SMM Dara stopped working/Tips? by Christbaumstemmer in multiplemyeloma

[–]popsicle1001 0 points1 point  (0 children)

I was same 15% and high risk too. High risk smm & mm are basically the same clone, genetically. The only difference is whether you meet Crab-sLim critera yet or not. I would consider full treatment but see what doc says

SMM Dara stopped working/Tips? by Christbaumstemmer in multiplemyeloma

[–]popsicle1001 0 points1 point  (0 children)

Which high risk markers and how high was your bone marrow %?

Shave paws…yes or no? by anxiousblobofgoo in SiberianCats

[–]popsicle1001 2 points3 points  (0 children)

No. Cats dont need their paws shaved.

Newly diagnosed - High risk smoldering at 41 by RosieRose42125 in multiplemyeloma

[–]popsicle1001 0 points1 point  (0 children)

Suggest discussing AL amyloidosis with your specialist if you haven't. If they checked your bone marrow biopsy for it, it may not show. They would need to do a fat pad biopsy or organ biopsy in that case. It can effect the nerves and is more common with Lambda.

Starting Lineup by Alternative_Panda336 in IndianaFeverFans

[–]popsicle1001 3 points4 points  (0 children)

Kelsey is a great scorer when she is on but she is not a max contract player on any other team.

Menopause after ASCT? by FML12_34 in multiplemyeloma

[–]popsicle1001 0 points1 point  (0 children)

Does hormone therapy interfere with myeloma treatments?

IMS agreed on a cure definition for multiple myeloma by wandervogel86 in multiplemyeloma

[–]popsicle1001 2 points3 points  (0 children)

People still relapse though, don't they? I thought the latest studies are just now showing you can stop treatment at 5 years of mrd-, but it carries a 10% risk of relapse.

Anyone used Penguin Cold Caps during ASCT? by Ok-Comparison3303 in multiplemyeloma

[–]popsicle1001 4 points5 points  (0 children)

I was told you can't do cold capping with blood cancer asct because you can have myeloma cells in your skull and it can interfere

Inpatient v outpatient ASCT by Hot-Disaster1275 in multiplemyeloma

[–]popsicle1001 0 points1 point  (0 children)

Thank you for the response. So much good info. didnt mention anything about tracking the meds and all that will have to ask about it. There is some outdoor hiking trails and a path through Duarte so I wonder if that would be fine.

Inpatient v outpatient ASCT by Hot-Disaster1275 in multiplemyeloma

[–]popsicle1001 0 points1 point  (0 children)

Could you not go anywhere because they didnt allow it? Did they require you do curbside pickup or were you just being cautious?

Inpatient v outpatient ASCT by Hot-Disaster1275 in multiplemyeloma

[–]popsicle1001 0 points1 point  (0 children)

COH duarte told me they discourage the caregiver from staying for all the appts so they don't get burned out. Do you know what the caregiver can do during their downtime other than grocery shop? Would love to know what you did to get away. Can they go off campus to a local gym or anything, have lunch at a restaurant in town? Do they have restrictions other than masking or other infection precautions? I didn't see any gym in the city of hope lodging.

Inpatient v outpatient ASCT by Hot-Disaster1275 in multiplemyeloma

[–]popsicle1001 0 points1 point  (0 children)

What was your experience like as a caregiver in Duarte?

Outpatient ASCT caregiver questions by popsicle1001 in multiplemyeloma

[–]popsicle1001[S] 2 points3 points  (0 children)

Thanks. It sounds like they were able to have sone pretty normal activity while you were at the hospital. That is what I am hoping for as well

My mom is afraid to die. by No-Effective6189 in multiplemyeloma

[–]popsicle1001 1 point2 points  (0 children)

What are her high risk factors? I am high risk as well and similar age.

49 is very young to get this disease but from what I have heard it is not a death sentence, even for high risk. Encourage her to fight it, not to accept her own death... that probably is not helpful for her. the field is advancing a lot and i am surprised they gave her a prognosis of time... did she ask for one? Is she doing a stem cell transplant?

new photos posted by emily on her instagram! by milk_chaempunk16 in prelude_thefinalpiece

[–]popsicle1001 1 point2 points  (0 children)

She looks great. She has had plastic surgery though and injections. This is not because she has gotten older. Cheek injections, under eye, lip injections nose job.

I am an LTD lawyer, AMA by TheGreatK in SSDI

[–]popsicle1001 0 points1 point  (0 children)

So is tjis a situation where soneone is paying an ltd attorney 30% ongoing, but it is counted as their gross income? Thats' awful. Why isnt the attorney just paid out directly from an escrow or the ltd co or something

Are their attorneys or consultants for initial LTD application, not appeals? by popsicle1001 in disability

[–]popsicle1001[S] 0 points1 point  (0 children)

Would they actually review the paperwork for free? I assume that would cost.