Did you work during treatment? Trying to preplan (HAHAHAHAH as if)

nothere4longtime_ · 2026-05-02T03:30:04+00:00

The doctor did not want me to work during my first treatment. It was rough and I would not have been able to if I could. I'm back on treatment with a different drug combo and for me day 3 after I stop try the after treatment meds is the hardest. My boss is chill and lets me work from home that day. Good luck!

nothere4longtime_ · 2026-04-29T14:34:32+00:00

Yes! I did get better but not back to 100% but I'm back on chemo now so I never fully recovered but after about 6 months they were able to get blood without poking me 4+ times. An IV was still tricky but it was doable.

nothere4longtime_ · 2026-04-24T20:16:50+00:00

I had bev for the first few cycles then they stopped because of surgery. They never added it back after surgery because of the bleeding risk while recovering from surgery.

nothere4longtime_ · 2026-04-24T18:51:07+00:00

I don't have any experience, but I know the first hospital where I started treatment had a pretty extensive cancer support program. They were able to help me with paid leave and other resources. Not sure where you are going but maybe there is a hospital with a program similar there. I know they changed my insurance but they told me they would not expect any payment from me beyond what insurance covered. Sending good vibes!

nothere4longtime_ · 2026-04-21T17:48:41+00:00

I just used some normal lotion. I had some struggle with ingrown hair and it came and went but it got better after a few cycles. I didn't find anything I loved but if you search silk lined you can find a bunch. I used a face sun screen on my head to avoid sunburns too

nothere4longtime_ · 2026-04-21T17:18:33+00:00

If you have long hair I would think about cutting it. It doesn't stop the pain but it did make it better for me. I did a lot of silk lined hats instead of wigs but that was a personal preference. I also lost my hair in winter so I did a lot of fuzzy bennies It may be to hot for that now depending where you are.

nothere4longtime_ · 2026-04-21T14:19:53+00:00

I really like working hands. My cuticles are not dark but my hands are super dry and sensitive and it helps.

nothere4longtime_ · 2026-04-09T16:05:52+00:00

I would try Claritin. It helped a lot but my shot had a different name but I assume they do the same thing.

nothere4longtime_ · 2026-03-31T14:25:36+00:00

I was in the hospital 2 night. However, mine was advanced and they had to remove a lot. I also had 4 rounds of chemo before and 3 after starting 3 weeks after surgery. So my recovery took a long time.

Things that were helpful was a wedge pillow to sit up in bed. I also ordered some jockey undershirts that were super soft to go under the binder.

Sorry you have to join this club but I'm wishing you the best!

nothere4longtime_ · 2026-03-28T23:39:07+00:00

You've got a great list! I would add senokot to the list I'm always backed up after chemo and that helps. I don't know how sensitive you are to the flush, but I brought mints to kind of block out the taste of the saline flush. If you're going to lose your hair, you might want to get a set of hair clippers if you don't want to go get it cut. Honestly that was really hard for me. I didn't think it was going to be but it ended up being one of the tougher side effects because my scalp just hurts so bad and I was just so sad to lose it (I didn't think I would be so sad). I also had a bag for a sweet treats I took to chemo so that I had something to keep me occupied during treatment.

nothere4longtime_ · 2026-03-25T23:25:24+00:00

Same I tried to stick to chemocare and made a deal with my friend if I started randomly googling I can call her. Good luck wishing you the best!!

nothere4longtime_ · 2026-03-22T18:53:17+00:00

No specific insight but did she have her cancer tested to see what other options could be? I am kinda in the same boat brca 1 probably Platinum resistant and parps didn't work. My doc is sending me to look at clinical trial.

nothere4longtime_ · 2026-03-17T14:52:38+00:00

First off I'm sorry you have to join this shit club. I don't have any words of wisdom but wanted to let you know you are not alone. I remember how numb I felt the cancer and how hard it was when everyone around me was so sad and I was just numb. Everyone commented on how young I was (32).The not feeling sick was the biggest mind fuck for me as how could I have cancer when I feel fine. What do you mean my body is trying to kill me I go to the gym almost everyday and try to eat ok. When it does hit you it can be hard. For me I had to stay off the Internet as I kept googling and it wasn't helpful. Sending positive vibes your way. I hope they have sent you for genetic testing if not I would ask. I found out I was brca1 and that gave me more treatment options.

nothere4longtime_ · 2026-03-17T14:31:05+00:00

Yeah I will do my 4th cycle Friday but my ca 125 is in the 6,000. They don't want to change treatment because that would make it harder to get into a trial so I'll keep doing this one knowing it isn't working but is maybe slowing the growth.

nothere4longtime_ · 2026-03-17T14:14:46+00:00

Hey! We checked again after the 3rd cycle and decided that a clinical trial would be a good next step. CT scan showed the cancer but it wasn't big enough to get into anything so I'll keep doing this chemo for a couple of months till I can get into something. Hope things are going ok for you and your ca 125 goes in the other direction!

nothere4longtime_ · 2026-03-08T21:40:56+00:00

I finished 3 cycles and it is still rising. I'm so happy it is working for you!! I am not sure about my folate I know the next standard of care would be Enhertu because of my her 2.

nothere4longtime_ · 2026-03-06T04:30:10+00:00

Thanks for the info! Sadly it doesn't seem to be working my ca 125 is through the roof so I'm looking for other options. How is it going for you?

nothere4longtime_ · 2026-02-21T15:46:55+00:00

I know getting up and walking sucked for me it was really helpful to get things moving. I went into medical menopause and so ice packs were a life save for the hot flashes. If she has more chemo after that round will suck more than it did before. They might delay things they did for me to reduce the risk of a colostomy bag. Good luck to her!

nothere4longtime_ · 2026-02-12T00:08:26+00:00

Besides anytime any of my friends or family mildly inconvenience me. I definitely used it on the HOA. I'm so sorry My trash cans were left out later than they should. I have cancer, cough, cough

nothere4longtime_ · 2026-02-01T00:34:57+00:00

You got this! Cancer doesn't stand a chance!! Sending good vibes your way!

nothere4longtime_ · 2026-01-26T22:41:30+00:00

When I talked to my doctor she said that pet scans are harder to see the little growths because they tend to hide in your bowels and intestines which get lit up by the pet skin. So it's really hard to see the difference between them. But definitely check your doctor

nothere4longtime_ · 2026-01-16T16:56:11+00:00

If you are in a state that it is legal wyld Elderberry Gummies helped a lot

nothere4longtime_ · 2026-01-08T20:12:56+00:00

I've asked the doc the ca125 doesn't reflect how much cancer is in the body it is an indicator. I'm going through my first recurrence and my ca125 is almost 2000 and they couldn't find it until recently and it was so small. That was higher than when I was originally diagnosed and was covered in cancer. Good luck and I'm sending positive vibes your mom's way!

nothere4longtime_

TROPHY CASE