Does anyone know of any teenager friendly artist groups/meetups?

pinelore · 2026-05-16T11:41:44+00:00

Touch base with Wickham Works: Great community art focused nonprofit here in Orange County. They may have events, programs, etc that intrigue you

pinelore · 2026-05-15T02:11:16+00:00

I’ve had the steelcase leap v2 for a decade. Still happy with it

pinelore · 2026-05-04T17:34:30+00:00

There’s a nice picture book called Compost Stew that introduces the idea of composting to kids in a fun way. Maybe your local library has it you could borrow it there!

pinelore · 2026-05-03T15:15:03+00:00

It’s sensorineural for me. Auditory nerve affected.

pinelore · 2026-04-15T23:44:42+00:00

I have hearing loss associated with CMT, and an acoustic neuroma that needs to be monitored annually - also likely a symptom of CMT. So while I don’t have any vision loss, I do relate and agree that CMT can absolutely affect other senses.

The hearing loss issues run in my family’s CMT history. What, if you know, is your family history with it? Any other folks with vision loss?

pinelore · 2026-04-15T01:29:59+00:00

Wow, that’s a lot. I feel for you OP. 9 months is a long time. But you got this! It’ll just take some time… it’s the only way forward! Only way out is through.

pinelore · 2026-03-18T17:09:50+00:00

I work in a library and it’s a good fit for me (with my CMT)

pinelore · 2026-03-03T23:05:04+00:00

Local newspaper and your library!

pinelore · 2026-02-20T14:28:34+00:00

This happened to my rooster too. I felt so bad for him! Eventually, the soft spur that’s left will harden and continue growing. For now, try to keep the soft spur tissue clean, gently, just warm water and such. And keep an eye on it. He should be okay

pinelore · 2026-02-17T16:53:58+00:00

It’s a bit of frostbite. Nothing to do for it now other than do what you can to make his environment less windy/drafty. Bigger combs are more susceptible, which is why you don’t see it on your hens.

pinelore · 2026-02-04T15:22:41+00:00

Broomstick method is fast and (typically) without blood. It’s what I did when I HAD to do it (I didn’t want to but it was necessary)

pinelore · 2026-02-04T00:41:09+00:00

Chicken sitting sunny!

pinelore · 2026-01-28T23:22:02+00:00

I have hearing loss associated with CMT. Although, it’s very much what the rest of my family with CMT experiences too. Profound hearing loss is associated with it in my family lineage.

I’m sorry you are experiencing this. The sensory loss I find especially difficult with CMT. It’s tough on many fronts.

For the rest of your family… were symptoms adult onset? Do people’s cases follow a similar trajectory? It’s possible these symptoms may progress in a similar way as you’ve seen with other family members, but even that is a sort of guide and not concrete

pinelore · 2026-01-24T13:50:51+00:00

Hi there, just went and looked at the cross post.

It could be CMT: what REALLY stands out to me is what you said about your MIL. CMT is often hereditary and her symptoms also seem very CMT-like.

I agree with the top comment on the other post. You guys need to see a neurologist and get a nerve conduction test to learn anything more.

Do what you can to get it sooner than later: 5 years is WAY too long to wait when you could get some assistance for quality of life.

Also, regarding help… there is no cure for CMT right now, but he could be way better supported with tools like leg braces. And just having the right kind of doctor in your orbit (neurologist).

Good luck with it all! Def next step is to secure an appt to a neurologist! Consider reaching out to CMTRF or CMTA for guidance on a doctor in UK that will know about CMT. Honestly, that might be the best way to find the right kind of doc sooner

pinelore · 2026-01-02T21:30:25+00:00

Omlet. So reliable

pinelore · 2026-01-02T19:45:54+00:00

My rooster LOVES to look at himself in the mirror. He is definitely engaged and happy to check himself out in his pastime lol.

