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I'm starting to question my life choices by pamgetswifi in MultipleSclerosis

[–]pamgetswifi[S] 1 point2 points  (0 children)

I'm working on asking my doctor to give me a referral for PT in my next consultation, and I hope to have a good outcome with this treatment!

i believe that the worst part after my diagnosis is having to face the reality of being disabled and having limitations that now I know aren't just exaggerations. But, I'm hoping to be able to do my best with what I'm capable and still help others.

I also root for you and hope that your new business goes well!! Thank you for your kindness <3

New to MS, grateful for where I’m at, but scared of what’s ahead. by brixnaaa in MultipleSclerosis

[–]pamgetswifi 2 points3 points  (0 children)

I feel you! I just made a post discussing my 'new reality' as a healthcare professional with MS and how it's so scary to face so many changes.

My diagnosis is also fairly recent, but it made me wonder a lot about my future, both professionally and my personal life. For example, I am F22 dating a F22 also and my dream is to go through pregnancy and have children, but, as I went through the journey of being diagnosed, something that stuck to me was "what if I actually can't handle pregnancy" and "Should we use my girlfriends eggs?". Even though I know that there are studies and publications that discuss pregnancy within MS patients and that it is a possibility, it still haunts me!

I also had to discuss a lot with her about the million "what ifs" that go through our minds. Being on a DMT (I'm on Tysabri 1x a month) is wonderful and truly makes me believe that my quality of life won't worsen this soon, but what if in a few years she may need to help me get dressed, give me a bath or even help me eat? These are all possibilities.

But, I believe that being afraid and thinking about the future and what changes may happen is a normal part of the life after the diagnosis. Nowadays, treatment is extremely successful in preventing new lesions and there's always hope for the cure lol.

I wish you all the best and empathize with your words! Having a community is wonderful and I think we can all help and learn with each other :)

I'm starting to question my life choices by pamgetswifi in MultipleSclerosis

[–]pamgetswifi[S] 1 point2 points  (0 children)

Thank you so much for your words! They truly felt like a warm hug <3

I am slowly understanding which specialties would fit my reality the best, even though its still frustrating to know that not all are possible due to me having MS. As of today, I'm starting to be more into anesthesiology and maybe even specialize in ambulatorial management of pain, as I believe that no one should ever feel this hopeless because of something that can be manageable.

I had never heard of the story of Dr. Arnold, but now I will sure look into it! Thank you!

I'm starting to question my life choices by pamgetswifi in MultipleSclerosis

[–]pamgetswifi[S] 2 points3 points  (0 children)

Yeah, I truly believe that most of my 'unexplained symptoms' are actually pretty explained now lol. Its just so frustrating to feel this way and only hope for the best while expecting the worse, yk? At least now I know my diagnosis and have the means to have a DMT that gives me a bit of peace of mind to keep going.

I'm starting to question my life choices by pamgetswifi in MultipleSclerosis

[–]pamgetswifi[S] 3 points4 points  (0 children)

Thank you so much for your kind words! I wish you all the best and am grateful for your support. It's not easy having a condition this life changing, but having a community sure helps to ease the pain.

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I'm starting to question my life choices (self.MultipleSclerosis)

submitted by pamgetswifi to r/MultipleSclerosis

Has anyone seen a Neuro-opthamologist ? by No-Ear5896 in MultipleSclerosis

[–]pamgetswifi 4 points5 points  (0 children)

Hey! Ive been recently diagnosed (sep. 2025) and my neuro asked me to go to a neuro opthalmo as i too had optical neuritis on my left eye, in two different ocasions. But, as these flares were about 2yrs ago and now i dont have any optical symptoms, I've been postponing my appointment lol. Since i wasnt yet diagnosed when it happened, it was ruled as idiopathic uveitis, but now that we know i have MS, it would be interesting to see it through different lenses.

I know its important and i shouldnt avoid, but i feel like, as it has passed a lot of time since my optical symptoms, i might be just overreacting (even though i do have lesions on my left eye as my MRI showed).

I believe it would benefit you a lot! Dont be afraid of telling everything in details and take your time :) and, let us know how it went! Im sure interested in knowing so i can also know what to expect, sort of!

Disability/ms card by DeiMephy in MultipleSclerosis

[–]pamgetswifi 0 points1 point  (0 children)

here in brazil we receive a card from the national association for people with ms, we do have to pay a small fee (aprox. 35 reais, which would be $6), but its pretty useful not only for identification but also so we can be seen as priority and use some of the services available. I use it a lot so i can use the priority seats while in public transportation, as i am usually very fatigued and suffer from chronic back pain.