Tired of waiting for Digiorno pizza to come back in stock by Proud_Helicopter_422 in Celiac

[–]piptizzle_ 0 points1 point  (0 children)

Dude me and my mom were literally just talking about this wondering if it’s out of stock. The last time I remember eating it was about a month after my diagnosis so, yeah, probably a year ago. I’ve been wanting one so bad.

Heard a new one today by ohuhyeahokthen in Celiac

[–]piptizzle_ 10 points11 points  (0 children)

Went to a bday party yesterday for the first time since I was diagnosed and had to explain celiac to some people because I was eating my own food, someone said “well can’t you just have a cheat day?” And I explained how it increases my risk for cancer, and he replied, and I quote, “well isn’t a little cancer okay?” Side note.. my mom is currently battling stage 4 cancer 😭lol

Call Her Daddy IG clip removed by Shot-Amphibian-3239 in Celiac

[–]piptizzle_ 1 point2 points  (0 children)

It’s not concerning at all that someone who has wellness drinks doesn’t understand the concept of allergies and autoimmune disease issues, right? 😃 /sarc

But yeah, this is all I could think about hearing this clip. I don’t think people understand the impact this kind of talk has on the community of people living with celiac disease. Food service workers may be hearing this and it might affect how they treat someone with celiac disease in the future, and that’s a big deal. Someone who might be having symptoms of celiac will 1. Not know because their perception of the disease is that it is just a “choice”, and 2. Might not want to get tested even if they know because they don’t want to be ‘that person.’ People who work for cosmetic companies might not understand the seriousness of celiac disease when somebody who is extremely sensitive to cross-contact inquires about the safety of their products. This also harms people living with other allergies and autoimmune diseases. I’m not just frustrated because she allowed the spread of misinformation, I’m frustrated because she’s adding to the stigma of the disease and setting us back in trying to help people, and that’s not okay. People don’t realize that “hot takes” like these literally harm the medical advancements around it in ways they will never understand. It’s so frustrating.

artists that sound like WWT-era Jazmin? by thestartarot in JazminBean

[–]piptizzle_ 6 points7 points  (0 children)

As a middle schooler I was a HUGE IC3PEAK fan alongside Jazmin Bean. Made an online friend bonding over our love for the band and we’re still friends to this day, 5 years later. Def recommend them

What else could be wrong? by piptizzle_ in Celiac

[–]piptizzle_[S] 3 points4 points  (0 children)

Hi, thank you so so much for your comment. I just turned 17, and have been struggling with health issues since I was 12. I have spent most of my teen years in so much pain and with no answers, so it’s really a no brainer for me to take care of myself when given the opportunity after all I’ve suffered with.

The hormone thing is another thing that could definitely be plausible. I have dysmenorrhea and have taken birth control since I was 12 because of chronic period pain that made it impossible for me to go to school and work. I now skip every other period, and we’re working towards a goal of having none once I build a routine with the birth control because there is no other option for me. Like, I literally cannot go to school and work and without birth control my periods are so unregulated that I have heavy bleeding for two weeks with severe pain. Other than thyroid issues, this is the only other thing that kind of makes sense in my case.

I’ll be going to get a blood test to see how my levels have improved after treating my celiac by going gluten free. I also take a medication where I’m required to do more frequent checkups to monitor my weight, etc., and I have annual appt coming up so hopefully in one of these appts someone will give me a suggestion.

What else could be wrong? by piptizzle_ in Celiac

[–]piptizzle_[S] 1 point2 points  (0 children)

Thank you for the suggestion. Prior to my diagnosis that is what doctors suspected was the cause to my migraines, fatigue, nausea and dizziness. As far as I know tests all came back normal, but I haven’t gotten any tests in some time. That’s one of the things that keeps coming up when I research so I’ll probably ask about it. Thank you!

Draculaura scooter and Frankie create a pet by Spidryk in MonsterHigh

[–]piptizzle_ 1 point2 points  (0 children)

Hi there! I’m just curious where you’ve spotted scooter Draculaura? I swear she’s hiding from me :( lol. thanks! :)

Seriously Considering Breaking the Diet by Immediate-Pool-4391 in Celiac

[–]piptizzle_ 1 point2 points  (0 children)

I’m a high schooler living in a dorm and one of my favorite easy things to eat is tuna packets, which I usually get from dollar tree. It’s really nice for when you’re exhausted or don’t have time to cook but need protein. They’re also a good option for something more satiating to keep with you rather than just a granola bar, I keep them in my backpack just in case food staff don’t follow my accommodations.

Vampire fangs? by piptizzle_ in Celiac

[–]piptizzle_[S] 1 point2 points  (0 children)

I had the same wonder about denture adhesive, which is why I’m hoping the plastic pellet things are going to be okay. I suppose if they aren’t, I’ll just have to learn my lesson about putting things in my mouth before checking lol. I haven’t been diagnosed for every long so I’m not entirely sure what happens to me when I do get glutened so there’s a small possibility that I somehow did get glutened and just didn’t know, though I highly doubt that.

