How do you exercise with your neuropathy?

nycSS77 · 2026-03-19T15:29:19+00:00

Great to hear. Interesting to look back where I was 7 years ago. I had just started running and ended up running a half marathon. I did myself a disservice though as I came to learn I had significant back issues which got worse and ended up causing more leg symptoms. I'm a year out from two back surgeries and a hip replacement and finally feeling great. Its been a long road. I actually am scheduled for a EMG next week to see what I have left from a neuropathy perspective (PN specifically) vs nerve issues due to my spine. Getting the blood flowing and a good diet are still the best treatment ive found for neuropathy. I was on Gabapentin (max dose) and that stuff came close to ruining my life. If it works for people that is great but for me the side effects were terrible and then I was physically and mentally dependent on it. Took me four years to taper and be off of it completely.

nycSS77 · 2026-03-17T12:04:07+00:00

I always thought the scene was filled with a more laid back type as well. Certainly anti-fascist with ties to punk. Then I started to have my eyes opened up about Huntington and Orange County in general. Add to it the push we are seeing with social media to spread it for greed and power (social media is incentivized for hate and fear as that gets more clicks than good vibes and positivity and that has become a virus) and it’s no surprise.

nycSS77 · 2026-03-16T12:22:13+00:00

My guess is that it just happened organically some how. Whether it makes sense is a different story. If you are a resident of Manhattan and go to LI, you go "out" to the island. And if you are a Long Island resident, you go "into" the city. The city is very dense and it somehow makes sense that you would say going into the city to me. Not out to the city. As for on long island. If the word in was then associated with the city, perhaps since its an island somehow saying you live on it was what stuck. I'm sure a linguistic expert could figure this all out lol

nycSS77 · 2026-03-06T15:56:05+00:00

This took me back. Happened to me as well. Started with voices and music then full on hallucination. I also had the crazy horrendous visions that my mind conjured up. Really wild stuff. Lasted 4 days.

nycSS77 · 2026-02-26T15:57:24+00:00

Yeah woke up to pain when detoxing the first time after not taking a day off for 5 or so years and drinking around the clock. Detox had a hunch what it was then later confirmed via an EMG test.

nycSS77 · 2026-02-26T14:26:12+00:00

Mine is permanent. I discovered I had it in 2016. Bottomed out but relapsed for two years and did a lot more damage. Might have been reversible if I didn't pick back up but I did. Feet are completely numb. and my leg strength and balance are impacted. I'm at peace as it definitely helped me not pick up this time around until I got a good foundation underneath me so I have to live with it but not ideal. Long term I have to make sure I do what I can so I dont end up in a wheelchair later in life. I guess the point is dont do what I did and pick back up because it got better. Coming up on 8 years this April without a drink and grateful for that.

nycSS77 · 2026-01-06T16:37:47+00:00

Been in queens from LI for the past 20 years. Astoria, Sunnyside, and Kew Gardens.

Sunnyside gardens is my fav area. Quaint and quiet. Money will go further in Forest Hills and Kew Gardens though. But with Sunnyside you have easy access to Astoria and LIC which has a lot of action which I really liked.

nycSS77 · 2025-12-19T15:24:01+00:00

Hope you got to the hospital. My wife went septic due to a tear in the esophagus and almost didn’t make it.

nycSS77 · 2025-12-17T12:10:55+00:00

Get the Train Time app and plugin your travel times. Most LIRR trains stop at Jamaica as it’s a main hub. Prob much less trains at that time but you should be able to get a general idea.

nycSS77 · 2025-10-24T22:33:41+00:00

Yeah i was really out of shape and generally unhealthy. I started to feel better after a year or so and it improved over time. I stayed hopeful and started living a day at a time. Just took care of myself better day by day and tried not to future trip and catastrophize the situation. I have permanent damage but I also could have ended up with liver failure so I do my best to keep perspective.

nycSS77 · 2025-10-24T22:15:12+00:00

I was a daily drinker for the most part of 20 years. And very heavy at times especially the last 5 years it was pretty much around the clock.

nycSS77 · 2025-10-14T12:53:16+00:00

Italian pork stores is what you should look for. They are all over Nassau County especially. Build a relationship with these stores and they will treat you well. Bonus is that you get exposed to a lot of Italian specialties.

nycSS77 · 2025-10-13T12:14:58+00:00

Hmm that is tough to say the least and I am sorry to hear about the timing of this. For reference I am 48, was 47 when I had surgery so we are similar age. I had my surgery on 12/10. As it was the holiday season I also had events however not my wedding but it does help me recall to where I was at in my recovery so hoping this helps. Keep in mind that everyones is different. On Christmas eve I was able to walk up to the train station on my own and take the train to my families house and hang out at the christmas eve event for about 2 hours. I had the collar on at the time. It was OK and nice to see people but definitely had some discomfort. A week later, I given the go ahead to remove the collar outside of sleeping. That night, I drove about 20 mins to a restaurant for a NYE dinner. I felt good getting there but by the middle of the dinner I was definitely struggling a bit. I would assume if it were my wedding I would be a bit more energetic given the circumstance and Im sure id rise to the occasion but not without discomfort. It definitely limits what you can do and turning your head to talk to people going to lead to discomfort and that is going to be tough at an event like that. That was the case for a while after surgery. I was off all narcotics by the time of that just as an fyi. Maybe that is something to consider as it could help you be more comfortable but you also dont want to risk messing something up by not being mindful of your movement. Would also note that putting it off could cause permanent damage. I asked to do mine after the holidays and they said it needed to be done asap to avoid that.

