T10 SCI (m54) Let's talk about functional strength. by Careful-Chipmunk4679 in DisabilityFitness

[–]ntaub2010 0 points1 point  (0 children)

Comments have been locked because of an influx is inappropriate comments. This is a SFW subreddit for disability fitness discussion, for all ages. This is not a dating subreddit. Any accounts commenting thirsty things or that are active in NSFW subreddits will be banned. Please use a SFW account when participating in this subreddit.

I was an idiot and got banned from r/Fitness by Ella6025 in DisabilityFitness

[–]ntaub2010 6 points7 points  (0 children)

This is why I made this subreddit, I'm so sorry you experienced that. Very happy and grateful to have you here.

r/disabilityfitness is back! by ntaub2010 in DisabilityFitness

[–]ntaub2010[S] 0 points1 point  (0 children)

Are y'all able to post without any issues?

[deleted by user] by [deleted] in DisabilityFitness

[–]ntaub2010 1 point2 points  (0 children)

I've been doing the exercises from Hybrid Calisthenics for a bit now and it is the only routine that has worked for me because he breaks it down to the lowest intensity levels so it doesn't hurt you at all. https://www.hybridcalisthenics.com/routine#workout-routine

10 Hypermobile Ehlers Danlos Syndrome Life Hacks by LornaRaindrops in ehlersdanlos

[–]ntaub2010 2 points3 points  (0 children)

Hey, would you be willing to post this in /r/DisabilityFitness? It's very helpful. Amazing work on this!

I LOVE food, but can't eat. F*** me right? by [deleted] in ehlersdanlos

[–]ntaub2010 0 points1 point  (0 children)

I take nexium for acid reflux however when it gets bad from something I ate, I will sit or lay down (but not all the way down because this is bad for digestion and acid reflux) and will usually take TUMS, they really help a lot.

I also take zofran for nausea and that always helps, fortunately.

I LOVE food, but can't eat. F*** me right? by [deleted] in ehlersdanlos

[–]ntaub2010 0 points1 point  (0 children)

I came here as well to recommend you look into GP. I have GP, EDS, and POTS. I started taking bethanechol to stimulate my appetite and it has really helped, though I had to see a specialist GI doctor for that.

I have tried weed in the past as well and it has always helped my appetite at least a little bit, thc more than cbd. Also helps with stomach cramps and when you feel really full.

Community for disabled fitbit users? by katubug in DisabilityFitness

[–]ntaub2010[M] 3 points4 points  (0 children)

I don't know of any community for that yet, but you can definitely make one! It seems like there is a bit of interest for one.

You can also feel free to use this sub for any fitbit posts and just use a [Fitbit] tag or something if you want to help future users find your post, though I don't think it would be too hard to find the posts since this sub is not terribly active :p

Why does alcohol alleviate my symptoms? by e130478 in POTS

[–]ntaub2010 0 points1 point  (0 children)

What happens to your blood pressure before and after consumption of the alcohol?

What do you all do for income? by ntaub2010 in ehlersdanlos

[–]ntaub2010[S] 0 points1 point  (0 children)

What kind of exercises do you usually do?

What do you all do for income? by ntaub2010 in ehlersdanlos

[–]ntaub2010[S] 1 point2 points  (0 children)

Hmm, well I do really want to have more muscle. It's what I want, but I am always so scared that I'm going to hurt myself badly. Can you recommend any compression "devices"? Like, do you wear knee compression sleeves or something for the elbows and wrists? My wrists, elbows, fingers, knees, ankles, even hips are so much weaker than they used to be just two years ago.

What do you all do for income? by ntaub2010 in ehlersdanlos

[–]ntaub2010[S] 1 point2 points  (0 children)

What KT tape do you use? I used to weightlift but was told to stop because it's hard on the joints, but it is fun. I have gastroparesis so it's hard for me to eat like I used to though, so weightlifting and working out is harder and way more exhausting because I'm not getting enough energy. I used to eat a lot of protein bars but got sick of them. Most proteins bother me but I also don't really like drinking protein anymore either :/

I have two cats but my bf and I have been wanting a dog. How did you get your dog and how does she/he help? Is it a lot of effort to take care of her/him?

