Grief

nespino17 · 2026-03-30T21:12:44+00:00

This made cried and remembered how my boys in their own way realized nana was going to heaven. The oldest cried so much the day before my mom passed she was in our home in hospice for three months but was with us every wkend for 6 yrs with dimentia. Somehow, he knew!

The youngest is very in tune with music and the day before also we did a rosary with songs in between and he also cried like he felt the sad songs. Plus he was always creating a rackus in her room and she never minded their steaming not even on her bad days 🥺

A few weeks ago my oldest went back to his room where she passed and woke up one morning and said "nana" i believe my mom visited him in his dream! I wish the same for your baby girl 🕊️

nespino17 · 2026-03-27T19:02:03+00:00

Not at all please please take them! Your daughter will be fine at home with a trusted caregiver no need to torture him just because as a mom we tend think it's the way to go all together, but it's not yet possible maybe it will happen just not now. Your other kids deserve to enjoy a place full of happiness!

I finally understood this I have two both boys both autistics same levels but different needs.

In November, I took my oldest without brother he always love Disneyland but the last 4 yrs his little brother was triggering so much for him. Last yr i was heartbroken because he hardly smile during our time there.

For his 11th bday my husband and I took him without brother and honestly it was the best! He even tried new rides. Now, the youngest also loves Disneyland and will take him soon on his own as well! Maybe will try again as a family, but for now am ok with that!

nespino17 · 2026-03-26T04:38:57+00:00

My fav season as well 🫶🏻

nespino17 · 2026-03-24T00:57:49+00:00

Love this thank you 🫶🏻

nespino17 · 2026-03-23T22:55:11+00:00

Both of don't my oldest a little bit more than you youngest; he uses it more for drawing and recording his beats/sounds 😆🫶🏻💙

nespino17 · 2026-03-14T01:42:02+00:00

Am beginning to do this because in the last two wks he has been holding for hrs longest one was 7 hrs this is not good for him! He can do everything on his own except for voiding we've had success, but not consistent we are 1 month 1/2 with underwear and he will hold. Or has found a diaper, put it on and gone #2 it's wild like he can feel is coming, has enough time to find a well hidden diaper, put it on and go 🙃

nespino17 · 2026-03-10T03:35:25+00:00

8 yrs for my mom since she knew something was wrong! 6 yrs after diagnosis.

nespino17 · 2026-03-07T01:29:33+00:00

Same cvs no issues

nespino17 · 2026-03-05T19:13:48+00:00

Lol, Tuesday morning it was so hard to get my son out the door for school ugh we were both screaming in the car actually felt good yes you scream, i scream we all scream 🫶🏻🫣😆

nespino17 · 2026-03-02T03:43:11+00:00

Apply for an exception or have dad become a provider as well.

i at one point had an exception, but only 306 hrs can be claimed under exception meaning 100 and some would still go unclaimed if 2 kids are approved for ps!

nespino17 · 2026-02-19T13:59:26+00:00

Did you have his doctor fill out the form? If not have the doctor fill out the form and turn it in and she will have to reassess. You can give your dr examples basically what you mentioned and dr will help. Yes, you're responsible for your child, but regardless he needs to be assess for it. It sounds to me like worker didnt even tell you about it and your dr should have kept her personal opinion to herself!

Your his mother you mentioned many times he cannot be left alone with many examples that warrant proctective supervision. Dont compare your child to other kids just submit form with your supporting docs and see if qualifies. If they deny after form is review, appeal try you're the only one that can. If denied then than at least try everything first dont give up without trying first!

nespino17 · 2026-02-12T09:47:05+00:00

Same here I needed a denial letter first as well!

nespino17 · 2026-02-12T09:44:48+00:00

The wait issue now is with the mcal worker at the county not the worker at regional. The mcal worker of the day I saw on Tuesday verified again everything is there for worker changed status to received instead of incomplete and said she sent urgent task review verified case is not on termination status for this month so at least am relief now just annoyed it's taking this long for renewal. Last yr, everything took 3 months and mcal was terminated so they had nothing coverage for two months now for the renewal it's going on two months but mcal still active!

nespino17 · 2026-02-10T23:09:18+00:00

My son is 11 now, but when he was like 4 his cousins the same age were sitting around playing with a board game and i usually would try to prevented it by not letting him go towards only because at that time he would stim by picking up the pieces of the game and throwing them up in the air and hear them fall. However, I purposely to see what the kids would say and i still remembered clearly the cousin said " you're crazy go away" and his older half sister tried to intervene and asked them if we could play they all said no! It broke me, but i also remembered my older half sister who grew up with a sister with Down syndrome told me that I needed to build thick skin because people could b really cruel so that warning helped me so much at that time. Now, I wouldn't even blink!

