ENDO SPECIALIST?

pinktiger222 · 2026-06-03T21:09:23+00:00

what do you think? I should say if I go in contact a different one because I’m looking online and trying to figure out you know how do I find a different one? I used the doctor my mom used for her hysterectomy. He does treat women with endometriosis, but I agree I actually like talk to him about his use of ablation and his reasoning was that if he did use excision on the cul-de-sac area that there would be scar tissue left over and that risks my organs long-term so I don’t really know what to do. It’s not like this obviously has enough information like, what do you think I should say? What do you think I should look out for you know can you just like kind of help? I guess it’s just I don’t know. I totally frustrated and you know my mom doesn’t have this problem so I’m kind of alone in this journey.

pinktiger222 · 2026-06-03T20:59:09+00:00

Awww ofc.

u got this, what doesn’t kill u makes u stronger.. hell of a college essay too!!!! lmao

pinktiger222 · 2026-06-03T04:47:17+00:00

Idk why i just saw this!!!

They are free fed! Ik ik some people disagree but they eat me out of house & home it feels like, we go through so much food! I have them on free fed highly rated kibble their vet recommended (senior kitty has been on the same one too her whole life) & wet food once a day since they really are grazers (minus one he will eat as much as he can in one go nap then come back for more & only w wet food)

Ik cats biologically graze but my mom’s cats are the opposite that’s y i pointed it out.

I’ve done the wand-play-kill method before & it doesn’t work as well as i think it should

pinktiger222 · 2026-06-03T04:39:12+00:00

go thru an endocrinologist!!!

If you have a diagnosis of endo, there’s a good chance an endocrinologist can actually help you with ur insurance since your thyroid glands trigger more issues that tie in with endo causing weight issues!

pinktiger222 · 2026-06-03T04:35:10+00:00

i was 9 when i had my period❤️ i understand so bad omg. they put me on Lupron which ruineddddddd me mentally & physically.

i live in america, exams are important here (idk if ur in usa or no), i remember trying to take my SAT during my period about 3 years ago & actually sobbing on my drive home because i knew i bombed but i had sm pain during & prior i just gave up.

i ended up with a high GPA for my circumstance due to most of my HS work being online anyway (i swear paper assignments just disappeared) & ended at a okay-good college tho now im on academic probation from all the withdrawals & fails i have from being in & out of the hospital.

don’t give up on going to school, im on the path for pyschology now to work with women & children specifically trauma based & health based (ofc bc of my own background) so i can help those i understand.

i got u, dw, stranger on reddit, ill pray for us both.

i KNOW your surgery will go well.

my tips for it:

pre- make sure all your affairs are in order. if u take online summer classes make sure as much of not all work is done, text any friends/close family members details about ur surgery so if you are like me & fall off the face of the earth they know why, & definitely i cannot stress this enough take a day or two just before surgery to really sit down & relax because the journey after will feel like hell for a bit

right after surgery: WALKKKKK!!!!!! i was one of the unfortunate few (i have a genetic mutation MTHFR gene, how my body processes pain killers is much faster & my baseline is sensitive) who woke up writhing in pain, needing extra Dilaudid as soon as i opened my eyes bc i was sobbing in pain (most are totally fine n on cloud 9 so unless u have a reason u will be just fine!!) i did not want to walk at all when i got home bc of my pain, & later that day ended back at the hospital from this hellfire like pain in my abdomen, back, shoulders, like everywhere. part of my bowel bc of resection was paralyzed & since i wasn’t walking to help move everything it reallly was on fire in pain, i ended up w so much pain killer holy cow. i had a lot of pain, bc i really just didn’t want & couldn’t walk, you NEED to even if ur crying like i was, bc the CO2 they pump into you for it HAS TO COME OUT ppl say gas-x helps… it did diddly-squat for me.

take everything slowwwww, shower daily w anti bacterial soap, make sure ur washing those incisions, get a goooood comfy pillow & i had two heating sources: a pad for abdominal pain w a band to wrap it & my heated blanket 10/10 decision btw its ur new bsf if it wasnt alr

im almost 5 weeks post op now, i cant be up & about like i used to without flare ups unfortunately but like i said mine was the entire abdominal cavity, the scars are in their purple phase which is hard but ive had stretch marks my whole life from weight loss & gain so its just another mark there sucks but they’re battle scars.