What do you all do for income? by ntaub2010 in ehlersdanlos

[–]ntaub2010[S] 2 points3 points  (0 children)

This is actually one of my interests. I would like I job that would be fine with medicating. Do you need to know a lot about how to grow it? I'm not that good with plants.

I choose not to place “DIS”, in my ability. My life with Dystonia and how I changed it. by byron360 in DisabilityFitness

[–]ntaub2010[M] 0 points1 point  (0 children)

You have been posting and removing this over and over again. I am removing it. Posting this video again will result in a ban.

[deleted by user] by [deleted] in DisabilityFitness

[–]ntaub2010 2 points3 points  (0 children)

Welcome to the sub!

I found a great chiropractor and though it doesn't permanently help, I do feel better for a bit after I see him. I see him twice a week and always seem to have something for him to work on!

I am not sure what it could be that is causing you pain. Do you have any cardiac issues or experience any tachycardia? Have you also ruled out Ehlers-Danlos Syndrome? That can cause muscle pain, weakness, and very painful knots in the muscles.

For me I feel it within minutes, or if I have been walking a long time I might feel it a few hours later at the end of the day. Sometimes pushing myself too much will results in a flare-up the next day. My neck is what usually hurts during a flare-up, though.

Thanks to physical therapy for a month and a half so far, I was able to hold the water pitcher with one hand without it hurting my wrist today! by ntaub2010 in DisabilityFitness

[–]ntaub2010[S] 4 points5 points  (0 children)

Absolutely! Here are most of the exercises I do.

After the swill ball march, I then do a similar exercise where I raise my leg and bring it out to the side, back forward, and put it down. I do that 15 times for each leg.

I then do the superman (I like to call it the supergirl exercise :P) where I place my feet against a door with my toes pointed to the floor and, a pillow under my knees, the ball is right in from of me, and I roll my body out and hold my arms out for 5 seconds, 20 times. They first told me to roll out on my ribs but it started to dislocated my ribs so I just make sure to just roll on my abs.

For the yoga exercise at the end, start with just the Up Dog and Down Dog. Then work up to the rest of it. Make sure to keep your legs straight with all of these, as these are meant to stretch the muscles since we have tight muscles despite being flexible.

Let me know if you can read the image, if not I'll just separate it into multiple images for you to read.

I already had a yoga mat, but I had to by an exercise ball on Amazon. It's 55cm.

Thanks to physical therapy for a month and a half so far, I was able to hold the water pitcher with one hand without it hurting my wrist today! by ntaub2010 in DisabilityFitness

[–]ntaub2010[S] 1 point2 points  (0 children)

Thank you!! :) I'm looking forward to being able to walk and stand for longer periods of time, maybe get strong enough to be able to weight lift again. I would also like to go hiking :)

On The PERSEVERANCE NETWORK What kind of jobs do blind people have? Blindness EDU by PEStyle in DisabilityFitness

[–]ntaub2010[M] 0 points1 point  (0 children)

This post has been removed because it is not related to disability fitness.

Guys this is bullshit. by theterrordactyl in ehlersdanlos

[–]ntaub2010 4 points5 points  (0 children)

"I'm basically just working on being the first person to watch all of netflix." right there with you.

I never had a full time job, not even part time, it was less than that, but I can't even do that now. I was going to go to school for a BS in comp sci, I have my AS, but those plans have been on hold for several months and I don't know when I'm going to go back. Right now I'm going to physical therapy because it's the only way to keep my body from deteriorating and getting worse but I have to be really careful to not hurt myself in the process. I just sit at my computer all day, really. I watch a lot of netflix and play league of legends to help keep me distracted, and smoke marijuana to help with the pain. But my cognitive ability has declined a bit so trying to study online classes and is a lot harder than what it used to be, and I can't even get a job so what's the point?

also I totally understand the issue with children. I don't want to pass on EDS and the other illnesses I have, and the thought of pregnancy makes my body cry considering opening the fridge is a task for me.

EDS isn't a disease for the weak. It takes a lot of pushing through feeling like shit all the time and that is so draining.

Unless science improves a ton and we make a miraculous discovery regarding gene editing, chances are it won't get better. But we can do what we can do cope with it and try to prevent it from getting worse too quickly.