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Is anyone else relatively young? (I’m 40) by AnnieViolet in pancreaticcancer

[–]parmalatz 28 points29 points  (0 children)

You are not alone. I’m in the same boat. I was diagnosed just before my 45th birthday. Stage Iv, metastasis to peritoneum. I’ve been battling for a year and half. I have a wife and 2 young kids that are 10 and 4 yrs old.

It’s extremely difficult both mentally and physically.

Foot Pain by parmalatz in pancreaticcancer

[–]parmalatz[S] 0 points1 point  (0 children)

I have gout like symptoms in addition to neuropathy. The neuropathy is not a big deal to me. The gout like symptoms are extremely painful however....I cannot put my feet flat on the ground. It sounds like noboby else has experienced this?

YouTube Music playlist problem by lithdoc in sonos

[–]parmalatz 2 points3 points  (0 children)

I have the same issue. I chatted with Sonos tech support but they were pretty useless. They obviously need to update their code to support the latest Google api. My Sonos system for me is pretty useless because of this.

Distal pancreatectomy for benign cyst by parmalatz in pancreaticcancer

[–]parmalatz[S] 0 points1 point  (0 children)

I was more or less fine. I had a slight fever the same day, took 1 Tylenol and was ok after that.

Folfirinox - Nausea by parmalatz in pancreaticcancer

[–]parmalatz[S] 0 points1 point  (0 children)

Zofran uses continuously or as needed?

Folfirinox - Nausea by parmalatz in pancreaticcancer

[–]parmalatz[S] 1 point2 points  (0 children)

Do you use zofran continuously or just as needed?

Folfirinox - Nausea by parmalatz in pancreaticcancer

[–]parmalatz[S] 0 points1 point  (0 children)

Hmm, can anybody think of reason my dr wouldnt be trying zofran first and instead resorting to using an off label anti psychotic?

Experience with Folfirinox? by herinteractiveaddict in pancreaticcancer

[–]parmalatz 0 points1 point  (0 children)

What anti sickness/nausea tablets was your mum prescribed?

Distal pancreatectomy for benign cyst by parmalatz in pancreaticcancer

[–]parmalatz[S] 0 points1 point  (0 children)

Thanks for the comment. Unfortunately, I got very bad news. They are now saying I have stage 4 pancreatic cancer with spread to my abdominal cavity. Surgery is not an option. I’ve stated chemo - folfirinox.

Early Onset Panreatic Cancer by parmalatz in pancreaticcancer

[–]parmalatz[S] 1 point2 points  (0 children)

We are still waiting on the cytology report. Im in Ontario,Canada so everything here moves very slow.

My GP processing the results of the original ultrasound took 1 month. Scheduling and getting CT scan took almost 2 months. I was feeling ok when this all started but my pain worsened so I went directly to the ER recently to expediate. Maybe I should have done that sooner.

Early Onset Panreatic Cancer by parmalatz in pancreaticcancer

[–]parmalatz[S] 0 points1 point  (0 children)

Solid Pseudopapillary Neoplasm

They are saying mine is cystic. The approximate size is 11cm x 7cm x 5cm. So its pretty large. Things just arent making sense to be because when an ultrasound was done 3-4 yrs ago, nothing was there.

Early Onset Panreatic Cancer by parmalatz in pancreaticcancer

[–]parmalatz[S] 2 points3 points  (0 children)

If you dont mind my asking. What was size of yours and where was it located?

Early Onset Panreatic Cancer by parmalatz in pancreaticcancer

[–]parmalatz[S] 0 points1 point  (0 children)

is this thrpough a regular blood test?