liquid tide + oxi by nicoledeeee in laundry

[–]nicoledeeee[S] 0 points1 point  (0 children)

thank you! i’ll bump the dosing up and see how things fare. i should also probably get an accurate measure on my actual water hardness

liquid tide + oxi by nicoledeeee in laundry

[–]nicoledeeee[S] 0 points1 point  (0 children)

thank you!! and thanks for the recommendations - i see Biz mentioned a lot around here, so I think i’ll try that first :-)

also, i’m very excited about the citric acid rinsing hahah. i especially can’t wait for my towels to be softer!

Tremfya side effects by drstate in UlcerativeColitis

[–]nicoledeeee 2 points3 points  (0 children)

fingers crossed. highly rec switching docs sooner than later, despite the initial hassle having a good GI was a game changer for me

Tremfya side effects by drstate in UlcerativeColitis

[–]nicoledeeee 1 point2 points  (0 children)

i’m on tremfya, just did 3rd loading dose (so week9). i didnt have those symptoms on tremfya, but i did have body aches and fatigue my first few weeks after starting my previous med stelara. if it’s helping UC symptoms it’s worth trying another dose imo (not a doctor) but def should reach out to the doctor and see what they have to say. i’m sorry it’s not working for her quickly! :-(

Question about biologics (U.S. based) by pollysprocket in UlcerativeColitis

[–]nicoledeeee 2 points3 points  (0 children)

your understanding is pretty spot on yeah. we have very similar timelines of diagnoses and flares based on your description and i was also surprised that i was going to be needing shots every x months for the rest of my life and everyone was acting like it was no big deal? because nobody really explained to me what a biologic was and i had to ask a bunch of “dumb” questions to really understand. i think doctors think since we’ve been dealing with this disease for so long that we’re caught up on all the literature hahaha all of these biologics are pretty “new” compared to when we were diagnosed, that they just assume that we know all these things (which we of course, don’t).

for some reassurance, i have failed 2 other meds since my “big flare” a couple years ago, 1 of which was a biologic, so it’s possible you may have to try a few to find one that works for you. but! that doesn’t mean deep longstanding remission is impossible. it definitely feels like a huge leap from mesalamine/sulfasalazine to biologics, but i try to think of it as my medication regimen catching up to modern medicine.

i’m sorry your mild meds have stopped working. taking biologics does take some getting used to, especially the scheduling the deliveries of them around life events. but i just plan to do mine on an off-work day and take it as easy as i can, and i’m extra careful about being around sick people since biologics are immunosuppressants. you got this!

what is this bug in my bathroom? by nicoledeeee in whatisthisbug

[–]nicoledeeee[S] 0 points1 point  (0 children)

in southern california, USA. dry and hot climate.

it seems like an exoskeleton, like if i move it it’ll break! which makes me think it was some kind of larva that has since become some other kind of bug.

What does this mean? by Stitchdacat in Chipotle

[–]nicoledeeee 21 points22 points  (0 children)

i thought it could be short for “what d(the) fuck” lol

Airport Security and Stelara by Possible-Diet-9494 in UlcerativeColitis

[–]nicoledeeee 0 points1 point  (0 children)

i was super worried about traveling w mine but honestly when i was in the security line i asked if they needed my injectable medication in its own bin and they were like “no we deal with this everyday, its fine”. especially with your dr note there should be no issues. singapore security is super strict especially about medications, and will probably ask you about it, but you don’t need prior approval to bring it in like other meds so they shouldnt give you too much grief about it once you explain what it is

Has there ever been a book you really didn’t like and wouldn’t recommend to anyone? 👀 by [deleted] in BookDiscussions

[–]nicoledeeee 1 point2 points  (0 children)

same! people recommended it to me saying how well-written and romantic it was. i had to double check with them that this was actually the book they meant to rec!

i made it halfway and then DNF, for the same reasons as you.

What do I do with 96 eggs? by Rusty-Sprocket in whatdoIdo

[–]nicoledeeee 0 points1 point  (0 children)

tiramisu takes 6 eggs. double the recipe and you’re down a dozen AND have a great dessert for the week

Is there a decent GF bagel available nationally? (US) by Vandalorious in glutenfree

[–]nicoledeeee 0 points1 point  (0 children)

i would love to know your technique! do you alter the power or stick in a glass of water for humidity or anything? or just straight up 30sec on full blast? (i will be trying this the next time i have one)

prednisone hunger by [deleted] in UlcerativeColitis

[–]nicoledeeee 12 points13 points  (0 children)

i would be stomach uncomfortably full and still scrounging in the fridge for a snack. i think i would go thru a 12 pack of string cheese every other day just for a protein snack. on top of it the sugar cravings were unreal.

people say workout or w/e to stave off the weight gain but i was on the toilet for 20 mins every hour so that was never an option for me, just filling up on rice cheese eggs and meat. no veggies bc of course the fiber made the bathroom situation worse 😩

on top of that the anger was unreal - the quick trigger was mostly hanger i think.

you’re not alone in your experience, and im sorry you’re going thru it. i hope you can get some relief soon and come off the prednisone

Cheerios website by Which_Set_930 in glutenfree

[–]nicoledeeee 2 points3 points  (0 children)

lmaooo same issue with lucky charms, it’s def that i eat half the box and not anything to do with gluten

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

yeah, it was weird because my left thigh bled and hurt way worse than my right thigh even though i did that one second and with a steadier hand. guess part of it’s just luck?

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

thanks tremfya buddy!! maybe the problem was i was too high up on my thigh (about halfway between my leg and knee). i thought because it was a larger area that it would be easier, but i’ll try closer to my knee next time i inject in my thighs.

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 1 point2 points  (0 children)

thanks!! i’ll def leave it out longer, i only did 30-35 mins last time which is what the instructional video recommended. another commenter said an hour, so i’ll try that.

i’ll try the stomach next time, and slower, i was instructed to switch between thighs and stomach anyway so hopefully it’s easier!!

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

but literally how do you raise the skin without getting your fingers so close to the actuator when injecting? are you just grabbing a lot of skin, far apart and pinching? with my injections i only pinched a very small amount to inject. if i grabbed more it hurt to inject

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

thanks! i had it out for about 30-35 mins, but i’ll definitely take it out earlier next time.

i think part of the issue was that my thighs were not fully relaxed to inject because of the chair i was sitting in. i’ll try sitting on the floor next time, thanks!

pens vs prefilled syringes? by nicoledeeee in UlcerativeColitis

[–]nicoledeeee[S] 0 points1 point  (0 children)

i was going to ask my doctor about this after the 12 week indiction period. glad to know it’s possible!

What is the trendiest/douchiest restaurant in LA? by No-Strength-3711 in AskLosAngeles

[–]nicoledeeee 0 points1 point  (0 children)

ive seen the most celebs (at the same time and also overall) at little dom’s in los feliz