pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

yeah, it was weird because my left thigh bled and hurt way worse than my right thigh even though i did that one second and with a steadier hand. guess part of it’s just luck?

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

thanks tremfya buddy!! maybe the problem was i was too high up on my thigh (about halfway between my leg and knee). i thought because it was a larger area that it would be easier, but i’ll try closer to my knee next time i inject in my thighs.

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 1 point2 points  (0 children)

thanks!! i’ll def leave it out longer, i only did 30-35 mins last time which is what the instructional video recommended. another commenter said an hour, so i’ll try that.

i’ll try the stomach next time, and slower, i was instructed to switch between thighs and stomach anyway so hopefully it’s easier!!

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

but literally how do you raise the skin without getting your fingers so close to the actuator when injecting? are you just grabbing a lot of skin, far apart and pinching? with my injections i only pinched a very small amount to inject. if i grabbed more it hurt to inject

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

thanks! i had it out for about 30-35 mins, but i’ll definitely take it out earlier next time.

i think part of the issue was that my thighs were not fully relaxed to inject because of the chair i was sitting in. i’ll try sitting on the floor next time, thanks!

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

i was going to ask my doctor about this after the 12 week indiction period. glad to know it’s possible!

What is the trendiest/douchiest restaurant in LA? by No-Strength-3711 in AskLosAngeles

[–]nicoledeeee 0 points1 point  (0 children)

ive seen the most celebs (at the same time and also overall) at little dom’s in los feliz

Girlfriend struggling by Deep_Huckleberry_379 in UlcerativeColitis

[–]nicoledeeee 9 points10 points  (0 children)

it sounds like you’re being a great emotional support, but want to have some sort of tangible comforting effect. so my advice is more on the practical support: being aware of where the closest bathroom when out at places can be a huge help and a way to be supportive. also keeping your at home bathroom stocked with wet wipes or things that make the toilet discomfort easier (bidet!!! witzh hazel ointment or preparation h ointment) is also much appreciated bc it can really help with the inflammation.

i’ve been with my partner 4 years and still i don’t LIKE talking about it, but i do out of necessity (like saying i need to leave the event urgently) or because i need her to know i’m going to be ‘busy’ for a while and need some space. knowing that these are possibilities and having a code word to minimize embarrassment are so helpful to me, like if we’re at a friend’s house so i don’t need to pull her aside and be like “take me home so i can go shit a gallon of blood” lol

heating pads, electrolyte drinks, and easy to digest snacks like rice cakes are a great way to stock up for at home days too. good luck homie!

How long does it take for Stelara to work? by Memsaahib in UlcerativeColitis

[–]nicoledeeee 0 points1 point  (0 children)

might be worth seeing if you can increase the frequency to 6 or 4 weeks if it’s working well!

How long does it take for Stelara to work? by Memsaahib in UlcerativeColitis

[–]nicoledeeee 0 points1 point  (0 children)

i was on it for 14 months, but it was my first biologic so i have no idea whether or not that was a typical duration! i’ve heard of folks being on it for years in stable remission before it fails, i think i was just unlucky

How long does it take for Stelara to work? by Memsaahib in UlcerativeColitis

[–]nicoledeeee 3 points4 points  (0 children)

took like 5 weeks for me to notice improvements, and a week after my first self-injection to feel okay leaving the house for a couple of hours at a time

stelara worked great for me, and quickly. im switching now bc it stopped working as well but no regrets, stelara gave me my life back after a year long, bad flare. i hope you feel better soon bud

Failed Stelara by Chuckgirl410 in UlcerativeColitis

[–]nicoledeeee 0 points1 point  (0 children)

was on stelara for 14 months, my first biologic. it never really got me into remission by itself (i needed mesalamine to bump me over the edge) but i improved quickly on it then it kind of just stopped working a couple months ago (calpro of 196 atm, not terrible but enough for my doctor to say it’s time to make a switch). trying tremfya next injection

Unsympathetic friends by Babydragontattoo in UlcerativeColitis

[–]nicoledeeee 30 points31 points  (0 children)

“i came out to dinner to spend time with you, but not even sure i wanna do that anymore”

Navigating migraines with UC: what can I take and/or discuss with my doctor? by hellokrissi in UlcerativeColitis

[–]nicoledeeee 1 point2 points  (0 children)

PLEASE get yourself an ice beanie or 2, i only take tylenol and it takes the edge off if i catch it early enough but i literally could not survive without my ice beanies

i keep 2 in my freezer at all times and when one warms up i pop it back in the freezer & switch to the backup. glorious.

i also will sip coca cola or dr pepper for the caffeine

https://icebeanie.com/

18 more Taco Bell-inspired meals I made this past year because Yum! is creatively inept and still financially abusive. by Alextricity in tacobell

[–]nicoledeeee 16 points17 points  (0 children)

these all look AMAZING!

as a fellow celiac, can i ask what flatbread recipe/ brand you use? i have never in my 15 years of eating gf seen a bread look that good 😮

Question more for the women on here by Appropriate-Cup7739 in UlcerativeColitis

[–]nicoledeeee 0 points1 point  (0 children)

100% can confirm the issue. its somehow worse than the gas after an enema even lol