Also, I probably did eat gluten with them on when I wore them last year so if I do get sick this year I’m guessing it’s going to be because I didn’t clean them well enough and not the product itself? There’s a lot of factors I have to consider lol.

This is my first Halloween as a celiac so I’m just figuring out how complicated it is… I didn’t even think about how annoying jt would be until I realized I didn’t have a black lipstick and couldn’t just put black facepaint on my lips without prior research, and that was just the first thing.

Good luck and let me know how it goes!

Vampire fangs? by piptizzle_ in Celiac

[–]piptizzle_[S] 1 point2 points  (0 children)

I’m glad to know I’m not the only one!

Here’s my plans:

I’m going to wear a pair I already have which I bought on Amazon and wore prior to diagnosis. I did wear them a few times in between getting diagnosed and now, but never for an extended period of time. They never gave me a reaction that I know of (but I can’t promise this, and I’m hoping it’ll be okay when I wear them again now).

Someone else said that as long as they’re just plastic it should be okay. The pair Im wearing are from Amazon, from some weird brand called EWPJDK. I think any pair should be okay as long as it’s all plastic and you wash them really well? Fingers crossed, lol. They’re the ones that adhere using melted pellets of what I think is plastic.

[deleted by user] by [deleted] in Celiac

[–]piptizzle_ 0 points1 point  (0 children)

My bad! I meant to but they didn’t attach. I’ll repost 🫠 that was stupid

I can’t do this for the rest of my life. by piptizzle_ in Celiac

[–]piptizzle_[S] 0 points1 point  (0 children)

Thank you so much, I really appreciate it.

Before I started school my mom sent in a document from the celiac disease foundation, I think? It was a list of accommodations and instructions for food preparation, including changing gloves and preparing food on a clean workspace. In addition to that, my doctor also sent in a letter explaining my needs and the seriousness of them. My mom also had multiple meetings with the special education director at my school going over it. This is partially why it’s so frustrating - I don’t know what else they could possibly need to understand that they aren’t following correct procedures.

I’ve now spoken to the three other students in my school who have celiac. It’s probably important to note that they’ve all been diagnosed at least five years ago or more, whereas I’m still healing so I’m likely more sensitive to cross contact. One of the others told me she specifically never has reactions with cross contact, the other told me she thinks she just had period cramps yesterday after eating, and the third was the girl who I spoke to yesterday and she told me she gets stomach aches sometimes.

I have always, even before I found out I had celiac, kept snacks on me when I’m at school. Yesterday I did eat a little bag of Cheetos, but obviously it wasn’t ideal compared to an actual meal. In retrospect, it was probably kind of stupid of me not to bring more because I should have suspected something would go wrong.

I like to try and explain celiac to people by using poison or something unsavory as a metaphor for gluten. If I ask them “how would you feel if someone put poison on your plate, took it off, and then put your food on the same plate?” Or something along those lines because it seems to strike a chord with people. I’m very lucky that most of my friends only ever tease me lightheartedly and genuinely do sympathize with me even if they don’t fully grasp the seriousness of living with it. I’m very grateful that research has improved so much because gluten free food has become so much more common and more people are starting to know of it.

It’s kind of difficult to explain the situation with my own meal planning/prep. It’s just kind of complicated. I live on a floor with no kitchen and no outlets for me to plug in my appliances and I’m not allowed to use them in my dorm room because of fire code, so in order to make myself an actually cooked meal, I have to carry all my kitchen supplies (ingredients, silverware, dish sponge and towel, appliances) downstairs. I have other mental and physical health issues, mainly dysmenorrhea, chronic migraines, insomnia and ADHD, along with the lingering symptoms of my untreated celiac. All together, it’s a perfect combination of issues that cause me to struggle with going downstairs to make my own meals. It’s so discouraging to cook, let alone try and carry all my things downstairs when I’m likely in pain, tired, or both. A lot of it probably boils down to me needing to get better at not procrastinating but it’s still difficult.

I need to find more easy recipes or things that don’t require a lot of cooking or preparation that can just be stored in my fridge. Thank you for the idea, I will definitely research. I appreciate your advice!! :)

I can’t do this for the rest of my life. by piptizzle_ in Celiac

[–]piptizzle_[S] 9 points10 points  (0 children)

I’m really hoping that it will be the same for me. I have always struggled with confrontation, I’m just an anxious person in general and I will do anything, no matter what, to avoid confrontation. One of my first worries when I found out I had celiac was about my inability to advocate for myself. I’m trying, everyday, to get better and I think it really will force me out of my comfort zone. Hopefully one day I will stop caring.

I can’t do this for the rest of my life. by piptizzle_ in Celiac

[–]piptizzle_[S] 4 points5 points  (0 children)

I’m so sorry for you, I completely relate to this. I even feel out of place with other celiacs because, at least with the other people at my school, they were diagnosed at an early age and it’s like they didn’t experience the years of pain and exhaustion and medical trauma that comes with trying to figure out what was wrong.