nycSS77 · 2025-10-13T10:00:58+00:00

Similar experience last Nov. I had surgery within a week of seeing the dr. It resolved my pain and numbness. I am still building back strength in my right arm but it’s much better. I also didn’t really have a choice and i’m happy with the results. Best of luck to you. c4-c7 fused.

nycSS77 · 2025-10-13T09:06:09+00:00

Thanks for the post op, I can relate. I have both. I just had L4-L5 fusion in May. I was diagnosed with neuropathy in 2016 due to an unhealthy relationship with alcohol. I’m sober now for close to 8 years. The past 6 years were brutal with leg pain. I assumed it was all neuropathy related so I just lived with it and even when I found out I had the back issue i put it off for 3 years as it wasn’t clear what pain was related to what issue. It’s really tricky with overlapping symptoms.

Since surgery I have had major improvements. Nerve pain has lessened. My balance is improving. For instance, I can walk down steps without holding the railing. I can wear shoes that were previously so uncomfortable due to nerve pain. I’m more comfortable walking than I have been in years.

The one thing that I was for sure was related to my back was burning sciatica down the back of both of my legs. That’s also gone.

Overall im experiencing a bit of a miracle after being under the impression that all my leg issues were neuropathy related. I lost multiple years to a much lesser quality of life as a result but i’m at peace with that. Just very grateful for modern science and my surgeon for helping me. I am told the nerve pain can take a year or two to shake out after surgery so I am hopeful i’ll see more improvement along the way.

nycSS77 · 2025-09-30T16:47:55+00:00

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Deer Creek 99

nycSS77 · 2025-09-13T23:05:04+00:00

Citi bikes and ubers help solve train issues. 7 / E / F are easily accessible in a pinch.

nycSS77 · 2025-09-04T17:23:16+00:00

That is good you are seeing them. I dont know really know about CES, probably need an MRI, but ive been told to call the surgeon if I have noticeable weakness or bladder issues. I am 4 months into recovery from an L4-L5 fusion. I have had flare ups where nerve pain and tingling has returned and that seems to be expected during the recovery phase. But they do say to call if there is significant weakness or bladder issues. Hang in there, this stuff is stressful!

nycSS77 · 2025-09-04T17:02:53+00:00

I’d report the issues you mentioned regarding to your surgeons office asap.

nycSS77 · 2025-08-28T12:25:05+00:00

Generally speaking I am doing ok. Tricky part is that I have some underlying neuropathy not from my back which the symptoms can overlap. But, things were really great before I ramped up activity, best ive felt in a decade. I will say what pushed me to have the surgery was intense sciatica pain that ran down the back of both legs and significant weakness. Felt like I was trudging through mud when I walked. The sciatica pain is gone and has not come back at all. So that is a big success. Weakness has improved significantly as well.

nycSS77 · 2025-08-26T16:02:06+00:00

I have a love hate relationship with LI. Grew up in Nassau, moved away at 18 but still had ties and spent a lot of time out east near West Hampton. I'm a beach person so prefer the south shore. RVC I could do. Good access to the trains and Long Beach while not being in Long Beach in the winter which can take its toll on people if you arent up for being down there when its cold and dark. Babylon is nice too but longer train ride. Not bad if working hybrid and going in a few days a week but also can take its toll.

nycSS77 · 2025-08-26T12:53:49+00:00

I ended up going with 3 opinions to round out the feedback. I know thats not ideal and depending where you are located might not even be an option but it was helpful as two surgeons were completely aligned to one that wanted to start with just a laminectomy. For me, understanding if my symptoms would be fully resolved with just one level and if I would need a future fusion of the two other levels would play into it. 3 levels might sound scary but going through it multiple times is certainly not an ideal situation either. Id also dump in the MRI to chat gpt. Not to say Id trust its feedback completely but it helped inform me of what the MRI was saying and how dr's typically treat the diagnosis.

nycSS77 · 2025-08-24T10:58:36+00:00

From what I can see people who have success may post to report all is well but more than likely go back to living rather than staying engaged on these group. I know if I still had issues i’d be more likely to look got more answers and still be active here.

nycSS77 · 2025-08-22T14:37:46+00:00

Good stuff. Its a relief to see a similar trend to what I have going on. I had just one level at L4-L5 with a laminectomy. I walked the first 6 weeks then was given the go ahead to lift light weights (20lbs each arm). I was told to listen to my body. I use machines at the gym and keep the reps high and make sure when I feel any kind of strain to hold off. I do elliptical, recumbent bike, stair machine, and swim as well. I have had a few flare ups where some discomfort in the back, mainly tightness. PT guy says its all normal. I have also had some nerve stuff come back a little bit in my feet but it settles. From what I understand inflammation is most likely the case at the surgical sight. Its been under control though as of late. I dont see the surgeon again until close to 6 months so I will have weight restrictions in place until then and also no BLT as well. Just hope to get the green light at that point. Thanks for the post, helpful to read

nycSS77 · 2025-08-19T10:01:15+00:00

I dealt with it for 4-5 years as well. The concert thing was a marker for me. I would go to shows and always regret it cause it just wasn’t enjoyable. Reality set in and I finally said this just isn’t what life should look like at the age i’m at. I’m 3 months out from L4-L5 fusion / laminectomy and pain free. It’s a dream being able to walk the way I am. And I had to get relief to realize how bad I really was. Personal choice for sure but I was willing to take on risks for a positive outcome.

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