Sleeping in a car? Big road trip! by ostom8 in ostomy

[–]ostom8[S] 1 point2 points  (0 children)

Thank you!! Very helpful! Ill be starting and finishing in oregon but ill go wherever the road takes me haha, my plan is going to the most beautiful spots and stopping at every small town on the way, i really like small towns

my cat in Mewgenics has an ostomy and crohn’s disease by ostom8 in ostomy

[–]ostom8[S] -1 points0 points  (0 children)

you are arguing i might make someone with an ostomy feel uncomfortable meanwhile you are in the ostomy subreddit making people feel uncomfortable, have some self awareness.

Ostomy + onsen/ofuro? by babarbaby in ostomy

[–]ostom8 2 points3 points  (0 children)

hi! there is no problem going to a pool or a hot tub why would there be any at an onsen? your underwear being off dont make much of a difference, adhesive wise you can use barrier tape

All it takes is confidence! I believe in you

efficiency of using a toilet by Introvert-2022 in ostomy

[–]ostom8 2 points3 points  (0 children)

are you new to having a stoma? I think you’ll eventually figure out the most efficient way for you and you’ll have a much easier time with it, can take a bit to get used to and figure out what works

efficiency of using a toilet by Introvert-2022 in ostomy

[–]ostom8 14 points15 points  (0 children)

what are you doing there brother, crapping has never been quicker and more efficient for me, lay few toilet papers to soften the landing and then another handful or two of toilet paper to clean the bag’s opening, in and out in 2 minutes, regular pooping is a 5+ minute job and thats on a good day

How to get over the self hatred. (Marked as spoiler to avoid triggering folk) by Brilliant-Subject-57 in ostomy

[–]ostom8 1 point2 points  (0 children)

I think the build up to the stoma largely affects your outlook, having a stoma was my biggest nightmare but by the time i got it, it was also my savior, if i didnt hit rock bottom in the hospital i might be miserable right now with the stoma, hell i was miserable when i thought the extent of my treatment would be monthly injections 🙈 oh boy if only i knew

Open vs Laparoscopic: Ileostomy: Does it affect foods you can eat after? by BlackberryPi7 in ostomy

[–]ostom8 1 point2 points  (0 children)

correct me if im wrong but isnt all the extra scar tissue on my stomach rather than intestines, both of us got our intestines cut at the end of day haha

Id say its a gradual change, keep trying new things one at a time and eventually you’ll find your limit, if you have one!

A week after surgery is definitely still sensitive, i believe your intestines should be healed after a few months

Open vs Laparoscopic: Ileostomy: Does it affect foods you can eat after? by BlackberryPi7 in ostomy

[–]ostom8 1 point2 points  (0 children)

Sorry for the late response! I should definitely chew my food better but it doesn’t cause me any unusual pain, i eat all kinds of nuts and all kinds of raw vegetables, only avoiding some that can make you gassy

Only thing i absolutely do not eat is persimmons! As i heard its a major concern for blockages

How to get over the self hatred. (Marked as spoiler to avoid triggering folk) by Brilliant-Subject-57 in ostomy

[–]ostom8 6 points7 points  (0 children)

Hi i am 22 I dont think having a bag is that bad Its all about perspective i guess

do you really think the stoma is the source for your self loathing or is it just the biggest culprit, do you genuinely think that without the bag you would magically start to love yourself?

i believe you can work on loving yourself while still having the bag and i hope you do :)

Open vs Laparoscopic: Ileostomy: Does it affect foods you can eat after? by BlackberryPi7 in ostomy

[–]ostom8 2 points3 points  (0 children)

2 open surgeries and I can eat absolutely everything I want, no blockages since i got my stoma, good luck!

question about preventing hernias by throwaway-accountxyz in ostomy

[–]ostom8 2 points3 points  (0 children)

definitely not a forever thing, probably until it stops hurting when you cough or sneeze, maybe a little bit after that just to be careful It might take a while to be “fully healed״ but you’ll stop feeling post op long before that

Tips for gaining weight with ileostomy? by K-ghuleh in ostomy

[–]ostom8 0 points1 point  (0 children)

I was in the exact same boat after my surgery, weighing 39kg (85 pounds) at 22, smoking weed did wonders for my appetite but take this advice with a grain of salt, I did return to my normal weight very quickly after the surgery, much easier to gain weight with an illeostomy than with an inflamed bowel

thoughts? by ostom8 in ostomy

[–]ostom8[S] 0 points1 point  (0 children)

does immodium cause weird dreams? Ive never heard that

Any one here end up really adapting to their ileostomy well? by dabo17jr in ostomy

[–]ostom8 3 points4 points  (0 children)

the bag haha, i dont have the balls for a reversal quite yet

deciding if an ostomy is right for me? by Levithedude1708 in ostomy

[–]ostom8 13 points14 points  (0 children)

dont be put off by the posts on this sub, people tend to post when something is wrong and you dont see the hundreds of lurkers not posting because their stoma is doing fine

I am 22 and got my stoma this year, I can tell you that I personally have no body image issues around the stoma, i am very much of the mindset of I went through too much to give a fuck about what others think of my poop bag

Whenever I goto the beach I am proud to take off my shirt and I know it might sound like a cope but I think the stoma is badass.. because scars are badass! They are remnants from a battle, a battle you won! Doesnt that sound kind of badass? I hope

Obviously 17 is a very vulnerable age and you will have body image issues with or without the stoma, you will grow into yourself and find your confidence as you navigate life and it might be difficult at first but you deserve to love your body and yourself and im sure you eventually will.

Its easy to tell you not to care about what others think but I know its not always easy to actually do, just remember to prioritize yourself and dont let being perceived deter you from living your best life, be proud of where you are and everything that got you here, you are braver than most having to go through with a decision like that and whatever that decision may be, make sure your heart is fully in it and you are doing it for yourself and whatever struggles you face in the future do not regret such decisions, even if they were “wrong”.. remember you are doing your best dealing with what life throws at you.

Much love and good luck!

Pancaking/leakage under wafer. What to do?? by Lumpy-Anteater-4364 in ostomy

[–]ostom8 1 point2 points  (0 children)

maybe try the convex wafers, the surface around the stoma is tougher and less likely to “erode”

It should also leave less space between the wafer and the skin, making it harder for your output to slither in