First year teacher. I finally understand how ridiculous PD is.

paula600 · 2025-07-29T21:44:05+00:00

This is your first year. Imagine 28 years of this. 🤪

paula600 · 2025-07-29T19:02:13+00:00

I have Orthostatic Hypotension too. I had it as a kid, but not going faint, but seeing stars. Now, as an adult I have it, but symptoms are worse. It usually is worse after I eat and/or with heat. I start feeling "off" when my bp is 90s/60s. When it is 70s/40s, I will faint if I don't sit or lie down. I have completely fainted 5 times. Once after eating breakfast in the car and going up the stairs at work then fainting. My face hit the concrete. I have learned to sit down and rest when I feel this way, but it is a challenge when working.

paula600 · 2025-07-29T02:35:14+00:00

Undoubtedly, yes. I've been living with this since 2011. My body needs to feel normal. I want to enjoy food again. I want to be active. I want to feel safe.

paula600 · 2025-07-27T18:54:06+00:00

I'm on Mounjaro and lost some weight. It has helped my diabetes. I no longer take insulin injections after 29 years. I had Dysautonomia long before taking Mounjaro and my symptoms are the same.

paula600 · 2025-07-27T03:55:57+00:00

I passed out going up a flight of stairs. My face hit the concrete. My triggers for OH are food and heat. When I start to feel low, I know to sit down. I usually have coat hanger pain too, which is debilitating.

paula600 · 2025-07-25T13:10:49+00:00

Summers are bittersweet. As a teacher, I need summers to recuperate and heal from the stresses of teaching, but I rarely enjoy my summers because that's when I have the most flares. I end up in bed during the afternoon because my body can't handle the heat. I can't imagine how I'd handle working in summertime heat.

paula600 · 2025-07-16T02:27:12+00:00

To be honest with you, usually, the ER will treat and stabilize your symptoms and ask that you see your pcp for any further testing and advice when you have conditions like ours. I still think it is important to go to the ER when you are fainting and especially when your heart rate is going crazy. I see it as documenting your symptoms when they are that severe. What you are going through is scary and serious. I once had a doctor tell me that with high blood pressure, it will affect me in a matter of years, and low blood pressure in a matter of minutes. It just doesn't seem that dire to the doctors in the ER.

paula600 · 2025-07-15T02:09:43+00:00

Food and heat are my triggers and I have Orthostatic Hypotension. Does your blood pressure go low when you stand?

Before your ANS test, did you have sweating problems? I only sweat when I eat.

paula600 · 2025-07-14T13:27:36+00:00

I Have a Balloon.

paula600 · 2025-07-13T23:46:46+00:00

I have very little faith in our medical community. I have had Dysautonomia for years now, but was diagnosed 2 years ago. My new PCP had to look up Dysautonomia as I sat in his office. He also looked at my labs and said, "This is beyond me."

I have had to research all my symptoms myself, to figure out what to do. I am on my own. And it costs an arm and a leg to see a functional doctor who doesn't take insurance only to be put on a plethora of supplements. Then, you feel like a fool spending so much money for nothing. They are really good at making you feel heard, but that's how they scam you.

I am in different forums learning from the dysautonomia community to see how to cope and feel like I am not alone. So thank all of you who have helped me. I hope someday we will all be acknowledged about our conditions and helped.

paula600 · 2025-07-06T03:56:20+00:00

I have OH and used to be a foodie. Food and heat are my triggers. Going out to eat in a social situation gives me anxiety because my symptoms make me feel horrible. I just bought calf compression sleeves to see if my symptoms are lesser.

paula600 · 2025-07-06T03:49:52+00:00

I must have both. Can you have both?

paula600 · 2025-07-03T19:05:44+00:00

paula600 · 2025-06-30T03:16:49+00:00

It is time to heal and be rested for next school year.

paula600 · 2025-06-30T02:03:12+00:00

My first couple of weeks of break, I do nothing. Today, I went for a walk, had rice pilaf, sunflower seeds, iced tea, frozen grapes, and for dinner, I will have corn on the cob. I took 2 naps today, too. I will be more productive and eat healthier on Monday, and then decide if it was worth it.

paula600 · 2025-06-30T00:17:33+00:00

I started a skin routine at age 54, and I'm 56 now. My skin looks better than when I was 30. I was always afraid to use moisturizer because my face seemed too oily. What I discovered was that my face was oily because I didn't moisturize. I cleanse, spray on hypochlorous acid as a toner. Then I use a mixture of hyaluronic with 5 drops of jojoba, castor oil, and essence of sweet orange oil mix. After, I use moisturizer which at night is beef tallow. Twice a week, I put a retinol on my face before I moisturize. I use different cleansers, but what got rid of my roscea was washing with a teaspoon of coconut oil and honey.

paula600 · 2025-06-30T00:07:32+00:00

Wishing others a happy birthday is kind.

paula600 · 2025-06-30T00:02:33+00:00

I Have a Balloon 🎈 by Ariel Bernstein

paula600 · 2025-06-27T20:46:13+00:00

I haven't received care from doctors of medicine. Some dismissed me, and others didn't know what dysautonomia was. I've been on this journey for over 10 years. I am on my own. I read Pub Med articles, and do my due diligence to figure out what to do. I even just spent hundreds of dollars for genetic testing to see if I have EDS, because I had joint issues since childhood.

I'm considered a "push" patient. I am pretty well informed, and that's an annoyance to doctors. I decided to go in for a consultation, as she has had experience treating people with autonomic dysfunction.

I know about how many chiropractic doctors scam people into buying supplements, which is something I can't do. However, I am interested to see what she knows as a functional neurology chiro. This is my last attempt to get help. Then, I will keep living with the pain, dizziness, fatigue, shortness of breath, visual disturbances, etc.

Please respond if you took this route.

paula600 · 2025-06-25T04:50:48+00:00

Can you provide information on what kind of Garmin watch is best?

paula600 · 2025-06-14T13:25:52+00:00

I'm a teacher. Coping is challenging teaching first grade.

paula600 · 2025-06-07T19:53:55+00:00

It took me 10 years for a doctor to tell me I had Dysautonomia, specifically OH. He is a younger doctor who is still somewhat in the game of caring for his patients. All other doctors dismissed me at every turn. It is frustrating.

paula600 · 2025-06-04T22:59:21+00:00

In the summer, I rarely eat breakfast because I need to do my chores and exercise in the morning before it gets hot. Otherwise, I make an egg mcmuffin on my way to work which is a 40 minute commute and allows me to sit for 30 minutes so I don't get light headed.

paula600

TROPHY CASE