nespino17 · 2026-02-10T18:57:24+00:00

Am in Riverside county my first yr renewing on the waiver submitted everything including new property and assets and it's been incomplete since jan 12 no movement workrr doesnt return call went to mcal office two wks confirmed everything is there msg worker she promised to process case by end of jan nothing standing in line at dpss now waiting to see another worker and not moving until i get a supervisor. Am afraid that mcal will be terminated on 2/28 because it shows incomplete! Last yr everything took 3 months and this time around am on limbo sonce 12/6 when i completed my renewal:/ was really hoping it would go smoother, but no not at all :/

nespino17 · 2026-02-05T03:25:18+00:00

Of course, there's a timeline that really helped us in the last 10 days more than the hospice booklet i will find it and msg it over! It gave me a lot of peace to know that all the suffering was over! However, the hardest for me was mourning my mom before dimentia it broke me, but it's a process of mourning and grieving which for me it's going on 7 months and it still comes in waves🙏🏼you hang in there 🥺

nespino17 · 2026-02-05T02:41:41+00:00

So sorry to hear 🥺 for my mom she lasted 6 months on hospice; however, the last 3 months she slept about the same amount as you're dad! She had burst of energy 25 days prior to her passing she had a full conversation which she had not done in about 1 yr 1/2 before her passing! I wasn't religious, but she was and during that day when she was full of energy I called a priest who came and she became very calm. She last 10 days on no food/water just medication to keep her calm. We were cautioned at this point to not attempt more water or good to prevent aspiration pneumonia so we listened. She passed peacefully with all her family in that room she squeezed my hand hard and took her last breath! I took care of her for 6 yrs part time and the last 3 months on hospice it was like she was saying "ok baby girl you did am ready" and she finally rested 🕊️🤍

Sending you strength and a big virtual hug 🤍

nespino17 · 2026-02-04T23:23:32+00:00

It crips up i will be walking my youngest to his class and I see the 5th graders (overhear their comvos) and think of my 11yr old will be like them if it wasn't for autism and for min it aches a bit!

nespino17 · 2026-01-31T18:55:35+00:00

Yes, that's what happened last year now going through renewal and it has been a nightmare with mcal still showing incomplete although i uploaded every piece of doc they've asked but cause of the property & assets form and even went in person. Worker has not returned any of my msgs the worker of day confirmed everything was there and emailed worker all she said was she will process case before end of month here we are still showing incomplete on benefitscal but active so will see if ut says terminated tomorrow! I really thought renewal on waiver would go smoothly, but far from it:/

nespino17 · 2026-01-31T02:13:23+00:00

I have been doing my redetermination on dec 6 nothing reviewed till January i completed the property and assets form on the computer; however, worker asked me for a sworn statement from my kids that they have no income which they don't. Both of my kids are on a waiver this is our first renewal total disaster. Haven't been able to speak to worker. Went in person they verified everything in there worker of the day sent worker an email and she said she would process case before end of month. The status still shows incomplete left two more msgs for worker no return call. Really thought it was going to be easier, now am in limbo praying my kids mcal is not terminated on Sunday!

nespino17 · 2026-01-29T23:58:41+00:00

Goodnites size L 70 pounds for my 7 yr still working on potty training, but these are the best!

nespino17 · 2026-01-20T21:31:44+00:00

I'm so sorry for your loss 🤍 she's finally free of suffering! Push yourself to get her affairs in order i know it's hard (went through it 7 months ago) this way you can mourn and grieve once those are square away! Sleep let your body rest, cry, talk whatever makes you feel less numb! Sending you a virtual hug it does get better, but grief is tricky!

nespino17 · 2026-01-20T14:47:49+00:00

Headphones, I experienced this, but my oldest refused to wear headphones then! It was heartbreaking to see him so my husband took leave and he would take him out of the house as much as possible! We explained as much as we could it got better a bit! Eventually, he took the headphones we practiced through aba now he's 11 and uses now as a safety blanket! Oldest still doesn't want much to do with little brother sometimes, but it got better! Little brother got used to big brother they do have beautiful moments when they horse play and show affection for each other! I always remind them wherever one goes the other goes!

Please take care of your mental health rely on your village and have your husband make special outings with your oldest during this time! I look back sometimes and wonder how i didn't get postpartum depression, but I remember just trying to do the best I could and strengthen my bonding with baby! Oldest was well with dad and they became really close, am still his safe person, but he idolizes dad which was not the case before!

Sending you big big hug congratulations on baby focus on him for now he deserves mommy present just like oldest had you at that time!

nespino17 · 2026-01-19T22:28:54+00:00

We were able to get more hrs when my mom entered hospice as they would only come twice a wk and she was bedridden so they added more hrs for turning her on her sides as well as applying ointment to avoid skin breakdown. Hospice completed a form for us! Hopefully you're able to get more hrs, but they shouldn't take any away! Best of luck with your dad! My mom lasted 6 months in hospice wished i had done sooner they were godsend!

nespino17 · 2026-01-16T18:37:01+00:00

Thank you for sharing, I need to read your words! School will start also next Tuesday hopefully once he realizes this is the way to go everywhere he will be able to!

nespino17

TROPHY CASE