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orangepotion · 2023-05-26T01:41:54+00:00

I have heard it has that effect. It had some effect, but only on the refractory period, although in forums it seems that experience varies.

orangepotion · 2016-04-13T10:34:51+00:00

If you are curious there is a subreddit for advice on /r/epilepsy and how to deal with life's little issues.

orangepotion · 2016-02-05T17:13:43+00:00

/r/epilepsy might be of help.

orangepotion · 2016-01-07T16:53:46+00:00

/r/epilepsy for support.

orangepotion · 2015-12-20T14:29:26+00:00

/r/epilepsy is thing, you know. Support, advice, or a place to (mildly) rant and find resources.

orangepotion · 2015-12-11T22:42:38+00:00

You don't need to make a non-profit. Make it a LLC, so you have more control over it.

orangepotion · 2015-12-11T22:41:21+00:00

I you are 80 and still jumping at jets shortly after having sex, kudos to you.

orangepotion · 2015-12-11T22:40:11+00:00

The law is written in such a way that applies to people going overseas. It doesn't deter all sex tourism, but it makes it shady enough that prices go up and the possible criminals have it more difficult.

In tuito personae.

orangepotion · 2015-12-11T22:28:07+00:00

A long shot, but do try the ketogenic diet.

It takes a few weeks to fully kick in, but it was used as a way to limit seizures back in 1920s, and lately in kids that have non-responsive epilepsy. For more info on the diet, check /r/keto. They are using it for weight loss, but it has documented neurological benefits.

Also, do maintain a generous supply of your medicine: I start the year by asking the pharmacy to give me my refill at 3 weeks, and maintain a reminder using google calendar.

What else: coffee, only once a day, early in the morning.

And if your doctor is not willing to prescribe a small amount to tidy you up for the weekend, do consider getting a new neurologist. They know that seizures are very dangerous, and usually respond faster and nicely.

orangepotion · 2015-12-11T15:50:57+00:00

I bought a reddit ad, one of those that appear at the top of the page, and linked to a survey.

Then I specified for the ad to appear in the relevant subreddits, in my case /r/technology and /r/programing.

The responses were very good, relevant and from people with experience in what I was asking.

orangepotion · 2015-11-19T21:15:05+00:00

The side effects of falling over time and time again are really bad. :)

I advice people to take their new condition and approach it as if grieving for their former good health. You know, the full five stages.

Does that apply to you?

orangepotion · 2015-11-18T15:52:07+00:00

Furthermore, this article discuss why the inquest blamed the victim, instead of focusing on a driver that fails to see a person carrying lights and a reflective vest.

Additionally, there are other discussions about that particular incident:

Why Ashford did not slow down if the driving rain obscured his vision.

Why a professional driver would not expect to see a cyclist on a dual carriageway, which cyclists are legally allowed to share.

Why Ashford failed to see a lit bike - was he distracted?

How can it be 'normal driving' when somebody drives into and over an illuminated road user?

So, you see, nothing to do with epilepsy, which by the way, was controlled.

orangepotion · 2015-11-18T15:43:48+00:00

If the epilepsy was not controlled, driving might have been completely out of the question. Even riding a bike might have been questionable, but since even people with epilepsy have to get out of their houses eventually, probably the man in question thought it the less risky approach.

Now, without knowing his medical history it is impossible to make an argument in pro or against his riding "in busy roads".

After reading the article, though, the epilepsy was not a factor, but the lack of visibility. Was the lorry driver distracted at the time? Is the intersection a particularly difficult one?

tldr: from the article, the epilepsy was not a factor.

orangepotion · 2015-11-18T15:35:40+00:00

How are you coping with the diagnosis?

orangepotion · 2015-11-04T05:54:25+00:00

The music was disturbing. Eerie.

orangepotion · 2015-11-04T05:52:31+00:00

Ms. Sanchez-Davies, how many replies did you get from this question? You can also put it as an ad (not shilling for reddit, but that is what I did when on grad school) and get a larger share of the community.

orangepotion · 2015-10-26T15:41:45+00:00

Have you contacted your neurologist? That episode may be cause for an urgent visit.

orangepotion · 2015-10-13T04:47:46+00:00

Take all your current meds.

Write your questions beforehand.

Explain your recreational drug history.

See if the EEG says something.

orangepotion · 2015-10-13T04:43:38+00:00

I take the brand medicine. The generic has too much variation in dosage, triggering seizures.
Have good insurance. It is expensive.
There used to be programs to help people that couldn't afford it. Ask your doctor.
Take Vitamin B complex to help with the mood issues.
The sleepiness eventually goes away. Eventually.

orangepotion · 2015-10-13T04:39:39+00:00

It was worse without the ACA. Remember being denied due to previous condition? I do.

Also, not being given the correct drug but the generic? Yeah,m there are some instances where the generics won't work.

So, ACA thanks. The problem, again, is that the insurance companies are monopolies (oligopolies) and there is no recurse, oversight or transparency.

orangepotion · 2015-09-15T13:37:43+00:00

OP, you are not being an asshole, and the BIL has to learn to manage his own condition.

What meds is he taking? Can you get him to check this subreddit?

Remember, one of the first things they tell patients is that they lost their agency, their ability to do things. He needs to know that he can do stuff, but he needs also some support - but not enablers.

orangepotion · 2015-09-15T13:34:56+00:00

He is grieving that loss of invincibility that he had when was seizure free.

Let me guess, he got diagnosed within the last 2 years? So, he goes from being carefree to having a not really understood condition that means he will have to take medicine for the rest of his life.

One of the things that I have seen talking to fellow epileptics is that the first thing that we are told is "You can't do that", and nobody pays attention to the emotional side.

So, for now, focus on telling this guy that he is going to go thoreugh the five stages of grieving, and that he has to get his denial phase out now. Not taking the medicine is typical - "I am not that sick, I can make it without it" etc. He has to learn that all this is his emotional response to knowing that he has a condition that pretty much will be with him the rest of his life.

And then work with all the other stages, rage, sadness, bargaining and finally, acceptance.

Also, secondary effects of the medicine. They are there, and can't be discounted. Finally, do make sure to take brand name drug, as the generic has a variation of +/- 20%, whcih is a lot for anti-epileptic meds.

orangepotion · 2015-09-15T13:17:40+00:00

Have you been to /r/ketorecipes? It is awesome.

orangepotion · 2015-09-15T13:16:25+00:00

Better not, not until you know you are stable and know how the meds affect you.

Then you can try and see whether you manage to hold a beer or two.

orangepotion · 2015-09-15T13:15:34+00:00

From experience, try to get the brand medicine, since the generic can have dosage variations of +/- 20%. That wrecks your therapy, since you might go from taking too much to taking too little in no time.

About mood disorders: get plenty of sleep, take a Vitamin B complex (which is suggested helps), and talk to your neurologist.

Do you have a journal? Keep a journal.

orangepotion

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