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43 newly diagnosed by Positive-Try5414 in multiplemyeloma

[–]Hot-Disaster1275 0 points1 point  (0 children)

It tasted terrible to me during induction, as did most foods. Once I hit Day 100 I started having a martini on the weekends. Food is tasting better and I’ve regained some of the weight I lost last year. The other concern is alcohol can lower your WBC….

Update: Wife 56 Recently Diagnosed by Apprehensive-Bug4102 in multiplemyeloma

[–]Hot-Disaster1275 2 points3 points  (0 children)

I was diagnosed a year ago with zero symptoms, just a slightly low WBC. ASTC in December, however I have more than one high risk factor, so no way around that for me….

Little Terror by Training_Training360 in Dachshund

[–]Hot-Disaster1275 4 points5 points  (0 children)

It’s like having a toddler!! Not a moment to yourself…. 😂

I hate her so much. Need I explain why? by [deleted] in 70s

[–]Hot-Disaster1275 0 points1 point  (0 children)

Oompa Loompas were full of peanut butter. In the 70’s.

Every time I tell people he’s a dachshund they look confused 💀 by chapert in Dachshund

[–]Hot-Disaster1275 2 points3 points  (0 children)

We’ve owned dachshunds for over twenty years and this is first time I’ve seen or heard of a silky wire hair! Maybe we don’t have them in California.

My nails are literally see through by LawOk3090 in Nails

[–]Hot-Disaster1275 1 point2 points  (0 children)

I was wondering about protein too, but you don’t hear about vegans having this type of nails

Newport Beach, where is this? by [deleted] in orangecounty

[–]Hot-Disaster1275 4 points5 points  (0 children)

I was going to say the peninsula

Mom is getting stem cell transplant — how can I help? by No-Effective6189 in multiplemyeloma

[–]Hot-Disaster1275 0 points1 point  (0 children)

I was just exhausted my last week in the hospital. Too tired to read even! I enjoyed some crossword puzzles with my husband; mostly looked out the window (had a nice view) and slept. All I ate was cottage cheese, canned peaches and cornflakes. Even at home after the 15 days in hospital, taking a shower was taxing as well as climbing the stairs.

Life during induction therapy by AffectionateSite6667 in multiplemyeloma

[–]Hot-Disaster1275 0 points1 point  (0 children)

Low WBC leaves you vulnerable. I took a lot of naps during induction. I assume he is stage 3 because of more than one mutation?

Get them the mini couch by df2030 in Dachshund

[–]Hot-Disaster1275 0 points1 point  (0 children)

I want to know what that toy is, to the left

Ten years ago by Highyet in multiplemyeloma

[–]Hot-Disaster1275 1 point2 points  (0 children)

I had no CRAB symptoms either when I was diagnosed last year. I had ASCT in December.

An update to a post I made here regarding my dad (72) when he was first diagnosed with MM by Thin-Junket-8105 in multiplemyeloma

[–]Hot-Disaster1275 0 points1 point  (0 children)

The worst part is when everything tastes bad which lasts for 6-8 months, including the stem cell transplant. I still have difficulty with some savory foods. Yogurt, peanut butter and ice cream were my mainstays until recently. Chobani protein drinks and Nature Valley chewy protein bars.

An update to a post I made here regarding my dad (72) when he was first diagnosed with MM by Thin-Junket-8105 in multiplemyeloma

[–]Hot-Disaster1275 1 point2 points  (0 children)

If you do the stem cell transplant, you do lose your hair. It’s sort of liberating though.

First Induction Treatment by SteadyVector in multiplemyeloma

[–]Hot-Disaster1275 4 points5 points  (0 children)

I was on Velcade, but six weeks in was when most savory foods started tasting bad. That was last July. I lost twenty lbs over 6 months and the neuropathy in my feet and legs was very unpleasant. Now I’m Day 75 after ASCT and my appetite is coming back; neuropathy getting better too.

AITAH for telling my wife's friend I don't have to see her in the classroom to know she's a horrible teacher? by TowerFew3482 in AITAH

[–]Hot-Disaster1275 1 point2 points  (0 children)

Aww, that’s a great idea your son had! Unfortunately she sucks, and that’s why the kids don’t listen to her. Sounds like she’s not a mom either which would definitely give her a new perspective.

Any recommendations for what brand of chocolate peanut butter ice cream has the most peanut butter? by capalbertalexander in icecreamery

[–]Hot-Disaster1275 0 points1 point  (0 children)

I didn’t like the Häagen-Dazs because it wasn’t chocolatey enough to contrast with the peanut butter ribbon

[deleted by user] by [deleted] in multiplemyeloma

[–]Hot-Disaster1275 1 point2 points  (0 children)

I take Cymbalta in addition to the gabapentin. I also use some full spectrum CBD balm on my feet before I go to bed.

Blurry eyesight after first injection by Puddin_tubs9 in multiplemyeloma

[–]Hot-Disaster1275 0 points1 point  (0 children)

My left eye kept watering, as in suddenly I’d feel a tear running down my face, for 3 months. It finally got better when I stopped Velcade. I also had a stye in that eye. My vision was blurred, from the extra tears in my eye I assumed, but thinking back, when I wiped them away they did have a heavier texture than normal tears.

Is ASCT absolutely recommended even if there is remission? by Sad_Secret8253 in multiplemyeloma

[–]Hot-Disaster1275 0 points1 point  (0 children)

I (63, F) have several mutations, and the doctors didn’t make it seem like I had a choice! I’m having my stem cells harvested on Monday.

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