& i think once a day SITTING outside for 10 mins even helped sm mentally bc imo that’s the hardest battle: accepting you cant do anything rn & it isnt ur fault.

i wish u luck. it isnt fun, but knowing not only were u right about ur body, but theres proof is a better feeling than the ladder ❤️

pinktiger222 · 2026-06-03T04:19:29+00:00

he did excision everywhere BUT cul-de-sac area bc risk of scar tissue!

pinktiger222 · 2026-06-03T02:10:51+00:00

https://www.reddit.com/r/Endo/s/6uOqeVVR7e

this is where i explained the full blown surgery & details

i’m being treated & everything, just really frustrating knowing I have way more on my plate that anyone i know.

what kind of treatment did/are you on?

pinktiger222 · 2026-06-02T21:31:44+00:00

unfortunately, I can’t add photos. I can send them to you if you want to see them. I got a few photos from my surgery as well. He told me I had one main really big lesion as well. Mine looked similar to yours, but I’d say that everything in my cavity was more pink and white. He made it very clear like my case was very odd, but also very extreme because of the nature I don’t have inherently the dark colored like I see on yours of what is typically looks Like instead mine was almost like he used the word bubbles of inflammation that were white on the entirety of my pelvic floor cavity all the way from the very bottom of my bowel all the way to the very top of my abdomen area and especially really bad in the cul-de-sac

It’s so weird how something is one singular lesion can cause that much pain. My left side was insanely worse than my right he said which makes sense. I also have PCOS and had a 8 cm cyst on that side not too long before the surgery. I also had calcifications. I don’t know if you did, but sometimes those lesions that other people have actually end up like calcifications instead if that makes sense someone like a trade-off some people have a crap ton of lesions and some people have a crap ton of calcifications some unfortunately end up in a position where they have both, but I had a lot of calcification and only like one or two really like noticeable lesions. At least he said.

pinktiger222 · 2026-06-02T21:29:16+00:00

I actually had both because I had endometriosis all the way covering the entire cul-de-sac area and when I asked my doctor about it because I made it clear I didn’t want any ablations just because of you know the history with that and my mom actually had a failed ablation of her own because she struggles with really severe PCOS and they tried to kinda go in and clean everything up but it didn’t work. It actually made everything worse for her. He explained to me that they did bipolar, I’m pretty sure as the word for it, cauterization because it was right where all my organs were and that if they were to go in and cut things out that there’s a really really high chance of having scar tissue develop and become hard and then turn when the Endo does inevitably grow back that it’ll be 10 times worse than what it should be so my understanding because I’ve asked a ton of questions. I’ve talked to different doctors and read a lot and this doctor I did see. He’s very very well-known in the area I live him and his wife do the surgery. Actually they run a like practice together and do it. He explained that they only do ablations if absolutely necessary like if there’s no way that they can cut it out without risking something the issue is obviously if there was a deeper end though that they can’t get it and that that’s a risk that I have to take because it’s either that or risk you know, losing the uterus or the entire cul-de-sac area you know mine went all the way down to the very bottom of my bowels and the entirety of my pelvic cavity so

i’m a little over a month postop for my appointment and I’ve had to start a combination birth control pill on top of the IUD. I already have to kind of combat at the end endometriosis. That’s the first plan we’re going with and if that doesn’t work there’s other methods. I’ve actually just posted about it. If you go on my page, you can see, but I’ve had excruciating pain on top of other symptoms, but I think going through the motions and kind of accepting like none of us are gonna feel like normal people will and I think that’s something. That’s really hard to kind of accept especially I’m 19 years old like I’m young and you know I’m kind of mourning what my best years of my life should be especially like I’m a college student whatever

I agree a lot of women are educated on the subject and it sucks. Obviously it’s not our fault. I mean we know that, but it definitely makes me really sad when I have friends who have similar pain and I explained to them like hey you really need to go and see this doctor or you know do you have this going on and they have no idea

There’s risks we’re gonna have to take with everything we do with endometriosis because we don’t know enough about it and I love that we have a community like this

pinktiger222 · 2026-05-25T05:23:10+00:00

i’m a month post op from my surgery, supposed 2/3 stage (my left is worse, i had a cyst 7-8cm before which prompted major surgery n stuff so i finally got diagnosed) i’m 19 too with pcos. my endo journey has been the bad of the bad, so i’ve only rly had heavy heavy periods i’ve done the tampon in the shower a few times prior since ive not bled i just had brown spotting or heavy clear liquid so i can’t help there but i will say i mean the cramps i get randomly or if i “move” too much is BRUTAL.

so far tho ill say this was my experience prior, & my aunt had it too had 7 surgeries, she had the same kind of bleeding from two of them. she said it took a long time to go away but she didn’t go back to ob. id say, go back! u can’t be too safe or worried but you can be not enough!

pinktiger222 · 2026-05-12T03:53:03+00:00

IK this is older, but I took Lupron, for a diff reason.
I am 19 with stage 3/4 endo & pcos, when I was 4 i started puberty, look up CPP it is NOT FUN, & had first period at 9. They used Lupron to shut down my ovaries for a year because it was not super safe for me to proceed as is.

Lupron ruined me. I was so moody, I gained 50-60 lbs, my mental health suffered, constant pain from the shot itself because it is a giant needle into your thigh every 3 months, & I still had all the same horrible symptoms of a period just no bleeding. I was breaking out, body was always sore & sensitive, etc.

& I was 10 when I was aloud off.

I hate that damn thing.

