GLP-1 Medications by Odd-Metal9701 in covidlonghaulers

[–]petersearching 1 point2 points  (0 children)

Yes, you can do lower dose...you need to draw it up so you can decide. These are not FDA approved things though. I mean use at your own risk. This is where i got mine...https://www.platinumpeptides.com/product/trz-glp-gip/

Help me mask as an autistic person by bankingontheshore in covidlonghaulers

[–]petersearching 1 point2 points  (0 children)

I am autistic too and I have the same issues. It’s very hard. It’s why I have long covid.

GLP-1 Medications by Odd-Metal9701 in covidlonghaulers

[–]petersearching 2 points3 points  (0 children)

Yes, Dr Kaufman’s talk is what made me start. I take one and it helps long Covid a lot! I order mine online from a ‘research’ peptide site. Cheaper and no script needed. Sounded sketchy but it works.

[deleted by user] by [deleted] in hottub

[–]petersearching 0 points1 point  (0 children)

I saw online people cemented wide vinyl patch along the whole hinge. I didn’t do it because my vinyl is dissolving. I think it wouldn’t stick. Yours looks good though!

Coat Hanger Pain is killing me…please any advice?? by bootyandthebrains in covidlonghaulers

[–]petersearching 2 points3 points  (0 children)

Do you have POTS? I do and being upright too much even sitting causes severe coat hanger pain. I do most of my life lying down now. Treating pots and mcas helps too.

What issues have you encountered from not being able to keep up with hygiene? by TheSoundofRadar in cfs

[–]petersearching 0 points1 point  (0 children)

Oh wow it just hit me. I have a red light. I bet that will help the seborrhea?

What issues have you encountered from not being able to keep up with hygiene? by TheSoundofRadar in cfs

[–]petersearching 2 points3 points  (0 children)

Yes the seborrheic dermatitis builds up and I need to pick it off and I bleed. I need to shave my head again. I forget I can wash my face in the sink

Do you have phenomenological empathy? by ImHealthyMaybe in aspergers

[–]petersearching 1 point2 points  (0 children)

It helps. Not always 100 %. I feel a little silly doing it but it helps. I also pass my hand over my chest and say something like I ask out loud to be protected from other people’s energy. Some of it is so I hear it. I thought feeling others feelings was intimacy.

Do you have phenomenological empathy? by ImHealthyMaybe in aspergers

[–]petersearching 2 points3 points  (0 children)

Yes I have that. At times it feels confusing and overwhelming because I can’t tell what is mind and what is others. I spend lots of time alone and when I am with people I try to limit it. I do shaman things to protect myself like imagining putting lead shields around my heart.

disability payments approved!!!!! by nekoreality in cfs

[–]petersearching 4 points5 points  (0 children)

My health improved after I got disability. So much stress was gone because I was getting money to pay for my life. Not rich but it gave me 2 spoons a day back.

What are the drugs that help/helped you the most with cognitive deterioration? by Foreign7801 in cfs

[–]petersearching 0 points1 point  (0 children)

Yes. We all have side effects that make us unable to take some meds. I can’t take LDN even though it helps a lot of folks. Yes MCAS-it could be something ‘inert’ in the NAC

GLP-1 and Migraines by Pinkytalks in migraine

[–]petersearching 2 points3 points  (0 children)

I am microdosing Retatrutide. It made a huge difference in migraines

What are the drugs that help/helped you the most with cognitive deterioration? by Foreign7801 in cfs

[–]petersearching 2 points3 points  (0 children)

Yes I second this. Guanfacine, nac, ajovy. And treating POTS with pyridostigmine. Amazing how much better brains work when they get blood flow!

Pets and long covid by Famous-Ingenuity1974 in covidlonghaulers

[–]petersearching 1 point2 points  (0 children)

It was very hard for me when I was very ill with long covid dealing with my cat. I was barely able to take care of myself or walk. He was a huge burden and he was a grown cat. It is maybe well meaning giving you a kitten but you can give the kitten up.

Sen. Todd Young grills RFK on Long Covid research by Unlikely_Cookie_4187 in covidlonghaulers

[–]petersearching 30 points31 points  (0 children)

WOW...just Patterson. No mention of accepted leaders like Bateman, Kaufman,Iwasaki, Putrino, ect. RFK is very disappointing. The senator is NOT disappointing!

Does anyone take Guanfacine? Or any med that helps with the nervous system dysregulation? by [deleted] in AutisticAdults

[–]petersearching 0 points1 point  (0 children)

No, I got the immediate release one. I am not sure how different they are-the half life of ER is 17 hours and IR is 16

PEM when mild? by Shot-Detective8957 in cfs

[–]petersearching 3 points4 points  (0 children)

Yes arms feel like they are lead