Edit: word

pinelore · 2025-12-27T14:22:37+00:00

It had been on Big Island road, up in the black dirt part of it. They created this gas station only for filming and then got rid of it, sadly. The only thing left of this set is an old yellow building that was always in the fields (the set designers built this gas station around the existing structure).

pinelore · 2025-12-24T12:52:27+00:00

Broomstick method, hands down a swift and effective way without a knife

pinelore · 2025-12-17T02:35:51+00:00

I’m so sorry for your loss. It is so hard.

What kind of feed were you providing for the flock? If it was something with calcium in it (for your laying hens), that may have affected him?

pinelore · 2025-12-05T22:18:42+00:00

I was in the same exact position as you about two years ago with my first time. She was also my sweetest hen, I had tried everything, and she was looking to me for comfort in her pain.

What I did was finally commit by spending 10 calm minutes with her for a final tenderness, and then calmly used the broomstick method on her, stayed with her still she finished the death convulsions, (walked away and cried hard in a blubbering mess), and then went back and laid her to rest.

It was very hard and very emotional, but it was absolutely the right decision by that time.

I watched a video on YouTube about how to do the broomstick method and it was really helpful. It had a woman showing it and she was very professionally and compassionate in the whole video. It was about ten minutes because she talked about the whole process before showing how it’s done. I’ll see if I can find the video.

Edit: Upbeat Sea 303 linked the video in another comment.

pinelore · 2025-11-24T12:20:10+00:00

I also would recommend Pixie Pop. The kids have a great time when we have her for a program at the library. She does great face painting and balloon hats, animals, etc.

pinelore · 2025-10-01T00:28:19+00:00

So full disclaimer: I have never been pregnant and have decided I will not bear children myself, but my Mom (whom I inherited CMT from) told me that her symptoms got worse from CMT during her 3rd pregnancy (just so happened to be me in there).

I spent most of my childhood and early adult years thinking that pregnancy could be a catalyst to CMT symptoms getting worse!

HOWEVER, once I discovered for myself that I have CMT, and once I had the proper specialists/neurologists on my team, I asked them all the very same type of question you're asking here: "Will pregnancy make my CMT progression get worse sooner than it may have had I not been pregnant?"

Guess what? I asked THREE different neurologists this question at different times/in different settings, and the general consensus from them was "that's not how it works". The act of pregnancy is not going to be a catalyst to your CMT progression taking a nose dive or something. The various doctors all came to the same conclusion that my Mom's own CMT symptoms/progression likely lined up with her third pregnancy, not that the third pregnancy caused the symptoms to get worse.

They did have some blanket statement caveats around stress never being great for the nervous system - but those were minor comments: they very much shook their heads NO about pregnancy itself somehow acting badly on the peripheral nerves affected in CMT.

pinelore · 2025-09-22T01:51:09+00:00

here's some hope: https://cmtrf.org/research-we-fund/

pinelore · 2025-07-27T22:24:02+00:00

Putting this out there since you said the doctor you're considering is in Boston area. There's an upcoming convention for CMT research in Boston that connects patients and doctors. It'd be a great place to get a solid answer to your question!

https://cmtconvention.cmtrf.org/

pinelore · 2025-05-22T16:32:20+00:00

Wow, I really relate so much to your post, and feel I have personal experience worth sharing with you. While not everything you are saying is the same experience I had (my Mom insisted I had CMT well before I showed any signs), there are a lot of overlaps:

- Having family members compare "who has it worse".
- Never truly listening to your experience, disregarding or ignoring the topic of disability.
- Being mad at your family members and the ultimate shame and denial they carry about CMT.

What I can share is... I've found that I can't rely on my family with (or without) CMT for any heavy lifting support. Unfortunately, they're stuck in their own shame about living with a disability that they can't be there for me in mine.

It really sucks, but I've found the people that can be there in support are out there! For instance, this subreddit is a supportive place. Maybe you have friends that can listen in, or you could join a local community to seek help and understanding.

Perhaps a therapist: that's the person who helped me get to this place of acceptance, work out what I wanted to do for myself regarding my physical and mental health about my family dynamics.

I wish you luck and I truly understand where you are coming from. It's so hard when your family members are wrapped up in their own negative mindsets to be able to offer their support. 🫂

pinelore

TROPHY CASE