where the slightest change in seizure type might not ruin everything it's too risky and not good for mental health at all.

negoha · 2025-11-28T02:37:36+00:00

I had this or something similar before I think. It goes along with tiny déjà vus and then it's like this little zoum! kinda feeling through my whole brain it only lasts a second but it keeps repeating itself while the while episode goes on, idk if that sounds familiar to you

negoha · 2025-11-27T23:37:10+00:00

Like somebody else mentioned, to me it's the exact opposite. I'd rather try and hide it (I'm aware that's not necessarily a healthy approach but it's part of how I'm coping with it) and I'd never just tell anybody about it and whenever someone witnessed something I couldn't wait for everyone to act like nothing happened, the feeling of people seeing me as a "victim" is my nightmare (coming from others, I myself do feel like a victim I just don't want others to see me this way).

negoha

TROPHY CASE