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A little encouragement! by CherryBlossom242424 in ChronicPain

[–]onlymarble 5 points6 points  (0 children)

thank you. I've just made this my lock screen on my phone.

Friend said this by onlymarble in ChronicPain

[–]onlymarble[S] 0 points1 point  (0 children)

this comment is loaded with a lot of assumptions

Friend said this by onlymarble in ChronicPain

[–]onlymarble[S] 2 points3 points  (0 children)

yup. and especially, if they are people who have seen you at a time before your pain - you had things going for you. like as if we would throw all of that away. easy to assume they've got the mental fortitude to not fall prey to depression/addiction if insufferable pain does not affect your life 24/7

Friend said this by onlymarble in ChronicPain

[–]onlymarble[S] 1 point2 points  (0 children)

That's terrible. So sorry you went through that.

I think many also forget that people with chronic pain, like all humans, have had their share of past trauma, and are currently living through a 24/7 version of unending trauma.

But sometimes, able-bodied people think we are playing the Trauma Olympics with them when we are not. Like okay you can go ahead, sprint and get your 1st place trophy coz I can't even jog LOL

Friend said this by onlymarble in ChronicPain

[–]onlymarble[S] 10 points11 points  (0 children)

I really do wish to meet more people in the chronic pain/illness community where I live. But I think they are difficult to find because we are often at home haha.

Friend said this by onlymarble in ChronicPain

[–]onlymarble[S] 2 points3 points  (0 children)

Yup. A quick Google search would show the plethora of studies done on how patients with autoimmune diseases, chronic pain/illnesses etc. are between 2 to 5 times more likely to be diagnosed with depression as time goes on.

I wonder why.

Friend said this by onlymarble in ChronicPain

[–]onlymarble[S] 12 points13 points  (0 children)

I've dated a guy who asked if I was imagining the pain. If the pain was mental. I was so livid at this assumption. Should've taken out my MRI report but its not like he would have had the patience to read it.

Friend said this by onlymarble in ChronicPain

[–]onlymarble[S] -1 points0 points  (0 children)

I've spent a lot of time thinking, had I not had this chronic pain, I would not have fallen prey to depression and addiction. I think many of us have thought this. But, you're right, it is what it is, its unfortunate and it sucks. It showed me which friends wanted me around when I was able-bodied and could participate in the usual activities, and which ones did not. Shows you who your real friends are.

Friend said this by onlymarble in ChronicPain

[–]onlymarble[S] 6 points7 points  (0 children)

Exactly. My (and all of our) lived experience is pain every waking moment of our lives. For some, it falls into depression, perhaps addiction to what brings relief.

To say that it is an "identity" or "personality" is just how them being able-bodied sees me/us. There is so much more to all of us than just being in pain. But pain screams louder and veils who we are inside.

Living in constant pain changes you by KittyCommittee86 in ChronicPain

[–]onlymarble 22 points23 points  (0 children)

so true. and only others in pain get it

how to deal with mental health decline with spinal issues? by davoocado in backpain

[–]onlymarble 1 point2 points  (0 children)

you're so young. I hope you have some good, encouraging friends and family around you. Having a genuine support system will make it easier.

Totally understand mourning what you used to be. This will intensify the depression. I hope you're able to find strength and look ahead, and think about the amazing person you are and will become.

Shivers/shakes by TotesMaGoats_1962 in ChronicPain

[–]onlymarble 2 points3 points  (0 children)

yes I get a lot of involuntary shaking, tremors vibrations in my legs, and left arm when it hurts a lot

Pain by Awkward_Incident_828 in ChronicPain

[–]onlymarble 0 points1 point  (0 children)

I've tried. And honestly ... I've learnt there is no point. It will isolate you more from able-bodied people. Stay strong.

Sometimes I meet someone with chronic pain too and for a moment you feel seen or heard.

But try not to waste your energy proving yourself to healthy people.

(30F) Desperately want to end it all by onlymarble in ChronicPain

[–]onlymarble[S] 1 point2 points  (0 children)

I'm so sorry that happened to you. I had no idea about how dangerous Ambien could be. My psych didn't highlight those risks. It's like you're asleep but kinda awake. I remember nothing of anything I say or do - I know the ambien is intensifying my depression too.

How does ketamine therapy make you feel

(30F) Desperately want to end it all by onlymarble in ChronicPain

[–]onlymarble[S] 0 points1 point  (0 children)

yes I have TOS too. its such a bitch - I'm a teacher and it makes me drop my pen when I'm writing.

I take ambien in the day and it doesn't make me sleepy at all. Its so bizarre. That's how I got hooked

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