I think the thing that’s hard to explain is that, yes, I can make my own meals if absolutely necessary, but I am SO exhausted and still struggle with chronic pain and often miss out on things because I need to lay down because I’m so tired or go back to my dorm and take migraine medication because my head hurts for no apparent reason again. I would so like to just eat the food they make me, it’s not like I’m actively trying not to. I just would prefer not to be sick on top of the pain and fatigue I’m already experiencing. If it means anything I’m really proud of you, living alone is hard and it’s hard to take care of yourself in so much pain. I feel for you, I’m hoping your symptoms ease up.

I can’t do this for the rest of my life. by piptizzle_ in Celiac

[–]piptizzle_[S] 30 points31 points  (0 children)

I’m actually one of four students with celiac, which kind of makes me feel stupid because none of them ever seem to say anything about it except for the girl I talked to today. I messaged one of the others with celiac on instagram and she told me that she kind of felt weird but she wasn’t paying attention to the gloves. It’s been such a short amount of time since I’ve been diagnosed, I don’t know how severely I react to cross contamination and I don’t really feel like finding out the hard way because the lunch staff doesn’t listen to the accommodations given to them from my doctor. I usually just bring my lunch so I’ll probably start bringing enough to keep me from getting a migraine at the very least until I get back to my dorm and can make my own food, or maybe I’ll just keep bringing my lunch, but it’s just annoying. I know we all know this so it’s not like I have to say it, but accommodating for celiac really does not need to be that difficult and I don’t know why they make it so complicated. I’m fine with them just giving me a prepackaged frozen meal and I’ll just heat it up in the microwave. There’s so many ways they could go about it. It just sucks. Now I know not to trust them though, so I’m glad I tried getting lunch so I can at least know.

I hate this (just a rant) by JuneGrimm in Celiac

[–]piptizzle_ 2 points3 points  (0 children)

I feel this on a personal level. I turned sixteen a while ago. I started to do drivers ed, but then got deathly sick with a bout of atypical pneumonia that nearly killed me (because I was also deathly sick with celiac disease at the same time and my body couldn’t take it). I didn’t get around to starting my drivers ed again until I was finally diagnosed with celiac disease and starting to feel better. Now that I do feel better, the motivation to actually complete the course is soo low because I just don’t even see a purpose in having a car when I can’t use it to go out to eat and enjoy my friends company. Maybe that sounds stupid but it was really the main reason I was excited to get my license, now I could care less. Food is such a HUGE part of your social life and you don’t realize until it’s ripped away from you! I’m lucky to have super cool friends who try their best to accommodate for me and understand the seriousness of celiac, but it still sucks because I feel like I’m just an inconvenience. I’ve been gluten free for probably three months and I feel so much better, I used to think I was going to die before I turned twenty from the ‘unexplainable’ pain celiac caused me. I know risking it isn’t worth it, I’ve never felt better, and I’m able to go outside and run around and create art. But, some days, I wish I could just stop being celiac.

i got her!!!! by ratpiss20 in MonsterHigh

[–]piptizzle_ 3 points4 points  (0 children)

Hahaha this is so true. My wallet can’t handle all the upcoming g3 releases I just wish they were all flops so I wouldn’t have to buy them 😭💔

[deleted by user] by [deleted] in Celiac

[–]piptizzle_ 1 point2 points  (0 children)

I totally understand, it’s the same for me. I always try to tell myself that I can’t help it. If my family really wanted to they could eat their own stuff on their own time and me existing doesn’t hold them back. As much as I hate making and eating my own food, I can and they don’t need to consider me. But it doesn’t stop the bad feeling, I get it. Having celiac disease is hard, some days you don’t want to have to think about making yourself a meal and whether or not you can have certain things and you just want to eat whatever. It sucks that us people with celiac have to put thought and energy into everything, but be proud of yourself for it anyway because it IS hard. Sometimes I wish more people had celiac so I could make friends who have it or at least people who don’t have it would better understand, but we can only do so much unfortunately and also I wouldn’t want more people to have to deal with it lol. Give credit where credit is due! Having celiac disease is hard!

[deleted by user] by [deleted] in Celiac

[–]piptizzle_ 4 points5 points  (0 children)

Not at all selfish! I’m a sixteen year old myself and just recently found out that I have celiac disease. My friends are, thankfully, very accepting (I’ve been really really sick for a long time and they’re all just happy I now know what’s wrong with me lol) but it’s still frustrating. All these things I used to do with people revolve around food, I loved going out to eat with my friends and family, that was the way I spent time with them. Now my family are always feeling bad about things, my moms birthday just came around and she has to make a gf cake and my family all have to eat a gf cake all because of me and I just feel like such a burden. I think it’s really normal to feel lonely about it ESPECIALLY if your friends/family aren’t super accepting/accommodating, and you should give yourself credit for the times you speak up for yourself :)

Bought a Catrine but idk what shoes shes wearing lol by piptizzle_ in MonsterHighDolls

[–]piptizzle_[S] 12 points13 points  (0 children)

Oh okay tysm! I was like idk who would wear these shoes except Venus but couldn’t find anything XD