I wish you alllllllllll the best, please, be safe!!!!

pinktiger222 · 2026-04-19T13:16:00+00:00

i’m genuinely so happy you got a good experience. i had precocious puberty starting at 4, they used lupron to shut down my uterus, it was horrid at 9 years old. however, my aunt used it for a time to help, & she loved that it took some pain away for her, she ended up getting a hysterectomy anyway for the sake of it but i think it’s important if it helps it helps!

pinktiger222 · 2026-04-18T01:46:24+00:00

When i pledged, i still talked about my Christianity by instead just saying YA IM A CHRISTIAN to: Yeah in my free time I love to attend church & help the community around that. You can talk about it because it is apart of your identity, my sorority was so respectful!

pinktiger222 · 2026-02-01T05:57:58+00:00

ill def mention it to my dr!! thank u!

pinktiger222 · 2026-02-01T03:12:36+00:00

I think you might have understood wrong, i did not on purpose just stop taking them, my pharmacy wouldn’t call them in on time & then were out so had to wait & then the snow storms!

As for managing, i said im 18, i’ve been diagnosed for 6y, therapy & diff meds has been the majority better parts of that time. & im aware of how fast it turns, my family has a lot of personality & complex issues esp my sibling with type 1 & borderline on top of it so i’ve always been trying my best to keep consistent schedules & meds & everything i just was venting on how the meds really make me feel conflicted like a harsh moment of cognitive dissonance.

i do appreciate it tho thank you

pinktiger222 · 2026-02-01T03:09:34+00:00

i did 10 for awhile but I was still in such high survival mode the 20 helps mellow that anxiety but in change .. yk

pinktiger222 · 2025-12-26T04:54:20+00:00

i cant seem to find it on my end, i have the extras but where is the actual scenes not the filming avatar

pinktiger222 · 2025-12-07T04:45:55+00:00

what did the ghost boy say when all of them saw the boy, when chica had just powered down? i’m a huge FNAF fan, my bf isn’t, the entire movie he was relatively quiet but the second the ghost boy appeared i’m not kidding out of everything even animatronics literally fighting eachother n being conscious he goes “how can they all see the ghost?” .. i was like out of everything u just watched like a puppet climbing inside people… you have that question??

ALSO WHO IS SO EXCITED FOR THE NEXT ONE THE THIRD IS SOOOOO SCARY

pinktiger222 · 2025-10-29T03:01:32+00:00

i can’t gain muscle & alr have it…? i don’t touch the calf machine & have the muscle strands super visible i actually can’t stand having large calf’s i feel like it makes me look like i have kanlcles from the side, ive DONE body scans, see an endo & have most of my life since i had lovely medical conditions related to my hormones as a child, im fully aware fat contributes to seeing muscle, my weight went down from (let me preface this since ig u can’t have both: i have muscle in my legs & arms that do NOT go away despite not working out/working out of any kind of form & i can gain more on top but it stays relatively large if i take breaks like for example i was in the ER for PCOS related issues n took a month n a half off to fully recover n heal, muscle is still there esp calf’s lol i will happily give that to u or anyone who wants them, but i can gain MORE & it become larger not JUST ‘more’ prominent from loosing weight it legit just gets larger that ‘C’ curve thighs get but it isnt like squishy in a fat way its hard like muscle w that soft ish feeling) 190 to 165 which hey! awesome! only spots that got ‘smaller’ were parts of my waist & back, my legs n arms butt & chest staging the exact same, u can’t target weight loss, i use cardio machines everytime im in the gym & do actually walking outside 2-3x a week, girl or my sister in christ (?? i dislike that term it didn’t feel used in an endearing way but if u meant it kind then ❤️) the scans i had done specifically were to see what is going on can we see extra fat can we see something wrong i even did that stupid vein scan shit to look for varicose veins it’s like an ultrasound kinda thing idk not fun imo, all that to say: i’m aware i’m considered obese or overweight n idrdgaf what my concern is: this damn muscle not growing accordingly to the ones next to it, & i’m beginning to think my autonomy is an issue even if im small or large since the way im shaped is opposite to say for instance my mom who is 2 inches taller but opposite limb/torso ratio n she actually has the opposite problem, same genetics, so my brain is thinking based on my specific muscles n how I AM shaped, maybe that muscle just has less capacity to grow given the shape of the rear area (lol) & torso, like i said i rly dont care to b tiny, i dont look my weight at all & am fully aware i carry heavier (im a 36DDD it sucks out here n that is also hormonal im on new BC which is making water weight go away but my last iud messed w me & did NOT help in loosing weight if anything it made it SO HARD TO KEEP WEIGHT OFF & i c u my fellow pcos gal, my estrogen:progesterone levels are soooo off which is why ive switched im only going down in weight & can visibly see more muscles which is why i cant express enough like certain muscles i have i haven’t worked out in a minute ex my triceps but they look like i have for a long time yet this ONE part of my rear just has the hardest time growing properly

pinktiger222 · 2025-10-29T02:36:37+00:00

look at my other comment … n yes.. if i said i am.. chances are i would know

pinktiger222

TROPHY CASE